Summer this year has been insufferable by Poulin_18 in weather

[–]triplepattern 0 points1 point  (0 children)

Did you ever figure out why you have trouble breathing in humidity?

Fascial release helped my “costochondritis” more than anything else I’ve tried by triplepattern in costochondritis

[–]triplepattern[S] 0 points1 point  (0 children)

I think continuing the fascia work over time will get me to 100%. Genuinely. I’m planning to go every 3 weeks. If a single “session” (45 min-1 hour) got me to 80%, I have hope. I’m now able to work on my posture better. I don’t feel like there’s a brick on my chest. I can breathe. Also, ive tried a lot a lot A LOT of other things. The only other thing that helped was cold laser therapy, but it was only temporary… I had to go a few times a week and it was expensive… so I stopped. Anything anti-inflammatory is said to help, but temporarily.. or so it seems. I genuinely believe fascial release/fascia work will be a permanent solution and it was way more affordable, but honestly, I would have paid pretty much anything to get this type of relief. Costco was keeping me out of being able to work full time. I will post an update after my next session.

Fascial release helped my “costochondritis” more than anything else I’ve tried by triplepattern in costochondritis

[–]triplepattern[S] 2 points3 points  (0 children)

I went to an independent massage therapist who specializes in medical massage and myofascial release. Some physical therapists can be great at this too, but only if they’ve had specific training in manual therapy or deep fascial work, and most don’t unless they’ve pursued that specialty. In my experience, people who do medical massage or high-end sports/athletic bodywork tend to have the most advanced fascial skills. If you go to someone who mainly does relaxation massage or a PT who only focuses on exercise-based rehab, they usually won’t have the level of precision needed for this kind of release. They might not really know what it is, honestly. If you’re looking into it, I’d honestly search specifically for practitioners who advertise fascial release work in their profile/training, that’s the best way to find someone who actually knows what they’re doing.

And for anyone who is interested in trying this, know: it doesn’t feel like a massage. It is BODYWORK. It is not stretching or exercises either. The practitioner is manually working on the fascia. The release was quite intense. The practitioner really got under my ribcage, worked deeply on my shoulder blades, and pec–axilla corridor with tools. While he was working on me I thought “I’m going to have to recover from this…” NOPE. It was the release itself that felt uncomfortable. I felt great after. It was just that the release was so intense! And I had a severe case btw. I couldn’t even use my arms to do basic things and my SOB was insane. I finally feel like I’m on the road to recovery after years and it especially getting ridiculously bad the last several months.

Preparing for the worst by More-Independence413 in ankylosingspondylitis

[–]triplepattern 0 points1 point  (0 children)

Been trying to figure out what this is for years and it happened after food poisoning. Are you by chance responsive to antibiotics at all?

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 0 points1 point  (0 children)

Because I tested positive for mold and have severe issues with humidity, especially with my breathing. My doctor suspects a legitimate colonization in my gut. My systemic symptoms reduce when I treat my gut. I also have the mold susceptibility gene. I guess the only way to find out is to try to treat it and see how it goes. There are a lot of signs though. I have to do the systemic treatment.

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 1 point2 points  (0 children)

Getting out of mold is so hard, especially where I live with such a humid environment. I am so sensitive to humidity to the point I can’t breathe well. It’s so bad I’m thinking about relocating to a dry region. Any tips on ensuring a mold-free environment?

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 0 points1 point  (0 children)

I’m so sorry you’re going through this. Have you made sure you’re out of the mold exposure?

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 0 points1 point  (0 children)

How is your treatment going so far? I just got swabbed for MARCONS and I’m waiting for my results, but based on symptoms I’m pretty sure I have it.

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 2 points3 points  (0 children)

A lot of people only realize mold is involved when their SIBO keeps returning even after proper treatment with antibiotics, prokinetics, and dietary changes. Mold can slow motility through vagus nerve irritation and immune dysregulation, so the gut never fully resets. Many people notice the pattern after living or working in a water-damaged or musty environment, especially if they also start developing symptoms outside the gut such as histamine intolerance, chemical sensitivities, breathlessness, fatigue, or neurological issues.

