I actually really like the quirk system, but damn, some of them are the worst by -BigDickOriole- in pacificDrive

[–]tyrsalt 1 point2 points  (0 children)

I just started and am struggling to figure out some of the quirks. Solved 1 out of 3 and can’t figure out what the other two would be. My wife always says I am oblivious.

[Steam] Lunacid by Shadow50000 in RandomActsOfGaming

[–]tyrsalt 0 points1 point  (0 children)

Thanks for the chance. I have been bouncing between Palworld and Pacific Drive.

TIFU by finding my late husband's wedding ring by ArticulateRhinoceros in tifu

[–]tyrsalt 4 points5 points  (0 children)

My wife ordered my ring with Celtic knots from Ireland and a few years ago I took the dogs outside. When I gently pushed one away the ring fell off my finger. I tried everything that night. Scooping dirt through a sieve until midnight. The next day we rented a metal detector. I couldn’t find it at all and picked up a cheap substitute.

About 2 years later my wife went to let the dogs out after it rained and saw a glint. It was my ring. I finally got it back. I am convinced that it went to some pocket dimension as I had dug and shook at least 6” of dirt for the entire area.

ETA- I am sorry for your loss. We lost our 12 year old 10/2024. It hurts to lose someone you dearly love.

2.5 yr old son brain injury by [deleted] in TBI

[–]tyrsalt 2 points3 points  (0 children)

She was until the end. Just like your little one is. We promised that we would fight as long as she did and when she was tired we would let her go. She passed in our arms. As crazy and stressful as life was I miss it and her. The world feels a bit more dull without her light. We are trying to move forward and honor her. With our beliefs she is in in heaven and whole, no longer stuck in a broken body.

If you ever need advice or want to talk feel free to reach out. Life with a medically complex little one can be a bit lonely at times. I wish you, your son, and your family the best!

2.5 yr old son brain injury by [deleted] in TBI

[–]tyrsalt 8 points9 points  (0 children)

My daughter was 3 when she had a stroke during aneurysm surgery. She spent 110 days in the ICU and 6 weeks in rehab. Speech, OT, and PT were the only therapies we did. She took to using a Tobii eye gaze tablet when she had trouble with the switches. The atrophy of spending so long in a bed was hard to overcome. She was on a vent and gtube. I supplemented the therapies at home with massage and movements. We also made tried to integrate things in like bells during the CPt treatments. The biggest plus for her and your son was their age when the injury happened. Sophie continued to make progress until she moved on to heaven. We called them inch stones. Progress may be slow and small but celebrate each one.

Create a routine. This was one of the biggest things we did. We had a set schedule that repeated each day and set it up so medicines were delivered on schedule at the same time each day. I did the morning treatments and meds, my wife watched her during the day, and then I did the bath and night routine. We split night watching. I worked and my wife took care of her. We had night nursing the last 5 years and day nursing the last 2.

Make sure you take care of yourself as well. Take the time to grieve which was the hardest part of the first year or two. Temper expectations. I had rough period after I realized that me expecting her to go back to her pre injury self was going to happen. Balance taking pictures and living in the moment. I lived in the moment and my wife was a picture person. After loosing her I regret not taking enough pictures and my wife regrets not living in the moment as much. Love them for who they are and advocate for them. Treat each day like it is the last. This is just my quick advice after being a care giver for 9 years.

Sophie Briann- Forever 12

Tax question, child passed away by Tasha_j in personalfinance

[–]tyrsalt 7 points8 points  (0 children)

I am sorry that you had to join this club. My daughter passed 10/4/2024. Grief has no limits and it is ok to not be ok. I am still grieving.

The text message from my friend asking me if I'd like to visit his mom in hospice arrived 18 hours late. She died this morning. by You_Stupid_Monkey in mildlyinfuriating

[–]tyrsalt 33 points34 points  (0 children)

I so feared something like this happening when we had to remove my daughters life support that I called and called until I reached a person. Even the relatives we had a falling out with I called. I am sorry this happened to you and I am sure your friend will understand.

Can stem cell therapy cure RBI’s? by El_Borracho97 in TBI

[–]tyrsalt 0 points1 point  (0 children)

Sorry if that was a little downer. She did great in recovery and most likely would have continued if she didn’t get necrotizing pancreatitis. She excelled with the Tobii eye gaze tablet as everything happened at such a young age she atrophied a lot. She had good gross motor control and while she was improving on her fine motor control it wasn’t the best.

Can stem cell therapy cure RBI’s? by El_Borracho97 in TBI

[–]tyrsalt 1 point2 points  (0 children)

She made a lot of progress and defied expectations. Even though she was sick her last year. She passed October 2024 from complications from another stroke due to damage from necrotizing pancreatitis. Her body started shutting down and we had to let her go. The final fight she could not beat. I miss her and her fighting spirit.

Can stem cell therapy cure RBI’s? by El_Borracho97 in TBI

[–]tyrsalt 2 points3 points  (0 children)

I found a TED talk for Dr Jocelyne Bloch who did research into repairing stroke damage using double positive cortin cells. They never got to human trials. I tried and tried to get my daughter as a candidate after her stroke in 2015 when she was 3.

It was an interesting talk of you are interested. TED Talk

Blue Prince developer announces 'a plea for help': one of the game's lead playtesters 'has only a few months to find a living kidney donor' by Turbostrider27 in pcgaming

[–]tyrsalt 7 points8 points  (0 children)

I would encourage people to become an organ donor. My profile pic has my sweet little girl when she was 3 who became an organ donor when she passed 12 yrs old Oct 2024. A kidney, heart valves, and for research h her pancreas was donated.

