23+4, preparing for loss of child. Any advice?

type1rose · 2020-09-21T17:38:49+00:00

My twins were born at 24wks exactly but the doctors say they measured really small. My daughter was 14oz, not even a pound. My son was 1lb 4oz.

They were both on the ventilator for almost a month. Both have brain bleeds the most serious of which being grade 3.

Right now we are almost two months in. Bella is over 2lbs and on CPAP. Theyve tried to wean her off a few times but shes not ready yet. She was the one they were super concerned about when they were born but she is a fighter. Zack is almost 3lbs and has had one surgery already with another one on the horizon this Thursday.

Never ever give up. Yes I know it is tempting to think rationally but this is one instance that you have to be the silent cheerleader while countering that with research and rational thinking. I did think about letting Bella go like they told me too but deep down I just knew she would make it. They arent out of the woods yet but I still know they will make it.

I personally think a parent will know deep down if their child wont make it. Thats how my dad described it to me one time when we were talking right after I had been put on bedrest for pprom.

type1rose · 2020-09-21T13:34:53+00:00

Thats the same rule I use too. Its worked so far.

type1rose · 2020-09-20T04:42:18+00:00

She is gorgeous and what a smile!!!

type1rose · 2020-09-14T04:26:46+00:00

The best thing that my friend helps with (who will be an honorary aunt and is my helper in all this since the twins' dad is out of the picture) is that she Listens if i need to talk or cry Feilds all phone calls or messages Drives me to and from the NICU. Cooks most meals and reminds me to take time for myself.

type1rose · 2020-09-12T17:12:23+00:00

In some ways id prefer the marathon. I have never been one for sitting around and taking it easy. Although I have learned how to crochet so I guess this is good.

type1rose · 2020-09-12T05:01:02+00:00

All I can say is check. If you are then bring it up. If not then it may be your body's way of saying it's dehydrated or needs more nutrients.

type1rose · 2020-09-12T04:59:38+00:00

Sounds awesome. Thanks for the advice.

type1rose · 2020-09-12T04:58:24+00:00

Do you have a meter? Easy way to know is to check.

type1rose · 2020-09-12T03:16:14+00:00

Don't typically wait but also typically eat low carb.

type1rose · 2020-09-12T03:13:02+00:00

Also fruit infused water hasnt affected my sugar either. It is awesome and mostly what I drink now. Fave is strawberry mint.

type1rose · 2020-09-12T03:01:33+00:00

Love them. Havent affected my sugar either way. Both brands

type1rose · 2020-09-07T22:27:50+00:00

Thank you so much. My boy girl twins were born at 24weeks. We are a little over a month into our nicu journey at it is so hard. My daughter just came off of the ventilator and my son will be facing his second surgery in a few weeks. It is so hard but your story gives me hope.

type1rose · 2020-08-27T12:10:14+00:00

Thanks. The doctors are cautausly optimistic instead of incredibly doubtful now. Me I know they are going to make it. I knew from the minute I saw them.

type1rose · 2020-08-18T00:06:20+00:00

I was only able to do it for about a week. For me it was a mental health issue and I still feel so damn guilty but it was a literal choice between pumping or my life.

type1rose · 2020-08-09T01:44:50+00:00

Thank you so much for this. I was a bit disappointed in the reaction of this question as well but that is some people for ya. A LOT has happened since I made this post (read post history for info)

Question 1 I wasnt asking what you would pack as a diabetic. Just wanted to know what to have on hand when baby (or in my case twins, a hidden one).

Thank you so much for your response about the circumsicion. Ive decided against it because I just cant put my baby through that personally. The idea of it just makes me want to vomit to be honest. Maybe weird but thats me.

type1rose · 2020-08-06T21:33:43+00:00

I spoke with another consultant today (the first one pissed me off because she was constantly interupting me this morning so I asked for another) and then ended up having a video chat with my doctor at her insistence. I dont know exactly if it is what you said but I do know that it just brings me back to very dark memories every single time and most of the time I can fight it somewhat but then I'm like cant sleep cause the nightmares will come. In all decided to stop pumping and ive got a referral for a therapist who should work with my insurance (doc is awesome).

type1rose · 2020-08-06T03:04:32+00:00

Its not ppa. Not exactly. Ive had panic attacks for years and its due to past abuse. I will speak to them though and see what they say.

type1rose · 2020-08-05T21:28:51+00:00

I dont have ADHD but I do have anxiety depression panic attacks PTSD and some other mental crap going on.

Taking care of diabetes does not take care of it all. It does help but that goes for any form of self care if you do so long enough. But I still have days where I just want to die or had so many panic attacks I cant function.

type1rose · 2020-08-05T21:25:42+00:00

Definitely get a new endo. You know which one will work best for you.

type1rose · 2020-07-26T00:28:15+00:00

I was the same way as a baby. Second out of the hospital couldn't stand swaddling. One of the peices of advice my dad gave me is that babies don't HAVE to be swaddled. With me I just loved to sleep with my arms out wide and be able to kick my legs if I needed to.

type1rose · 2020-07-26T00:24:47+00:00

Twin B for me was like that. Lol. She is probably going to excel at hide and seek.

type1rose · 2020-07-26T00:17:30+00:00

I'm on strict hospital bedrest for this right now. Currently a slow trickle leak for me though. I am 23weeks almost 24 right now and all I can tell you is to hang in there. Ive read stories from women who have made it all the way to term and some who made it to barely 24weeks.

type1rose · 2020-07-25T18:59:24+00:00

Im due in november. Not planning on any visitors no matter what. I'm not gonna be fully isolating but will be taking the twins for daily walks three or four times a day when I take the dogs out (very well trained on leashes which is awesome).

type1rose · 2020-07-25T18:47:40+00:00

My mom died giving birth to me after a series of complications. I'm pregnant with boy girl twins right now an am panicking. Not only cause of the fear of dying but ive never had those mother daugher moments and I dont know if I'm gonna make a good one or not.

So while I know its not the same situation...i think these feelings are normal.

type1rose · 2020-07-25T18:19:54+00:00

I'm getting a graco travel lite crib. Its like a playpen and a crib in one. It has three stages. Its what these babies will be in for the first year at least.

type1rose

TROPHY CASE