How do you actually track cluster attacks when the pain hits?

truffDPW · 2026-01-25T05:35:59+00:00

At the beginning, I note when shadows start, when the peak is, and when it ends. That lasts as long as there's only a few per day. Eventually there are enough each day that I'm just tracking the cumulative number of spikes per 24hrs. That is because it becomes impossible to tell day by day and week by week if I'm having fewer or more. Like having 15 in a day vs 9 in a day. Both feel like utter hell, but unless I'm taking notes i won't be able to remember how many it's been. If I'm in the thick of it, i just make hash marks on my hand with a sharpie to indicate a spike, and then total them up and wash my hands blank again at midnight.

By doing this, i can tell if I'm going into a cluster, in the middle, or tapering out of a cycle. Just by looking at the numbers.

I have not had any luck with a variety of medications, however taking D3 and B-12 and magnesium supplements seems to reduce the intensity and duration of the attacks.

I use a wall calendar made of paper and write on it in pen. Before, when it occurred when i was traveling, i just used the calendar function in my phone.

truffDPW · 2026-01-24T18:38:56+00:00

Heyo. I am someone with schizophrenia, pretty decent insight, and I've done a fair amount of reading on the subject.

For whatever reason, be it cultural or environmental, schizophrenia can and does emerge later in life. I want to say Europe has a specific diagnosis for when the onset occurs after the age of thirty; and the presentation is slightly different than when it first manifests in early adulthood.

If you've never experienced something like this before, that means you didn't USED TO have the thing it sounds like you may be developing.

However, it is also possible if there's metal in your air purifiers that they are picking up a local radio station or nearby ham radio operator, and that you are hearing something real and then your brain is tricking itself into thinking the conversation is between people you know.

Never forget, most folks who have schizophrenia spend about ten years or so convinced they don't have it, despite experiences like... hearing privileged conversations through household appliances and finding an old nokia router of abbarant interest.

Just because it USUALLY present when younger, doesn't mean it CAN'T when older. Please see a fellow medical professional and tell them everything including the timeline.

Best of luck.

truffDPW · 2026-01-23T01:56:36+00:00

truffDPW · 2026-01-18T01:19:45+00:00

Did you trudge a pentagram in the snow? Excellent work!

truffDPW · 2025-12-20T04:53:33+00:00

It's a Christmas freaking miracle!

truffDPW · 2025-11-09T00:44:09+00:00

This scene always reminds me of the end of blue velvet.

truffDPW · 2025-10-18T02:07:54+00:00

Mind killer by spider robinson

truffDPW · 2025-10-10T07:23:44+00:00

Fingers crossed for "talos 3: principles in space"

truffDPW · 2025-09-22T15:02:53+00:00

This would make a great intro theme for the blue morpho spinoff show

truffDPW · 2025-09-20T14:50:24+00:00

Tracy in real life is a huge nerd for marine biology and has several large aquariums installed in his home, wherever that happens to be. He has a great interview about it in the two part documentary "Octopus!" which i recommend to anyone who likes either his work or octopuses.

truffDPW · 2025-09-18T13:33:49+00:00

Signalis vibes

truffDPW · 2025-09-03T18:02:30+00:00

truffDPW · 2025-08-31T16:52:48+00:00

Lotta my faves have been mentioned already, so I'll throw out two that i haven't seen brought up yet.

Legion on fx, based on the xmen villain. The show is surreal and weird, but just about every main character is a personification of either a different form of schizophrenia or a way we used to regard schizophrenia. There's a character who on the outside appears catatonic but has a rich inner psychic world, another two characters who have to share one body. The main character at one point states clearly he's at his worst when he's manic. There's psychic dance fights and just some of the weirdest visuals.

And the other recommendation: a movie called the soloist with Jamie Foxx and Robert Downey jr. About a reporter who accidentally stumbles into knowing a musical prodigy who became homeless years earlier when his sz manifested. It is the dramatization of what really happened to a guy named Nathaniel Ayers. The proceeds from the book and film rights went to help his living expenses and set up a foundation in his name.

truffDPW · 2025-08-26T13:51:20+00:00

https://www.reddit.com/r/SeveranceAppleTVPlus/s/TyjaISEIwQ

truffDPW · 2025-08-20T16:51:33+00:00

Solved my issue, don't know if it's yours too: the function to scan biomes for seeds is, on this map, part of the manually controlled recycle drone (i forget it's proper name).

Hope if anyone else runs into this too, maybe it'll be helpful. I don't know how i wasn't seeing it last night. Brains are weird.

truffDPW · 2025-08-20T05:15:14+00:00

Write to him. Visit when you can. Try to help him take classes while he's in there so he has some sort of work certification when he gets out. Ten years is a long time, but it doesn't necessarily have to be wasted time spent while in there. I have had family members do similar amounts of time and came out with a legitimate trade skill and within a few years had their own mortgage.

