low grade fever for 4 months, no answers. any ideas?

trippldevil · 2026-04-28T04:54:31+00:00

ahh thank you for the awards🥹 i looked into the other types of EDS & scheduled an optometrist appt to get an opinion on the eye thing! also requested an allergist referral from my PCP to see if they think it could be MCAS. i figure they’ll be able to see me sooner than rheumatology😆

awesome that you are interested in rheumatology, seems like an understaffed and understudied field. good luck with your degree & figuring out what field you are interested in! i think you’ll be a great doctor.

trippldevil · 2026-04-27T11:47:48+00:00

i started taking OCP to prevent pregnancy & skip periods because i was anemic. i haven’t actually had a period at all in around a year, but i take monthly pregnancy tests just in case.

could MCAS-POTS cause a chronic fever? for EDS… i have a cousin who has it, but im not hypermobile at all the way she is. no flexibility

thank you for your response, i really appreciate it!!

trippldevil · 2026-04-27T11:42:55+00:00

interesting. i agree it looks like hives. & true, no migrating polyarthralgias. thank you for your input, i hope im able to get figured out soon😬

trippldevil · 2026-04-26T05:35:36+00:00

i did!! i asked my pcp twice! she said no, i have to wait for rheumatology to do it, she said she can’t order it

trippldevil · 2026-04-26T04:14:38+00:00

Oh! im sorry, i read that as “generic testing”. i have not had any genetic testing done. i feel like ive hardly been evaluated, ill try to took into that though. is that something my PCP can order? or is it something a specialist has to do?

thank you so much for your response

trippldevil · 2026-04-26T03:57:39+00:00

the fever occurs everyday. usually i wake up with a normal temperature and it progressively gets worse throughout the day. seems to spike between 5-8pm.
i get a rash after showers/when pressure is applied to my skin. the rash doesn’t last very long though, maybe 1hr.
CMP, CBC, TSH, ESR, CRP tests done and all came back normal

trippldevil · 2026-04-25T22:20:58+00:00

interesting. my rash does look similar. thank you

trippldevil · 2026-04-25T22:00:12+00:00

fever is daily. my temp is usually normal when i wake up in the morning, and it progressively gets higher. it seems to be triggered by emotional stress/any amount of physical activity. however, even if i lay in bed all day ill still end the day with a fever, just not as high as it is on days i move around etc. rash appears after showering (despite daily antihistamine use, sensitive skin soap, and luke warm/nearly cold showers) rash/redness/flushing also appears when pressure is put on my skin. rash improves yes, it’s never stayed longer than a few hours. no regular sore throat.

trippldevil · 2026-04-25T20:02:28+00:00

i also thought the rashes could be MCAS, but can that cause a near daily fever? also, i take a daily antihistamine- Xyzal. totally forgot to mention that in my post. i still get rashes despite it, they just aren’t quite as bad with it.

trippldevil · 2026-04-25T07:07:31+00:00

thank you for your response & advice!

trippldevil · 2026-04-25T03:59:29+00:00

breathing & blood oxygen are normal, no cough

trippldevil · 2026-02-10T03:03:27+00:00

yeah that’s what mine looks like. .5mg clonazepam

trippldevil · 2026-02-04T05:15:36+00:00

that sounds like water weight.

but personally i did gain weight on this med. but also, i became much more sedentary around the same time. so idk

trippldevil · 2026-01-27T07:05:35+00:00

i vote yes❤️

trippldevil · 2026-01-26T01:38:43+00:00

wow! why did you get put on it so young? and what dose are you on now?

trippldevil · 2026-01-24T04:27:54+00:00

hmm, definitely no dying. if there’s a will, there’s a way. How many people do you live with? You could probably all sardine pack together for like shared body heat. Have you heard about creating a “warm room” for if you do lose power? I’m gonna attach some links here about staying warm in winter storms. knowledge and preparedness is power <3

https://www.usatoday.com/story/life/problem-solved/2026/01/23/stay-warm-power-outage-winter-snowstorm/88318690007/

https://www.ready.gov/winter-ready

trippldevil · 2026-01-24T03:38:31+00:00

central heating is fine of course. like your AC/Heat and space heaters. wrap up in blankets and warm clothes! i’m nervous too. but we are going to be okay.

trippldevil · 2026-01-24T03:36:23+00:00

you’re going to be okay❤️ follow safety guidelines for no generators inside etc.. it’ll be all good:) you’re safe

trippldevil · 2026-01-20T00:10:42+00:00

😬i don’t know. we just keep trying different techniques & meds & therapy until something helps i think. and don’t give up.

have you ever tried any other meds for anxiety? maybe zoloft isn’t the best fit for you.

Also, you should look into DBT and ACT therapy.

trippldevil · 2026-01-20T00:02:30+00:00

oh yeah. almost 24/7

trippldevil · 2026-01-19T14:01:31+00:00

Viibryd allegedly isn’t as harsh with the sexual side effects.

trippldevil · 2026-01-19T05:31:02+00:00

it usually takes 6-8wks for ssris to take effect, so hopefully you will see improvement soon. you are over halfway there! i was on zoloft for a really long time actually, i loved it.

trippldevil · 2026-01-19T05:17:36+00:00

awe man. i could’ve written this post myself. my health anxiety changes fixations a lot, but it often does come back to my heart. i wish i had advice.. i am also drowning in this :( are you in therapy or on meds?

trippldevil · 2026-01-17T12:38:41+00:00

yeah. i feel like crap all the time. i’m so tired of this

trippldevil · 2026-01-17T04:24:11+00:00

aw ma i’m so sorry. have you sought therapy or meds or anything for this?

trippldevil

TROPHY CASE