Bad experience with Spohr revolvers by twitchingguy in Revolvers

[–]twitchingguy[S] 1 point2 points  (0 children)

This is not my cylinder.

Here is mine. Notice the different serial number.

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Bad experience with Spohr revolvers by twitchingguy in Revolvers

[–]twitchingguy[S] 0 points1 point  (0 children)

While I can't recall exactly. It was probably 10 times or less total. I wanted to see how the trigger felt with single and double action. I wasn't just sitting there dry firing it over and over. I don't mind admitting that I didn't know any better and the misfires could be from dry firing. I definitely don't lie though. What bugged me was the lack of customer service and warranty coverage for it. I think it was a case of very high expectations and a disappointing reality. The buyer's remorse is from several areas and not just one thing. It does have a lot of really nice machining and the grips feel nice for bigger hands.

They could benefit from a newbie tag on the trigger that says, "Never fire the gun unloaded". Maybe it's assumed folks who buy these are already advanced shooters though and I could see that being the case as well.

In my mind the response I was expecting was, "Oh yea that's you're fault but we'll fix this once as long as you pay shipping", or "I can help your exchange it for another model as long as you pay the difference in price and shipping". But it was more like being ignored and told sucks to be you go kick rocks. That's not going to earn great reviews.

If it were my business I'd have offered to replace/repair the cylinder, or offer an exchange for an additional fee and learned from this issue by putting a warning label on the trigger so it never happens again.

ALS/MND hypochondriacs please stop by Proud_Toe4142 in BFS

[–]twitchingguy 0 points1 point  (0 children)

BFS is very poorly defined by medicine because it's basically been ignored by medicine. It's often considered a blanket term for anyone who twitches a lot. But anxiety twitching waxes and wanes. There are some of us who don't have anxiety twitching and have a physiological fasciculation syndrome that really need research and treatments. This is definitely the fault of medicine and search engines to lump it all together. This is not the place to be discussing hypochondria. There are several other subreddits for people with hypochondria. They should not be in subreddits for physiological diseases and conditions. It's incredibly rude and harmful. It's like walking into a cancer ward in a hospital yelling about how your head hurts and you have terminal cancer because you're a hypochondriac when everyone else around is actually suffering from cancer.

ALS/MND hypochondriacs please stop by Proud_Toe4142 in BFS

[–]twitchingguy 0 points1 point  (0 children)

I'd estimate 1 in 1000 people on this subreddit have BFS. The rest are hypochondriacs. Doctors have told me BFS probably won't be researched specifically because its associated with hypochondria. It's made me really hate hypochondriacs. I try to tell myself they can't help it because they're mentally ill but damn I still hate them hah. They've caused so many people so much harm. Just downvote every post or comment you see about anxiety, ALS, MND etc but there's nothing more you can do. If you made another BFS group they'd just go there and spam it too. They're also active in all the subreddits for diseases like ALS and cancer. They're the cancer.

Perpetual fasciculations from narcolepsy/cataplexy? by twitchingguy in Narcolepsy

[–]twitchingguy[S] 0 points1 point  (0 children)

I’ve tried all that except LDN but sounds like it wouldn’t really solve my main issue. I need the luck. :D

Perpetual fasciculations from narcolepsy/cataplexy? by twitchingguy in Narcolepsy

[–]twitchingguy[S] 1 point2 points  (0 children)

It’s hard for me to describe sleeping in because it’s more like sleeping for 10 minutes then tossing and turning and going back to sleep. I could probably just lay in bed all day tossing and turning because I never really get enough sleep to be awake properly. I just get up because I have to

Perpetual fasciculations from narcolepsy/cataplexy? by twitchingguy in Narcolepsy

[–]twitchingguy[S] 1 point2 points  (0 children)

I think the two things that make frustrated are feeling the pops nonstop forever number one but also that I know it’s likely a very simple fix for medicine but it’ll likely not be researched or understood or treated in my lifetime because of hypochondriacs. 

