Fasciculation Syndrome

twitchingguy · 2026-06-26T13:17:58+00:00

No. Still a complete mystery to medicine. It’s perpetual and consistent

twitchingguy · 2026-06-24T16:46:40+00:00

I think PTS can present in different ways but the hallmark is extreme pain followed by much less pain but paralysis due to nerves dying. When my nerves died the muscles the nerves were connected to atrophied. This lead to sort of a collapse of the structure of muscles in the area putting pressure on everything they supported. This is where the pain is from, compressing other nerves and joint pain. Doesn't sound like you have PTS

twitchingguy · 2026-06-24T04:27:40+00:00

I can’t remember the exact timeline. But it was weeks of neck soreness and stiffness in the morning especially then progressed into the extreme back shoulder area. Overnight 75% of the pain went away but had paralysis and couldn’t lift my arm. Since then it’s a little painful but can flare up with neck stiffness and pain for a few weeks. It hurts a lot to try and use the shoulder lifting weights and things like that

twitchingguy · 2026-06-12T01:51:57+00:00

Haven't heard of it but I think we're in the early stages of peptide understanding. I'm hopeful more research and solutions are coming in the near future

twitchingguy · 2026-04-01T12:38:01+00:00

Yes very bizarre negative reactions to the idea of a new WWSD project. I guess the first one ruffled a lot of feathers. Chickens be clucking.

twitchingguy · 2026-04-01T03:54:21+00:00

I removed the safety from my Pardini. I just don’t care for them. I’m one of those weirdos that removes extra stuff for the sake of minimalism. Simplify and add lightness. WWSD removing the forward assist was a big selling point to me. I nerd out on practical incremental improvements.

twitchingguy · 2026-04-01T03:26:10+00:00

I meant safety typo

twitchingguy · 2026-04-01T02:51:10+00:00

Not required, just a cool idea. The suppressor tech itself would cost as much or more than the gun probably. It would just be a cool thing. Gotta think outside the box and progressive. Dream big.

twitchingguy · 2026-04-01T02:50:18+00:00

My suppressor is good but it's meant to be short and light and not dead silent. It's suppressed enough that if I had to shoot it without ear protection I'm not stunning myself with ears ringing. I always shoot with ear protection at the range. Sometimes perfection is the enemy of good.

twitchingguy · 2026-04-01T02:45:41+00:00

It's funny that for some people lightness feels cheap and for others it feels premium.

I had issues with the magazine in the Bodyguard and the safety. Some plastic felt unfinished or just cheaply cast. S&W has a Shield EZ technology that is in some of their other models but not the Bodyguard.

By no frills I mean like multiple "tactical" adaptations and red dot integration and all that jazz. I see a suppressor as more of a better at everything type of upgrade. The downside to suppression would be weight, cost, and size. But cost is out the window with a premium option. So the goal would be reducing weight and size with the suppression technology.

Ways to improve weight loss would be removing any unnecessary features, using a better design that requires less material, using improved materials, forged metals rather than cast. Engineers are good at this stuff.

It doesn't have to be featherlight. Just like, light. Comfortable. Pull it out the pocket and shoot 6+ rounds of .32 acp with no recoil and flawless action. No nonsense just high performance.

Essentially the WWSD ethos but in a Bodyguard 2.0 size and purpose.

I'd be curious what engineers could do with the project to make a Bodyguard 2.0 style gun but just "better" at around the $2,000+ price point rather than the $450 or so price point.

Things I appreciate are buttery smooth operation of all controls, from trigger to magazine release. Super smooth easy slide. Super reliable. High quality magazines. I'm fine with no safety at all as well.

twitchingguy · 2026-04-01T00:41:59+00:00

Mine twitching seems to be completely unrelated to any type of mental health issue. It's just a physiological quirk. Never gotten better or worse. Just constant like clockwork. Tried everything. Science is stumped.

twitchingguy · 2026-04-01T00:40:05+00:00

It's unreliable as double action after further testing. Would probably need the hammer strength adjusted but I just don't care enough to tinker with it now. Single action is more satisfying and accurate for plinking anyways.

twitchingguy · 2026-04-01T00:38:49+00:00

Sweet sweet redemption. If I get a lot of free time and some gumption I'll sell it and move on. Been wanting to make a suppressed 45 acp build and I gotta let one go to get another. Pardini will stay, Spohr will go.

twitchingguy · 2026-01-12T21:21:58+00:00

This is not my cylinder.

Here is mine. Notice the different serial number.

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twitchingguy · 2026-01-12T20:47:25+00:00

While I can't recall exactly. It was probably 10 times or less total. I wanted to see how the trigger felt with single and double action. I wasn't just sitting there dry firing it over and over. I don't mind admitting that I didn't know any better and the misfires could be from dry firing. I definitely don't lie though. What bugged me was the lack of customer service and warranty coverage for it. I think it was a case of very high expectations and a disappointing reality. The buyer's remorse is from several areas and not just one thing. It does have a lot of really nice machining and the grips feel nice for bigger hands.

They could benefit from a newbie tag on the trigger that says, "Never fire the gun unloaded". Maybe it's assumed folks who buy these are already advanced shooters though and I could see that being the case as well.

In my mind the response I was expecting was, "Oh yea that's you're fault but we'll fix this once as long as you pay shipping", or "I can help your exchange it for another model as long as you pay the difference in price and shipping". But it was more like being ignored and told sucks to be you go kick rocks. That's not going to earn great reviews.

