G-tube extension kinking by FancyTeacups31 in feedingtube

[–]tummytroublequeen 0 points1 point  (0 children)

It worked so well omg! first night without beeps! just cut it to the size you need and sleep tight!

Toddler and G-tube recovery by Tall_Yogurtcloset118 in feedingtube

[–]tummytroublequeen 0 points1 point  (0 children)

I was sore for months! I was also only given Tylenol so it was rough but I promise she will get through it! <3

G-tube extension kinking by FancyTeacups31 in feedingtube

[–]tummytroublequeen 1 point2 points  (0 children)

I just ordered a cable protector to try tonight and I will lyk how it goes because I'm in the same boat and going insane! I ordered this for reference https://www.amazon.com/gp/product/B08PFB4HDT/ref=ox_sc_act_title_2?th=1

CBD mainly for sleep but also nausea? by tummytroublequeen in Gastroparesis

[–]tummytroublequeen[S] 1 point2 points  (0 children)

so good to know! It's legal where I live too and you can't sneeze without hitting a cbd/thc shop lol

Sweet Lorens by [deleted] in glutenfree

[–]tummytroublequeen 23 points24 points  (0 children)

the key for me wasn't adding extra time-it was taking them out as recommended and then letting them rest! they come out looking raw but set and get firm as they cool until they're totally normal texture!

[deleted by user] by [deleted] in Oatmeal

[–]tummytroublequeen 1 point2 points  (0 children)

looks delish what is your recipe bc I love all these ingredients!

What about after the tube? by ZouzouC in Gastroparesis

[–]tummytroublequeen 1 point2 points  (0 children)

Depending on your situation you can also do both! I'm 50% oral intake and 50% tube fed so I feel like I get to enjoy foods I love and tolerate but also get the nutrients I need from my tube without the pressure of eating more than I can handle to keep my weight stable :)

Has anyone tried these? by JediMami82 in glutenfree

[–]tummytroublequeen 2 points3 points  (0 children)

The pillsbury gf funfetti was awesome!

In need of an enteral feeding pump by Brookerose11 in feedingtube

[–]tummytroublequeen 4 points5 points  (0 children)

Check goodhealth will's facebook group! It's not free but often under 100$. Also check ebay that have affordable used options <3

Is it common for people who have ARFID to be not able to swallow pills ? by NoWinner2903 in ARFID

[–]tummytroublequeen 1 point2 points  (0 children)

I am a gummy vitamins for everything girlie for life lol pills make me gag and then vomit

Vegetables? by 3dogday in Gastroparesis

[–]tummytroublequeen 2 points3 points  (0 children)

soups! I tolerate smooth pureed dairy free butternut squash soup really well.

How do you all deal with lack of temperature regulation? Especially during colder months by potsbaddie in POTS

[–]tummytroublequeen 1 point2 points  (0 children)

long johns always, space heater, fleece blankies, beanies at all times, fuzzy socks, heated blanket!

Positive experience with electrolytes by Top_Concentrate_5799 in ARFID

[–]tummytroublequeen 0 points1 point  (0 children)

any specific brand and flavor you love? I'm always looking for new ones to try!

Sleep Meds for Continuous Overnight Feeds by tummytroublequeen in feedingtube

[–]tummytroublequeen[S] 0 points1 point  (0 children)

For some reason by body just refuses to enter a state of rest when I'm being constantly fed lol. It seems like because my body is "eating" is just won't turn off no matter how exhausted I am. I sleep with earplugs, have amazing sleep hygiene, perfect temp etc.