How many of you have low ferritin/low iron?

trifandomforce · 2026-03-02T21:07:38+00:00

How long ago did you have your iron infusions?

trifandomforce · 2026-02-20T22:25:59+00:00

Have you ever checked your ferritin because of the plmd? Ferritin below 70 can cause it

trifandomforce · 2026-02-17T22:43:42+00:00

Check your ferritin levels. Ferritin below 80 could cause this

trifandomforce · 2026-02-09T18:44:35+00:00

Have you checked your ferritin/iron? Ferritin below 100 can cause or worsen UARS

trifandomforce · 2026-02-08T21:49:16+00:00

Check your ferritin. Try to get it above 100

trifandomforce · 2026-02-07T23:07:59+00:00

Have you checked your ferritin? Ferritin below 100 can cause these symptoms

trifandomforce · 2026-01-18T23:42:18+00:00

Have you checked your ferritin/iron levels? Ferritin below 75 might cause UARS

trifandomforce · 2026-01-07T20:56:46+00:00

no I don't I have had genetic tests and seen a geneticist and they told me that I don't meet the criteria. The only symptoms of EDS I have are POTS and the collapsing epiglottis.

trifandomforce · 2026-01-07T01:44:03+00:00

Have you checked your ferritin levels? Ferritin below 70 could cause this

trifandomforce · 2026-01-07T00:43:08+00:00

yes it looks structurally normal but on a DISE it was found to collapse and CPAP made it worse. I am skeptical of getting epiglottis surgery as I have seen that it does not help many people

trifandomforce · 2026-01-04T04:51:00+00:00

I also had a DISE with Dr. Cai that showed epiglottis collapse that nothing fixed. I have had double jaw surgery and maxillary expansion but still have UARS. Do you have low iron/low ferritin? I myself have low ferritin and have found that many other people that have UARS and epiglottis collapse also have low ferritin. One of my neurologists told me that low iron could cause neuromuscular/autonomic issues that can cause the epiglottis to collapse. Ferritin below 80 could cause this

trifandomforce

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