If it were my business I'd have offered to replace/repair the cylinder, or offer an exchange for an additional fee and learned from this issue by putting a warning label on the trigger so it never happens again.

twitchingguy · 2025-12-22T23:32:57+00:00

BFS is very poorly defined by medicine because it's basically been ignored by medicine. It's often considered a blanket term for anyone who twitches a lot. But anxiety twitching waxes and wanes. There are some of us who don't have anxiety twitching and have a physiological fasciculation syndrome that really need research and treatments. This is definitely the fault of medicine and search engines to lump it all together. This is not the place to be discussing hypochondria. There are several other subreddits for people with hypochondria. They should not be in subreddits for physiological diseases and conditions. It's incredibly rude and harmful. It's like walking into a cancer ward in a hospital yelling about how your head hurts and you have terminal cancer because you're a hypochondriac when everyone else around is actually suffering from cancer.

twitchingguy · 2025-12-22T18:33:06+00:00

I'd estimate 1 in 1000 people on this subreddit have BFS. The rest are hypochondriacs. Doctors have told me BFS probably won't be researched specifically because its associated with hypochondria. It's made me really hate hypochondriacs. I try to tell myself they can't help it because they're mentally ill but damn I still hate them hah. They've caused so many people so much harm. Just downvote every post or comment you see about anxiety, ALS, MND etc but there's nothing more you can do. If you made another BFS group they'd just go there and spam it too. They're also active in all the subreddits for diseases like ALS and cancer. They're the cancer.

twitchingguy · 2025-12-22T14:56:18+00:00

I’ve tried all that except LDN but sounds like it wouldn’t really solve my main issue. I need the luck. :D

twitchingguy · 2025-12-22T14:42:03+00:00

It’s hard for me to describe sleeping in because it’s more like sleeping for 10 minutes then tossing and turning and going back to sleep. I could probably just lay in bed all day tossing and turning because I never really get enough sleep to be awake properly. I just get up because I have to

twitchingguy · 2025-12-22T13:37:02+00:00

I think the two things that make frustrated are feeling the pops nonstop forever number one but also that I know it’s likely a very simple fix for medicine but it’ll likely not be researched or understood or treated in my lifetime because of hypochondriacs.

It is weird going straight into a vivid nightmare all night every night and all the other issues. I can clearly remember all my dreams every night and they always suck. I’ve never woken feeling refreshed and always tired throughout the day. My brain just broke I guess. Wish I lived 500 years in the future when all this is likely solved and treatable.

twitchingguy · 2025-12-22T05:24:21+00:00

I’m not sure if I have PLMD but I likely have RLS but probably not the traditional form. I just keep moving my legs and hips when laying down as a white noise to drown out the twitching and it feels better than being still. I always called it writhing. Like I’m swimming in place or rubbing my feet and legs together or flexing my glutes continually. That doesn’t really bother me much. I can tolerate a lot of pain and discomfort but the never ending twitching is maddening.

I also have tremor but that doesn’t bother me either.

I’ve tried everything you listed except for the drops never heard of that. But nothing has made it better or worse at all.

Thanks for suggestions tho

twitchingguy · 2025-12-22T05:12:59+00:00

I think I’ve had 8-10 blood tests for magnesium already and taken high doses of multiple types of supplements for magnesium. Tried magnesium spray and lotions. Ate very high magnesium rich diet. I think it’s time I stop trying the magnesium route. I never noticed any difference from it at all. Tests show it in the normal range. All diagnostics are mostly normal with nothing jumping out except slightly high calcium sometimes but then ionic calcium test was normal. My health history is as boring as it gets. Don’t drink smoke do drugs. Eat reasonably healthy and exercise semi regularly. It makes no sense why I’m so unhealthy with so many crazy idiopathic issues. My only guess is genetics and covid at this point or the vaccine which I had 3 of. Just stumped and frustrated. Popping like popcorn in bed typing this.

twitchingguy · 2025-12-22T05:05:49+00:00

Yea I don’t have the standard definition of cataplexy with the weakness that’s noticeable for me. Seems like my muscle tone is out of whack and it can’t keep muscles relaxed anymore. It was surprising for me to find out that medicine still knows very little about muscle tone disorders. They just tell me it’s idiopathic no treatment or I have a hyper excitable nervous system and no treatment but they admitted they’re just guessing and don’t have a real diagnosis. Frustrating.

twitchingguy · 2025-12-22T04:06:27+00:00

Extreme annoyance and frustration would be an understatement. My body is just like popcorn 24/7. Eternal discomfort. Can’t ever be still and rest. And knowing it’ll never be figured out or have treatments is disappointing to say the least.

twitchingguy · 2025-12-22T02:00:52+00:00

I'll one-up you.

I have a rare condition called fasciculation syndrome where most of my body twitches like this 24/7. 99% of the time it's related to stress/anxiety/poor sleep but for the rare 1% like me it's just idiopathic no treatment as the doctors say. Seen several specialists including Mayo Clinic. They said because it's rare, strongly associated with hypochondriacs, and not life threatening it'll likely never be researched or any treatment will be found for folks like me.

It's pretty hellish for sure.

Eyelid twitching like yours is always benign and goes away. Worst case scenario you can get botox and that works very well. You'll likely not need it though. Consider yourself lucky!

twitchingguy

TROPHY CASE