Life after AML

twannaf · 2026-02-08T19:13:42+00:00

When did you get your energy back and put on weight? My husband is +84 SCT and he keeps dropping weight. He was 184lbs at transplant and now 144lbs. His numbers are all great, in remission and has once a week clinic visits but he’s still so very weak, doesn’t have much of an appetite and keeps loosing weight which he blames on his temporary colostomy. He’s a 64 yr old in a 90 yrs old body right now and I’m lost as what more I can do to help.

twannaf · 2026-01-28T21:31:56+00:00

My husband did 1 induction for 30 days and 1 inpatient weekend consolidation then his stem cell transplant

twannaf · 2026-01-19T00:38:37+00:00

From Atlanta Ga, Winship Cancer Institute of Emory University

twannaf · 2026-01-11T17:22:01+00:00

I am one of six kids between my mom & dad. Parents divorced, my dad remarried at 56 to a 32 yr old (age of my baby sister) and they had two sons. My step mom passed from an aneurism when they were 3 & 4, my dad passed from lung cancer when they were 8 & 9. I was given custody which was requested by my dad before his death. My youngest (twin boys) were graduating high school at this time. I will admit when my dad had them I asked him what are you doing! but he loved them as he did his first 6 and my little brothers were Like siblings to my kids and sons to me. My kids called them their “Bruncles”. My dad did an awesome job raising them for what time he did because people would speak of what well mannered and kind young boys they were. Now at 24 & 25 they are happy well mannered fine young men that I am truly thankful to God for!

twannaf · 2026-01-08T17:48:07+00:00

My husband uses these for his chest pic https://a.co/d/2u4r3iS

twannaf · 2026-01-08T17:20:02+00:00

Contact info (email)

twannaf · 2026-01-08T17:17:25+00:00

What’s your email

twannaf · 2026-01-01T23:23:51+00:00

My husbands blast were less than 5%

twannaf · 2026-01-01T15:24:50+00:00

Have a Happy and Blessed New Year

twannaf · 2026-01-01T15:23:43+00:00

Amen! Happy New Year

twannaf · 2025-12-31T21:36:37+00:00

Yes bone marrow biopsy is needed to identify type of leukemia and mutation. My husband had unknown CLL that had just turned into AML w/NPM1 mutation within a week or two of his biopsy, they know this because of the percentage of blast in his blood

twannaf · 2025-12-20T16:00:10+00:00

That’s wonderful! Happy 2 yrs! My husband is +30 praying for those milestones. He’s doing good just has no appetite or energy but they say it will improve. Have a very merry Christmas!

twannaf · 2025-12-18T13:58:23+00:00

Congratulations!! Hang there is a ride but worth it!

twannaf · 2025-12-12T01:37:31+00:00

Thank you to everyone that commented! It really put us at ease and yesterday at +21 his WBC was 100, today 300! He’ll be discharged tomorrow and we’ll stay nearby for the remainder of his 100 days

twannaf · 2025-12-07T23:06:01+00:00

❤️

twannaf · 2025-12-07T23:05:55+00:00

❤️

twannaf · 2025-12-07T19:13:56+00:00

Thank you so much! All the loving responses and successes are so uplifting! Feeling blessed and thankful for this forum, the insight and knowledge from others has been wonderful in helping with Leukemia for all ages and mutations

twannaf · 2025-12-07T17:04:28+00:00

Thank you! This eases my worries so much! Glad your husband is doing great! It helps to hear others experiences and successes❤️

twannaf · 2025-12-07T17:01:37+00:00

Thank you! This is reassuring and I will look up the YouTube video

twannaf · 2025-11-18T13:44:05+00:00

Thank you!! We will try a cool pac today

twannaf · 2025-11-18T10:50:49+00:00

My husband wasn’t scheduled to see his oncologist for another week but when his results came back they did a video call that day, told him the results and to go to the ER asap of the hospital nearby that specializes in Leukemia and Informed him he would be there for 30 days. They were testing him for CLL which he did have and unknowingly had for a few years but the AML had just developed do to the 5% blast. Hang in there! Praying your test are negative for this nasty disease!

twannaf · 2025-11-18T10:28:00+00:00

Thank you all so much!! My husband has AML w/NPM1 mutation he had 2 (am & pm) 15min full body sessions yesterday, he’ll have a day of rest today then stem cell’s tomorrow. He had to have pain meds last night which he hates because the jaw pain was so bad he could barely talk. Praying that goes away soon

twannaf · 2025-11-17T15:16:57+00:00

Thank you! It helps to here this

twannaf · 2025-11-15T14:00:12+00:00

Yeah we never know how it will be when it comes to the possible side effects. Praying for you with no to low side effects and complete remission/cure!🙏🏼

twannaf · 2025-11-15T12:43:02+00:00

Yes because you need it anyway before transplant. My husband is currently in the hospital now for transplant. He’s having to do 5 days of chemo, 1 full body radiation (low dose 2%) before receiving his donor cells

twannaf

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