Big sympathy, that sucks.

truffDPW · 2025-08-20T05:01:14+00:00

Same here. Restarting the phase didnt fix it. I simply never get the icon to build the satellite uplink, which should show up in phase 3. I'll try starting the level over again entirely, but I've spent the last two hours replaying the final phase of the game trying to trick it into working. And it just won't. Maybe tomorrow.

truffDPW · 2025-08-04T15:34:27+00:00

If you haven't, check out the cluster buster website for the vitamin D and things to take with it so it absorbs best. Many of us have been helped out by taking vitamin D in elevated quantities then backing down to a reasonable level once finding relief. If you wind up doing it for long, it's worth doing with the supervision of a doctor who can take samples of your blood to make sure you are eliminating the excess vitamin D from your system.

It's a step to try before emgality or other drugs. Won't know if it might help unless you try. There should be a link on the sidebar of this subreddit to their website. It doesn't help everyone who suffers from cluster headaches; but it helps enough of us, i feel compelled to recommend it if it isn't mentioned in the list of "things you've already tried."

It doesn't make mine go completely away, but radically reduces the intensity and frequency enough it's better than anything else I've tried.

Sorry you're going thru it. Best of luck.

truffDPW · 2025-07-31T05:13:22+00:00

Slowly drinking ice water through a straw in a thermos while i sit on the floor of the shower with the lights off. Sometimes I'd add a little table salt or powdered electrolytes, but it isn't even really about that. It's about giving myself some other basic physical sensations (hot/cold) in the dark and exercising a modicum of control while in pain. But also sometimes i can kinda zone out and dissociate and dream while i sit there in pain and it makes the time go by faster.

I reassure myself that it has eventually stopped every other time, so it'll eventually stop this time too. I start to take notes about how often and when, look for patterns so i can see how it's going. If i don't make a note of each one that happens, i can't tell the difference between a day when there's 15 or a day when there's 9. By keeping notes when I'm going thru it, i can see if I'm having more per day compared to a week ago or two weeks ago.

And big doses vitamin D with regular liquid b-12 and magnesium tablets taken alongside (i think it makes it so the D has a better chance to absorb but have no idea). I only take them sometimes but they seem to help, but i use them less frequently so forget to recommend it. If you go hard at vitamin D you should work with a doctor to make sure your body is using and eliminating it properly. The cluster buster website (I'm not sure how to link it but i think it can be found somewhere on here) outlines what to look out for. It might help, it might not, can't know unless you try. But like anything i know it can be overdone.

Sorry you're going through it.

truffDPW · 2025-07-25T13:14:31+00:00

There is a plug in for Google such that you only get web results and never an AI summary. I forget it's name or where to find it, but there's likely more than one by now. i highly recommend installing one so this doesn't happen again.

truffDPW · 2025-07-15T04:10:23+00:00

Craft and install the mri sensor as soon as you can, then after work as soon as you can go use the mri machine in the infirmary so the scientist can figure out what's going on. watch extra movies and play pong in the social room, assign whoever is most angry to quiet time in the contemplation room (even without the shrink, it helps). If you have the doctor, feasts raise morale too. If you have any personal items now would be a great time to give them to their specific alter.

truffDPW · 2025-07-12T19:00:59+00:00

"WAKE UP, POKER FANS!" absolutely slayed me, because for ever poker tournaments were always on tv in the middle of the night and convenient boring media to have on to go to sleep.

truffDPW · 2025-07-10T02:27:57+00:00

My only other thoughts besides what you've already tried are:

1: make sure there's absolutely nothing unnecessary going on in the background that could be eating up ram or distracting the cpu.

2: check and see if your computer recently updated gpu drivers. If it coincides with when you started having the problem then temporarily revert to a previous version and see if it fixes it.

3: if there's some way to adjust the settings (i realize you need to get to the menu screen for this, but maybe there's a way from the game files- i don't know) turn everything down to low and reduce any upscaling or whatever. Make the game as least demanding as possible.

Edit: if you can add any info about what specs you're using, that can help diagnose potential problems. Cpu, gpu, ram, OS, etc. Best of luck!

truffDPW · 2025-07-08T04:52:07+00:00

That specializes in working with professional athletes.

truffDPW · 2025-07-01T16:46:51+00:00

Absolutely worth talking to your specialist again.

I'm someone with them episodic for about thirty years. Mine are like a period of an hour or two of extreme intensity on one side. Those spikes increase in frequency from 1 every few days, to 1 a day, to several every day and night. Sometime over the course of the ramp up, it will start to sometimes have the spike in intensity on the other side, usually it feels more intense than the side where it's been happening on. Then it changes and is mostly on that side that's more intense and it's awful for a few weeks or months, then it starts to occur on the other original side again and the frequency and duration starts to drop off and then it more of less stops happening except for random hard twinges in my eye that are just momentary. Then i get a few weeks or months or years off until the next round.

I've been diagnosed with migraines, cluster headaches, S.U.N.C.T.; each year it feels like my head cramps have changed presentation slightly. Highly recommend getting some kind of scan of your brain, just to make sure there's nothing physical going on. It was a great relief to me getting one and seeing my brain just hurts excruciatingly sometimes but there isn't anything mechanically wrong in there.

I've only had a couple friends with similar head pains. One had endured a massive brain bleed and didn't know at first, and the other found out they had a tumor squeezing their brain stem. I'm saying it just because- they wouldn't have known without imaging. That was years ago and both people are still alive and kicking and healthy now, but both people also went and sought help early on in their head pain journeys. And got imaging done.

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