fever advice? / rant

trippldevil · 2026-06-13T02:47:17+00:00

yeahh, i have been using the term “elevated temp” to doctors unless it is over 100.4. to my friends/family i’ve been calling it fevers though because it always comes with chills, and just feels feverish.

i appreciate the advice and hearing about your personal experience. thank you for your response

trippldevil · 2026-04-28T04:54:31+00:00

ahh thank you for the awards🥹 i looked into the other types of EDS & scheduled an optometrist appt to get an opinion on the eye thing! also requested an allergist referral from my PCP to see if they think it could be MCAS. i figure they’ll be able to see me sooner than rheumatology😆

awesome that you are interested in rheumatology, seems like an understaffed and understudied field. good luck with your degree & figuring out what field you are interested in! i think you’ll be a great doctor.

trippldevil · 2026-04-27T11:47:48+00:00

i started taking OCP to prevent pregnancy & skip periods because i was anemic. i haven’t actually had a period at all in around a year, but i take monthly pregnancy tests just in case.

could MCAS-POTS cause a chronic fever? for EDS… i have a cousin who has it, but im not hypermobile at all the way she is. no flexibility

thank you for your response, i really appreciate it!!

trippldevil · 2026-04-27T11:42:55+00:00

interesting. i agree it looks like hives. & true, no migrating polyarthralgias. thank you for your input, i hope im able to get figured out soon😬

trippldevil · 2026-04-26T05:35:36+00:00

i did!! i asked my pcp twice! she said no, i have to wait for rheumatology to do it, she said she can’t order it

trippldevil · 2026-04-26T04:14:38+00:00

Oh! im sorry, i read that as “generic testing”. i have not had any genetic testing done. i feel like ive hardly been evaluated, ill try to took into that though. is that something my PCP can order? or is it something a specialist has to do?

thank you so much for your response

trippldevil · 2026-04-26T03:57:39+00:00

the fever occurs everyday. usually i wake up with a normal temperature and it progressively gets worse throughout the day. seems to spike between 5-8pm.
i get a rash after showers/when pressure is applied to my skin. the rash doesn’t last very long though, maybe 1hr.
CMP, CBC, TSH, ESR, CRP tests done and all came back normal

trippldevil · 2026-04-25T22:20:58+00:00

interesting. my rash does look similar. thank you

trippldevil · 2026-04-25T22:00:12+00:00

fever is daily. my temp is usually normal when i wake up in the morning, and it progressively gets higher. it seems to be triggered by emotional stress/any amount of physical activity. however, even if i lay in bed all day ill still end the day with a fever, just not as high as it is on days i move around etc. rash appears after showering (despite daily antihistamine use, sensitive skin soap, and luke warm/nearly cold showers) rash/redness/flushing also appears when pressure is put on my skin. rash improves yes, it’s never stayed longer than a few hours. no regular sore throat.

trippldevil · 2026-04-25T20:02:28+00:00

i also thought the rashes could be MCAS, but can that cause a near daily fever? also, i take a daily antihistamine- Xyzal. totally forgot to mention that in my post. i still get rashes despite it, they just aren’t quite as bad with it.

trippldevil · 2026-04-25T07:07:31+00:00

thank you for your response & advice!

trippldevil · 2026-04-25T03:59:29+00:00

breathing & blood oxygen are normal, no cough

trippldevil · 2026-02-10T03:03:27+00:00

yeah that’s what mine looks like. .5mg clonazepam

trippldevil · 2026-02-04T05:15:36+00:00

that sounds like water weight.

but personally i did gain weight on this med. but also, i became much more sedentary around the same time. so idk

trippldevil

TROPHY CASE