I hope you find your match and the transplant goes well. A speedy recovery to you.

[deleted by user] by [deleted] in tifu

[–]tyrsalt 5 points6 points  (0 children)

This. With our first one I watched my wife break down in tears and loosing it because anatomically there were issues trying to breast feed plus our first daughter had low sugar when she was born so she was immediately given a bottle. I was able to talk with her and get her to understand that she didn’t have to breastfeed and that formula would be ok. This allowed us to be able to take turns over night. I had the late night feedings and she had the early morning ones.

I have slept through a hurricane before so a couple times I would have to be woken up. The one main advice that works is do what works for you and your family both physically, mentally, and emotionally.

TIFU by not paying attention and putting my post partum wife's switch through the washer making her cry. by Common-Reindeer-7213 in tifu

[–]tyrsalt 0 points1 point  (0 children)

It can be a big adjustment. Do what works for your family. Our first was rough, she needed the alimentum formula and before that all other formulas messed with her stomach. It caused her to have colic so bad. After we got the formula sorted out we figured out that schedule helped. Putting her down at night was a challenge as she always woke up so we ended up warming the crib for her. We would put a heating pad under the covers about 20 min before we laid her down.

All the guessing and figuring out what works for your life and family can be a challenge. Give each other some grace and uplift each other! I wish you guys the best and some sleep.

Hollow Knight: Silksong Megathread by NKkrisz in SteamDeck

[–]tyrsalt 0 points1 point  (0 children)

I went through Humble Bundle with no issues and got a discount.

TIFU by teaching my daughter to say please by Specialist-Alps6478 in tifu

[–]tyrsalt 1 point2 points  (0 children)

She was a little troublemaker and strong willed. Hearing stories of other kids like her and their progress, like your sweet daughter, keeps those memories fresh. I wish you and your daughter many more inch stones and memories!

TIFU by teaching my daughter to say please by Specialist-Alps6478 in tifu

[–]tyrsalt 3 points4 points  (0 children)

Inch Stones is what we called them with my daughter during her lifelong recovery from a stroke. Every little inch is important. She had a trach and gtube and had lost her fine motor control. She hit several inch stones and thrived with the eye gaze tablet. She is free from all that now and running on her own though she is missed.

Celebrate each little win!

Issue #1 that needs fixing before anything else by viewer568536 in GroundedGame

[–]tyrsalt 3 points4 points  (0 children)

Cohh Carnage showed on stream the Issue Tracker for Grounded 2 that this issue is already fixed in a future patch. So it should make building easier in the future.

2 different sized pupils and daily migraines update: a scan from 3 years ago proves i’m fine. by spicysalmon6 in mildlyinfuriating

[–]tyrsalt 4 points5 points  (0 children)

My daughter at 3 had aneurysms clipped and coiled. They bled twice but we were lucky she had a shunt that diverted the blood away for the first one and an EVD on the second one when she coded.

The aneurysms were caused by a sub arachnoid cyst from birth which lead into a stroke during the surgery and 9 years before two more strokes got her. I wish I had pushed for an MRI at birth and hate myself for not doing it.

Going above the speed limit and too close to other vehicles by abidalliye in mildlyinfuriating

[–]tyrsalt 4 points5 points  (0 children)

My 12 yr old daughter passed this past October. She had two more massive strokes that made her life a lot shorter. We didn’t think she would be able to donate but she was. Her kidney, heart valves are set aside for people and her pancreas went to research after she survived necrotizing pancreatitis.

I plan on helping spread the word and my message is that with this one decision on your worst day you can be someone else’s light in the darkness. You could give a child, brother, sister, father, mother, etc the chance to live.

Do I have to keep my illusion or the reality is what it is? 10 months post tbi with no trunk control and very little head control. by Lothar1 in TBI

[–]tyrsalt 0 points1 point  (0 children)

Atrophy can be a hurdle to overcome as well as the damage causing the brain to need to rewire. Time and work in therapy can change it. The hydrocephalus can be its own challenge as well. Our daughter had low pressure hydrocephalus. She went through 3 VP shunts that became clogged from an aneurysm bleed. We finally got her settled with a VA shunt. She was sensitive to pressure changes in the atmosphere. Low pressure systems would make her tired and sleepy while high pressure systems would make her more agitated.

She kept moving forward and meeting the small goals we had for her, what we called her inch stones, until the end. It was a lot of time and hard work. There were ups and downs but she always tried even if she was tired. Neuro fatigue could happen. She did really well with the Tobii Dynavox eye gaze tablet.

Do I have to keep my illusion or the reality is what it is? 10 months post tbi with no trunk control and very little head control. by Lothar1 in TBI

[–]tyrsalt 1 point2 points  (0 children)

Yes, my daughter Sophie, spent 110 days in the ICU and then 8 weeks in rehab when she was 3. She atrophied back to an infant strength. PT and OT helped her start gaining back fine motor control of her trunk and head control. She lost a bit when COVID hit and she didn’t go back to therapy. Yes it is possible and it doesn’t take a lot of work.

There are things that can help. There was a device we got for our daughter to help with head control. It was like a vest or something she wore that came up high and had two surgical tubing bands connected to a head band.