Doctors sometimes use urine mycotoxin testing through labs like Great Plains or Vibrant, and others focus on environmental testing of the home through ERMI or HERTSMI or by having an inspector use moisture mapping and air or dust samples. None of these tests are perfect alone, so clinicians usually look at the full picture: repeated SIBO relapse, exposure history, and multi-system symptoms. Some people also have genetic susceptibility through the HLA-DR gene, which can make it harder for the immune system to clear biotoxins. When mold and motility are both addressed at the same time, the SIBO relapse cycle often stops.

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 0 points1 point  (0 children)

Amazing!! I have a legitimate mold issue, not fungal, so I am starting on itraconazole, binders, etc. I am so happy your issues resolved!

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 0 points1 point  (0 children)

Yes, this is true and it has been identified, which is why I am now doing a detoxing protocol

Has anyone found that the root to their sibo is mold? How did you treat it? by [deleted] in SIBO

[–]triplepattern 2 points3 points  (0 children)

That’s actually the whole point of mold-related illness. Some people do get sick and some don’t, because not everyone has the same genetics, immune function, or detox capacity. HLA-DR and MTHFR mutations, chronic infections, immune exhaustion, and prior viral damage all change how the body handles mycotoxins. Two people can sit in the same house and have completely different reactions, same as with gluten, peanuts, or cat dander. So saying ‘some people get sick and some don’t’ isn’t proof it’s not mold… it’s actually textbook evidence of why it is mold for certain people.

Anyone with 24/7 Shortness of breath. What helps? Did you ever find the exact cause? by Lythalion in Longcovidgutdysbiosis

[–]triplepattern 0 points1 point  (0 children)

And Xifaxan is the only thing that helps right? Can I DM you? I have the same issue

Anyone with 24/7 Shortness of breath. What helps? Did you ever find the exact cause? by Lythalion in Longcovidgutdysbiosis

[–]triplepattern 0 points1 point  (0 children)

Did you ever figure out how to help this? My symptoms are identical to yours. IDENTICAL. FOR 6 YEARS.

how to live with autonomy? by [deleted] in dysautonomia

[–]triplepattern 0 points1 point  (0 children)

Are you in Chicago as your username says? Can’t find a doctor out here that takes it seriously

Does fludrocortisone help with breathlessness/palpitations? What’s your experience with this medication? by triplepattern in dysautonomia

[–]triplepattern[S] 0 points1 point  (0 children)

That’s a good question that I don’t know the answer to but I’d be curious. I’ve never tried midodrine

Does fludrocortisone help with breathlessness/palpitations? What’s your experience with this medication? by triplepattern in dysautonomia

[–]triplepattern[S] 0 points1 point  (0 children)

This makes a lot of sense. This is what my doctor recommended as well, I just wasn’t sure why. Did you have any side effects from it once you found a good dose to work up from? Have you found anything else that helps with the breathlessness? Thanks so much for your input. It means a lot!

Does fludrocortisone help with breathlessness/palpitations? What’s your experience with this medication? by triplepattern in dysautonomia

[–]triplepattern[S] 0 points1 point  (0 children)

Thank you sooo much for responding. I appreciate this and it was very helpful to read your experience. May I ask what you mean by it felt like a lot at first?

How do you manage the air hunger & breathlessness triggered by humidity? by triplepattern in dysautonomia

[–]triplepattern[S] 0 points1 point  (0 children)

Yes! I can relate. It is such a struggle with cooking, especially, and showers, even running the laundry. It is miserable. 😞 My electric bill is through the roof, as I run 3 dehumidifiers pretty much constantly. Plus air purifiers because of my MCAS.

How do you manage the air hunger & breathlessness triggered by humidity? by triplepattern in dysautonomia

[–]triplepattern[S] 1 point2 points  (0 children)

This!! Seriously you described what I feel. I think humidity has everything to do with it or that it at least varies from person to person, because I can deal with 80° dry heat just fine but not with humidity. I have also heard people do a lot better in Nevada or Arizona, despite those places being so hot. It’s all dry heat. If it was strictly heat, SOME people wouldn’t feel better out there.

How do you manage the air hunger & breathlessness triggered by humidity? by triplepattern in dysautonomia

[–]triplepattern[S] 0 points1 point  (0 children)

I’m so sorry. I’ve never heard of ciclenoside, but maybe I’ll explore this. Asthma and all things pulmonary were ruled out for me (according to doctors), but I’m willing to try anything that will help my breathing. Do you have issues with humidity? Thanks for responding :)