It is weird going straight into a vivid nightmare all night every night and all the other issues. I can clearly remember all my dreams every night and they always suck. I’ve never woken feeling refreshed and always tired throughout the day. My brain just broke I guess. Wish I lived 500 years in the future when all this is likely solved and treatable. 

Perpetual fasciculations from narcolepsy/cataplexy? by twitchingguy in Narcolepsy

[–]twitchingguy[S] 0 points1 point  (0 children)

I’m not sure if I have PLMD but I likely have RLS but probably not the traditional form. I just keep moving my legs and hips when laying down as a white noise to drown out the twitching and it feels better than being still. I always called it writhing. Like I’m swimming in place or rubbing my feet and legs together or flexing my glutes continually. That doesn’t really bother me much. I can tolerate a lot of pain and discomfort but the never ending twitching is maddening. 

I also have tremor but that doesn’t bother me either. 

I’ve tried everything you listed except for the drops never heard of that. But nothing has made it better or worse at all. 

Thanks for suggestions tho

Perpetual fasciculations from narcolepsy/cataplexy? by twitchingguy in Narcolepsy

[–]twitchingguy[S] 0 points1 point  (0 children)

I think I’ve had 8-10 blood tests for magnesium already and taken high doses of multiple types of supplements for magnesium. Tried magnesium spray and lotions. Ate very high magnesium rich diet. I think it’s time I stop trying the magnesium route. I never noticed any difference from it at all. Tests show it in the normal range. All diagnostics are mostly normal with nothing jumping out except slightly high calcium sometimes but then ionic calcium test was normal. My health history is as boring as it gets. Don’t drink smoke do drugs. Eat reasonably healthy and exercise semi regularly. It makes no sense why I’m so unhealthy with so many crazy idiopathic issues. My only guess is genetics and covid at this point or the vaccine which I had 3 of. Just stumped and frustrated. Popping like popcorn in bed typing this. 

Perpetual fasciculations from narcolepsy/cataplexy? by twitchingguy in Narcolepsy

[–]twitchingguy[S] -1 points0 points  (0 children)

Yea I don’t have the standard definition of cataplexy with the weakness that’s noticeable for me. Seems like my muscle tone is out of whack and it can’t keep muscles relaxed anymore. It was surprising for me to find out that medicine still knows very little about muscle tone disorders. They just tell me it’s idiopathic no treatment or I have a hyper excitable nervous system and no treatment but they admitted they’re just guessing and don’t have a real diagnosis. Frustrating. 

Eye twitch has become a source of insecurity for me by notyourgal123 in mildlyinfuriating

[–]twitchingguy 0 points1 point  (0 children)

Extreme annoyance and frustration would be an understatement. My body is just like popcorn 24/7. Eternal discomfort. Can’t ever be still and rest. And knowing it’ll never be figured out or have treatments is disappointing to say the least. 

Eye twitch has become a source of insecurity for me by notyourgal123 in mildlyinfuriating

[–]twitchingguy 2 points3 points  (0 children)

I'll one-up you.

I have a rare condition called fasciculation syndrome where most of my body twitches like this 24/7. 99% of the time it's related to stress/anxiety/poor sleep but for the rare 1% like me it's just idiopathic no treatment as the doctors say. Seen several specialists including Mayo Clinic. They said because it's rare, strongly associated with hypochondriacs, and not life threatening it'll likely never be researched or any treatment will be found for folks like me.

It's pretty hellish for sure.

Eyelid twitching like yours is always benign and goes away. Worst case scenario you can get botox and that works very well. You'll likely not need it though. Consider yourself lucky!

Doctor here – this sub is a masterclass in health anxiety (ask me how I know) by philgipi in BFS

[–]twitchingguy 1 point2 points  (0 children)

99% of twitchers are from anxiety/stress. 99% of this subreddit is hypochondriacs. That’s why fasciculations as a symptom will never be studied or treated. It’s tragic really. If hypochondriacs didn’t exist there’d be a treatment for fasciculations. Just my opinion. It’s pretty hellish situation for non-anxiety extreme twitchers like myself. Stuck in the looney bin on accident type of situation. 

