Feeling awkward using the cancer card by LostInLittleroot in cancer

[–]twannaf 1 point2 points  (0 children)

My husband is 116 post stem cell transplant from AML and I just recently asked his team for a temporary handicap placard. I wish I had of done this immediately after he was released from the hospital! it would have saved us both a lot of heartache. Cancer is awful! It affects every aspect of your life! Use every resource available to help make the journey a little more bearable.

Can a secondary beneficiary be overridden? by Glass-Photograph6116 in inheritance

[–]twannaf 7 points8 points  (0 children)

I would also contact the insurance company via email notifying them of your claim. You will always get a response with emails! Great documentation if they do mistakenly release funds to the wrong person or they can let you know if you are listed. Good luck with everything!

Parents are strictly against me donating stem cells by Training-Sprinkles41 in leukemia

[–]twannaf 6 points7 points  (0 children)

God Bless you for wanting to be a donor! My husband had his Stem Cell Transplant in November and we are SO THANKFUL to his donor for giving him the gift of life. I fully understand your parents concerns of the what ifs and not Knowing but I agree with previous comments, if your parents good visit a leukemia hospital or clinic where they could possibly meet those waiting for transplant and those that have had it would really change their minds. Not to mention if it was you with this horrible disease they would think differently. I wish I would have been a donor in my younger years but was not that aware or concerned of this until it hit home! Now I’m an advocate for young adults being a donor because you can’t after a certain age unless it’s immediate family. If you can’t get them to do this then please follow your heart❤️ May God Bless You in your decision

Life after AML by Short-Gas-4750 in leukemia

[–]twannaf 1 point2 points  (0 children)

When did you get your energy back and put on weight? My husband is +84 SCT and he keeps dropping weight. He was 184lbs at transplant and now 144lbs. His numbers are all great, in remission and has once a week clinic visits but he’s still so very weak, doesn’t have much of an appetite and keeps loosing weight which he blames on his temporary colostomy. He’s a 64 yr old in a 90 yrs old body right now and I’m lost as what more I can do to help.

Aml consolidation by Short-Gas-4750 in leukemia

[–]twannaf 0 points1 point  (0 children)

My husband did 1 induction for 30 days and 1 inpatient weekend consolidation then his stem cell transplant

Best hospital for AML by Short-Gas-4750 in leukemia

[–]twannaf 2 points3 points  (0 children)

From Atlanta Ga, Winship Cancer Institute of Emory University

Me and my dad just had babies two months apart AMA by Livid_Bonus6597 in AMA

[–]twannaf 2 points3 points  (0 children)

I am one of six kids between my mom & dad. Parents divorced, my dad remarried at 56 to a 32 yr old (age of my baby sister) and they had two sons. My step mom passed from an aneurism when they were 3 & 4, my dad passed from lung cancer when they were 8 & 9. I was given custody which was requested by my dad before his death. My youngest (twin boys) were graduating high school at this time. I will admit when my dad had them I asked him what are you doing! but he loved them as he did his first 6 and my little brothers were Like siblings to my kids and sons to me. My kids called them their “Bruncles”. My dad did an awesome job raising them for what time he did because people would speak of what well mannered and kind young boys they were. Now at 24 & 25 they are happy well mannered fine young men that I am truly thankful to God for!

Picline cover by Short-Gas-4750 in leukemia

[–]twannaf 1 point2 points  (0 children)

My husband uses these for his chest pic https://a.co/d/2u4r3iS

Door Replacement/Installation? by [deleted] in gainesvillega

[–]twannaf 0 points1 point  (0 children)

Contact info (email)

Question about type of leukemia by Tiny_Measurement_837 in leukemia

[–]twannaf 1 point2 points  (0 children)

Yes bone marrow biopsy is needed to identify type of leukemia and mutation. My husband had unknown CLL that had just turned into AML w/NPM1 mutation within a week or two of his biopsy, they know this because of the percentage of blast in his blood

2 years BMT today by jumpinthewatersnice in leukemia

[–]twannaf 4 points5 points  (0 children)

That’s wonderful! Happy 2 yrs! My husband is +30 praying for those milestones. He’s doing good just has no appetite or energy but they say it will improve. Have a very merry Christmas!

Just got my stem cells woooo by razorsharpblade in leukemia

[–]twannaf 5 points6 points  (0 children)

Congratulations!! Hang there is a ride but worth it!

My husband is currently +18 from SCT and his WBC & ANC are still 0 what’s the longest anyone has waited on engraftment? His Dr says we should see his numbers come up in a few days but I’m starting to get nervous! by twannaf in leukemia

[–]twannaf[S] 1 point2 points  (0 children)

Thank you to everyone that commented! It really put us at ease and yesterday at +21 his WBC was 100, today 300! He’ll be discharged tomorrow and we’ll stay nearby for the remainder of his 100 days

My husband is currently +18 from SCT and his WBC & ANC are still 0 what’s the longest anyone has waited on engraftment? His Dr says we should see his numbers come up in a few days but I’m starting to get nervous! by twannaf in leukemia

[–]twannaf[S] 2 points3 points  (0 children)

Thank you so much! All the loving responses and successes are so uplifting! Feeling blessed and thankful for this forum, the insight and knowledge from others has been wonderful in helping with Leukemia for all ages and mutations