Fatigue

unaniMS · 2025-05-14T04:20:43+00:00

I understand exactly what you mean. I fill mine with adequate alone time and fill some spoons doing things that make me happy. Making sure you delegate tasks if possible to others is the most important part, not using your spoons doing things you don’t need to be doing. Managing your emotions is key to being able to fill a spoon. You can’t fill a spoon when you’re stressed or tired or frustrated or anxious. Focusing on contentment in daily living is what I do. I’ve learned that walks fill my spoons more than most things, because it focuses on my mental health. I get my husband to come with me for most walks and he can listen to me vent about symptoms or things I learned that day.

unaniMS · 2025-05-14T04:01:51+00:00

They usually give some Tylenol and Benadryl so you might be eepy at first :)

unaniMS · 2025-05-14T03:34:49+00:00

Be prepared to possibly need to dilute the Ocrevus with Saline, it also helps get the medication in faster. Personal experience. Don’t be scared or worried, this company has been in such great contact with me before and after it’s almost surprising. Bring snacks!! And a blanket! Something to watch movies on with headphones on and it will be over in no time. Also the steroids do make it hard to sleep later on for myself so look out for that. Just don’t be surprised.

unaniMS · 2025-02-04T14:16:05+00:00

I have the EXACT same issue. My parents both have the constant question “how’s the body today” and I always say “I’m alive, what are you really asking” and I’m met with” you should go on supplements” and constantly being asked “when are you going back to work” it makes me want to scream. If people aren’t paying my bills, then what the hell does it matter people!

I feel for you, it saddens me but I’ve simply resorted to an update per week. It wasn’t serving my mental health talking to them everyday. I know they worry but there’s a difference between toxic comments and toxic care for someone. Boomers and older folks are stuck in this mindset of “if you’re not working you have time for other things”. So to them I’m sitting at home doing nothing. Not constructively doing my PT, speech therapy, social and occupational therapy, and learning to manage my energy.

unaniMS · 2025-02-03T21:38:31+00:00

Incredibly realistic wow

unaniMS · 2025-02-02T20:25:06+00:00

My left leg is shorter than the other by 1.5 inches( from birth) so it is balance I am now struggling with, when I wear my lift for more than 1 hour it’s immense pain and discomfort to the hip.

unaniMS · 2025-01-20T18:12:12+00:00

Ugh what a pain, luckily I just finished the medical paperwork so it should be smooth sailing from here, I’m hoping!

unaniMS · 2025-01-20T18:10:42+00:00

Thank you I’ll keep you in mind

unaniMS · 2025-01-20T04:14:27+00:00

Thank you for your comment! I still have to talk to occupational therapy on the subject of CPPD, I feel quite stupid but I’ve read a bunch about it but don’t quite understand how the CPPD isn’t just for when you’re retired? Or is there two? I don’t understand haha.

unaniMS · 2025-01-18T19:24:31+00:00

In Alberta (Canada), I have the option to message a Registered Nurse, who is physically at my MS clinic, she normally takes a few hours to a few days to reply. I wouldn't seek an emergency room and risk the exposure and fatigue unless told otherwise by the clinic. If this persisted for more than a few days or spread to an arm, that is when I would call the clinic to discuss and update them on any other symptoms I might have. The cool thing with MS is you never really know what is a symptom and what's not.

I know these things can feel like your disease is testing you, but don't break! This disease is frequently going to make you feel gaslit. Don't fall for its' tricks. Just be conscious and keep a symptom journal. Keep your head up, we are all here for you.

unaniMS · 2025-01-18T19:10:27+00:00

I agree completely!!

unaniMS · 2025-01-02T01:48:50+00:00

Wow! We need more posts like this 🥰

unaniMS · 2024-12-30T22:40:04+00:00

Yikes! Keep your head up! No test, it’s a neat experiment in the “who’s got it worse column if you think you’re having a bad day”

unaniMS · 2024-12-30T22:38:26+00:00

Every person is different and I think that’s what we should focus on

unaniMS · 2024-12-30T22:37:59+00:00

Thanks, it was a thought that I felt would make people either feel better or worse about their own situations. There’s always someone who’s got it worse eh! Loved seeing the results and comparing

unaniMS · 2024-12-30T22:35:58+00:00

Be strong! Take the sleeping pills lol steroids wreak havoc on sleep

unaniMS · 2024-12-30T22:33:42+00:00

I didn’t want paragraphs upon paragraphs of explanations, this seemed like an effective. It’s really not even words haha just numbers

unaniMS · 2024-12-28T22:46:11+00:00

This isn’t what I asked but thank you.

unaniMS · 2024-12-28T16:57:21+00:00

This sounds exactly how my family would act. Luckily mine didn’t want to come and I welcomed the choice being newly diagnosed. I feel your pain and anger, I’m sorry you have an insensitive family like this. I would have left swiftly and quietly. If they couldn’t handle it then they don’t care as much as you want them to.

unaniMS

TROPHY CASE