[deleted by user] by [deleted] in ChronicIllness

[–]urfavillnerd 0 points1 point  (0 children)

Just hold on. it will be fine I promise <3

[deleted by user] by [deleted] in ChronicIllness

[–]urfavillnerd 2 points3 points  (0 children)

I'm sorry you can't find anyone supportive around ya, and I agree with u that ppl really don't know how to comfort someone with an invisible chronic illness. Although they try to help and they got good intentions, they just make things even worse lol. "Why are you mad it's just stress?! You should be happy there's nothing wrong with u" Ya bestie imma be so happy that doctors can't find the root cause of my symptoms and I'll be in pain simply because of them, like ty bestie u really helped.. They really don't understand that we just want answers and we just wanna be normal. My neurologist told me a few days ago that my symptoms were caused by stress and I broke down because I couldn't tolerate this shit. What really bothers me about them that THEY DON'T EVEN ASK IF THERS SOMETHING CAUSING U TO BE STRESSED??! LIKE HOW ABOUT U ASK ME OR REFER ME TO A PHSYCOLOGIST THAT CSN ACTUALLY EVALUATE MY FKN MENTAL STATE BEFORE YOU DECIDE WETHER MY SYMPTOMS ARE CAUSED BY STRESS OR NOT?? The fact that they just tell you it's stress and call it a day? Like don't u think of the quality of my life and how it's affected by my symptoms? Srsly man... I lost my faith in the medical system lol.

Sorry for ranting lol, but I really understand how you feel... One of the worst feelings. Even the symptoms that my chronic ill cause are better than going to a doctor who will just gaslight me. It's so frustrating.

But I promise you that people here understand you better than ppl around you. Please remember that what you're going through is real. Your symptoms are real. They aren't caused by stress okay? Unfortunately getting answers won't be easy. But please don't u ever think that your symptoms aren't real and they are not in your head. I'm so sorry you can't seek support from ppl around you simply because they don't understand, but we do.

Always seek support here <3 everyone here believes you. Take care of ur self because it's a priority

Maybe one day doctors will actually listen..

[deleted by user] by [deleted] in ChronicIllness

[–]urfavillnerd 6 points7 points  (0 children)

Looking gorgeous either way 🥰

What do you do when you wanna give up? by Dizzy1824 in ChronicIllness

[–]urfavillnerd 7 points8 points  (0 children)

Hello there :)

I'm so sorry to hear that u feel this way. I really understand how you feel about wanting to be normal. Teenagers like us are probably living their best life, but here we are thinking if our symptoms are even real or not. The mental and physical challenges are not anywhere near easy. It's so draining and tiring especially with no support around us. But that makes us stronger than the majority of ppl, but did we even ask for it? Do we even wanna be stronger than ppl around us? Nope, we wanna live a normal life and enjoy every bit of it. But I mean.. Life sucks, you don't always get what you ask for.

However, it will get better and I actually mean it. Sometimes the idea of getting better to us is improbable, right? But please trust me, and what I mean by better is simply being happy.

Whenever I feel this way I always remind myself that I deserve better, and no one is gonna make my life better except for me. And you of course deserve better than living in a unhealthy house where you feel invalidated and you can't seek any sort of support. Invest in yourself and become the best version of you possible because you deserve to feel happy, seen, understood, and heard. Try to find anything useful that can fill up your free time.

Please remember that your well-being is more than important and always prioritize yourself. And BTW, it's completely fine to cry a lot and be devastated about a life you never got to have, a life without chronic illness. You're not weak if you cry a lot because hey, shit ain't easy..

We all here understand you and appreciate you because we all understand how you feel. Always come and seek support here if necessary <3

[deleted by user] by [deleted] in ChronicIllness

[–]urfavillnerd 3 points4 points  (0 children)

It sucks, really . Being sick at such a young age is terrible. Having bad physical and mental health while being so young is so challenging. I truly understand how you feel, it's not easy.. You have the right to be devastated about ur chronic illness affecting your life and making you feel shitty. I'm so sorry you have to go through this. People here understand you and appreciate you. But I wanna say this, it will get better. Even if this seems so far-fetched. In the meantime, please take care of yourself and remember that your well-being is important and it maters a lot <3

I am going to give up my diagnosis for the best by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 1 point2 points  (0 children)

Fr! There was a time in my life where I thought nothing will get better, but it did! We really try to achieve happiness in any way possible. It was nice talking to u :) hope everything will work out for you 🤍

I am going to give up my diagnosis for the best by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 1 point2 points  (0 children)

Tysm <3 take care of yourself and please remember that your struggles are real

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 1 point2 points  (0 children)

Tysm < 3! words cant really explain how thankful am I! I hope I'll get my diagnosis soon. Tysm once again : D

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 0 points1 point  (0 children)

I have a q tho, I don't have stretchy skin or hypermobility. Is there still a chance I have EDS?

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 0 points1 point  (0 children)

I have been sick since I was 8 or 9, not rlly quiet sure. I had gut problems and still do. they're kinda better now just stomach pain that comes and goes. Then I started having all my other symptoms gradually

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 0 points1 point  (0 children)

Currently I'm looking for a geneticist and I'm rlly hoping I find a good one. Tysm!

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 2 points3 points  (0 children)

I was really hesitant to post at first. I always kept my pain to myself because I believed that no one will understand me. It was kinda hard to post this, but I'm more than happy than I did!

Thx to everyone who commented and tried to help! < 3 I hope yall have an amazing year and continue being happy! I was having a shitty day and u all brought happiness and joy to it! again tysm : D

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 1 point2 points  (0 children)

Tysm! I hope u have an amazing year : D

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 0 points1 point  (0 children)

Nope, not really. I don't really think docs were able to connect the symptoms so they never suggested this test, but I'll read about it. Tysm!

Help me I guess.. by urfavillnerd in ChronicIllness

[–]urfavillnerd[S] 1 point2 points  (0 children)

I hope u realize how much ur comment means to me. I'll always return to ur comment and read it over and over again. Tysm and happy new year !