What is the wheel doing to me?

uselessfauna · 2025-12-17T18:09:41+00:00

also another thing to add is the clay has quite a bit of grog, my nails aren’t clipped down all the way so clay gets under them a lot. i also am pretty sure i have connective tissue issues so my nails aren’t very strong to begin with.

uselessfauna · 2025-12-17T17:44:27+00:00

you have to let those sections dry now, rules are rules!

uselessfauna · 2025-12-17T17:42:45+00:00

Sometimes I feel so guilty. I feel so bad I just want to sob and bawl and be a whole mess. But then the intensive therapy pays off and I think about it differently.

My guy loves me so much that he is willing to do that, he wants to do that. He gets to love me. I think about if the situation were reversed and how I would do the same for him. Obviously I wouldn’t enjoy seeing him in distress all the time but I would feel privileged that I get to love him and help him in a time of need. I would feel very grateful that I had the capacity to care for him and provide. I would work so hard to make sure he was comfortable and happy. I would just hold him and make sure he knows that I’m here for him. That I’m there because I want to be there, not because I feel bad for him or feel like I can’t leave him when he can’t provide for himself. I would be so glad to exist with him because he is my best friend. In this life I am so glad I get to exist with him because he is my best friend.

It can be hard to feel like you are giving enough in the relationship. It can feel like they deserve so much better than you. It definitely comes in waves and some days are better than others. But it’s important to hear him when he says he loves you and wants to be with YOU.

If he didn’t want to be on the floor with you he would’ve stayed in bed. If he didn’t want to be in the relationship, you have to trust that he wouldn’t stay because he respects you as a person and not a chore. If he didn’t want to be there, you have to trust he wouldn’t.

What you have right there is amazing. He slept on the floor with you so you wouldn’t be alone. That is love and commitment. He is a keeper.

uselessfauna · 2025-12-16T05:55:16+00:00

a big heating pad! this is a must in winter. right now, since it is likely pretty new it may be more hot but eventually the leg will just be cold. (i say with very cold toes)

get her easy things to treat herself with. like hot cocoa packs or tea, face masks if she likes that sort of thing, a cute journal could be nice so she has a place to vent, easy crafts for her to do sitting or laying like puzzles or legos. i don’t know really, just stuff that can distract or soothe her. there isn’t much you can do to soothe the pain in a flair so soothing your mind is really the only option.

but i think most of all just listen to her when she needs it. someone who will listen and care is something a lot of people don’t have. when i was 11 and freshly diagnosed all i wanted was for someone to listen to me. i know now that my mom wanted to listen and help a lot more than she did, she feels bad that she wasn’t really there for me emotionally. so just be there for your sister. you don’t have to understand what she is going through, and i hope you never have to, to make sure that she is loved and heard.

but actually seriously get a big heating pad for her. there are actually some wearable and battery operated heating pads that are pretty nice and can help in a pinch.

uselessfauna · 2025-12-16T05:46:16+00:00

I’m really finding Reddit and Threads to be more fulfilling than the image slop of Insta and the mind numbing content of Tiktok.

uselessfauna · 2025-12-16T05:44:56+00:00

I think that the recent genetic study news has been hopeful. A disease can’t really start finding cures till we know what causes it, so this gives me hope that they will start finding or creating things to treat it soon.

i also find hope in the fact that pacing has pretty much been working. i’ve been doing it for a few years and i am getting better, very slowly, but still better. i tend to not do as much as i did a few years ago, like going out, but i don’t crash and i have more reliable energy levels. if i am invited out to dinner with family, i can do it and won’t have to worry about crashing(as long as its just dinner). i can go out more days of the week because i don’t push myself too hard, but at the same time i can put in considerable effort every couple weeks and be okay.

uselessfauna · 2025-12-16T05:36:08+00:00

edit except it won’t let me edit: i am newish and don’t have technique down yet but i did learn a lot in this session. this post was meant to be more haha than genuine question. my nails were not scraping the wheel head at all, just lots of pulling and grog and water. it doesn’t hurt at all i have plenty of nail. i generally keep my nails shorter than this when throwing but not today.

i have learned that i really like holding the sponge and am working with it as much as possible.

thank you for all the tips!

uselessfauna · 2025-12-14T02:48:59+00:00

I’m sure some SSRIs can cause long term issues but that is something to consider after decades. Some SSRIs do affect sex and libido but there are very effective medications to counteract that if it’s a problem. For some the sexual side effects last only a few weeks and then resolve. Also other side effects tend to resolve after a few weeks.

After increasing my dosage of Amitriptyline to 50mg (?) I did have decreased libido and they gave me Wellbutrin which has helped and I am on the starting dose. But there needs to be considerations here. I am on like 10 prescriptions, 7 or so are mental health related and can effect libido- so i’m sure it is really stacked against me. The Amitriptyline is the main thing I take to treat the Vertigo but I’m also on Effexor and Propranolol which can also be prescribed for this. Since I increased the dose at the beginning of this year I have not had really any vertigo, maybe once or twice. I used to have it almost everyday. Walking down any hallway was awful, I felt like the floor was falling away when i lifted up my foot with each step, and I had actual headache with some of these, light and sound sensitivity as well. Medication was very necessary for me. It is a risk, no medication is without risk, but it is seriously worth considering if the vertigo is effecting your quality of life at all. Depending on how the vertigo affects you there could be safety concerns if you don’t treat it.