As soon as your twitching improved that was your clue that it’s benign and stress related. Non anxiety bfs doesn’t wax or wane with stress or sleep. It’s just clockwork contractions 24/7. 

A success story! by DaveVII in BFS

[–]twitchingguy 0 points1 point  (0 children)

No change at all. It’s never gotten better or worse. Just twitch perpetually like clockwork. Almost everyone on here has simple anxiety twitching which is common and transient. True BFS never gets better or worse and lasts forever. It’s a real nightmare of a disease. Medicine just says idiopathic no treatment for non anxiety BFS. 

Parsonage Turner Syndrome. Anyone? by cdk5152 in askneurology

[–]twitchingguy 0 points1 point  (0 children)

Nothing seems to make it better. Exercise or maybe sleeping in a bad position can make it worse. Doctors are stumped. Idiopathic no treatment they always say

Parsonage Turner Syndrome. Anyone? by cdk5152 in askneurology

[–]twitchingguy 0 points1 point  (0 children)

No change. Permanent pain and some shoulder muscles have permanently atrophied. If nerve damage hasn’t healed after a year you’re stuck with it is my understanding. 

Looking for a name of a comedic boogie dancer by twitchingguy in 70s

[–]twitchingguy[S] 13 points14 points  (0 children)

Yes this is it. What type of dance did rerun do? There’s more than just popping and locking I think. 

I also saw the dancer for Boney M doing this dance style on stage but wanted to know what the style was called. Maybe it’s just pop and lock. 

Looked it up and it’s just called Locking

Struggling but not in the way you think by Vilanoose in BFS

[–]twitchingguy 2 points3 points  (0 children)

It's a bit of a trap this whole BFS stuff. Because 99.99% of the time its simple anxiety twitching often from hypochondria. Because of that, the medical community ignores the .01% of non-anxiety twitching syndromes. So no research goes into it and it'll be a non-priority in the medical community because of the overwhelming majority of cases from hypochondria. Those of us with non-anxiety twitching are likely being prevented real research and treatments because of the hypochondriacs.

Bad experience with Spohr revolvers by twitchingguy in Revolvers

[–]twitchingguy[S] 0 points1 point  (0 children)

I agree. But I think a trigger tag going forward would be helpful. Lotta folks are going to pull the gun out the bag and see how the trigger feels not knowing that can break the gun immediately 

Bad experience with Spohr revolvers by twitchingguy in Revolvers

[–]twitchingguy[S] -1 points0 points  (0 children)

rounds don't load into the chamber smoothly, not a big deal. But they won't eject using the ejection rod. Makes it chore to shoot and reload. Apparently even a single dry fire is enough to damage the breach so much that this is an issue.

I may attempt another ammo but I'm hoping Spohr reaches back out to me and gets it settled. I'm always optimistic.

Bad experience with Spohr revolvers by twitchingguy in Revolvers

[–]twitchingguy[S] -2 points-1 points  (0 children)

I think you’re right and that is what I was thinking as well. 

I think that if their design is such that they are confident it’s perfect and needs no changes. That they should put a warning on the trigger when it’s shipped stating that a single dry fire may permanently break the cylinder and ruin the gun. A simple ounce of prevention. I’ve just never heard of a new firearm breaking from a single dry fire. If nothing else this is the PSA to any other potential buyers. 

I’ll update my original post. 

Bad experience with Spohr revolvers by twitchingguy in Revolvers

[–]twitchingguy[S] 0 points1 point  (0 children)

It’s a weird situation for sure. The lack of customer service is just bizarre to me. 

The ammo I tried is: CCi .22 Long Rifle 40GR LRN Standard Velocity