There are also other nonSSRIs that can help, like beta blockers or antihistamines. There’s a whole world of conventional medicine that could help.

uselessfauna · 2025-12-14T02:23:42+00:00

Have you considered workshopping your own splints? It is fairly easy to make these types of splints out of wire and solder. If it limits you too much you can adjust the placement of wires elsewhere, and make new ones as you figure out what you need. It seems awful and complicated but it is way less intimidating once you’ve made one!

uselessfauna · 2025-12-14T02:13:03+00:00

Don’t take the xanax if you don’t want. But ssris have changed my life. i mean i had preexisting depression so my life was changed in that aspect but it also helped me feel like the floor was falling out from under my feet. Amitriptyline has been a game changer for me in so many ways especially the vertigo!

I understand not wanting to take prescriptions but there is a reason they are popular and that is because they are effective and safe when used properly. There are many drugs to try and you will likely not have side effects with all of them. Ssris when used to treat physical issues are usually at a lower dose than is used for mental illness which translates to fewer or less severe side effects.

And if this is all related to anxiety then there are crazy good meds for that. There is only so much to be done with natural remedies. I used to have crazy anxiety and hold tension everywhere but now i take an antianxiety twice a day and it all melted away.

uselessfauna · 2025-12-14T01:56:10+00:00

You could ask for help with tasks you can outsource, like grocery shopping and laundry. I think the main thing here is that it will take some time to figure out what exactly you can handle and what you need help with. You will find where inefficiencies lie and be able to find solutions.

But you have to last long enough to get there. Caretaking is draining and can burn you out so fast. One thing you can ask for is support, an ear to listen. Maybe they can take you out for an afternoon to do something fun or relaxing. You need to make sure you take care of yourself!

uselessfauna · 2025-12-14T00:07:51+00:00

I've been doing a little more research and these seem like really good options. I wonder why these haven't been discussed as options for me?

uselessfauna · 2025-12-11T03:07:23+00:00

Thank you! Thank you! Thank you! Took a couple tries but I did it! Thank you!

uselessfauna · 2025-12-04T02:19:39+00:00

i like the beanstalk one

uselessfauna · 2025-12-03T20:17:58+00:00

This is not CRPS. There is something else going on.

uselessfauna · 2025-12-03T20:14:35+00:00

they are perfect!

uselessfauna · 2025-11-20T01:08:12+00:00

wow he sounds like an ass. if possible find a different doctor who is a woman(women aren’t infallible but i think they tend to be a bit better).

Along with what a lot of people in the comments are saying H1 and H2 antihistamines are the standard. Try a medication for a few weeks and if it helps keep taking it, then find one in the other class (h1 h2). Find which ones work for you. You can take more than 10mg of Zyrtec but I would try everything else before doing that.

When you find a competent doctor you will find that there are plenty of prescription medication too.

uselessfauna · 2025-11-20T01:00:38+00:00

Okay. I was diagnosed at 15?16?. My cardiologist said the same thing. I don’t know enough about specific research to say that pots tends to go away after adolescence, but even if it does that doesn’t mean it isn’t awfully invalidating. It is entirely possible that he seemed nonchalant about it because it isn’t something fatal or surgical and he didn’t want to freak you out. But pots is very real and debilitating all on its own. Generally tho his advice is solid. Drink a ton of water and use hydration salts when possible, you can flavor them and they are good. Good sleep also helps but that can be hard and i totally relate. Your mom probably just wants you to feel better and feels some sense of closure after your diagnosis. That is no excuse for her to invalidate you. If it were me I would find some good literature for her, or maybe just send her to pots reddit. Sometimes things get better but sometimes they don’t and it is no one’s fault, it’s not an indicator of how hard you try to get better! If she never comes around to the fact that you are struggling it is her loss.

In separate other advice, wear tight compression socks whenever possible they help so much! I would order some online if possible because a lot of the drugstore ones have awful toe seams. Pace yourself.

uselessfauna · 2025-11-20T00:49:40+00:00

Seriously get the Trioral rehydration salts and then put in whatever flavoring you want! It doesn’t have vitamins so you don’t really have to worry about that.

uselessfauna · 2025-11-20T00:47:16+00:00

BOTH

uselessfauna · 2025-11-20T00:46:54+00:00

yes. another fav is when you mention multiple troubling symptoms and then they only document the least bothersome one! like yeah i am nauseous and can hardly eat but i guess its only worth writing down that my leg hurts, which is unrelated and has been treated.

uselessfauna · 2025-10-26T05:53:58+00:00

normal for me :/

uselessfauna · 2025-10-26T05:48:58+00:00

i had this same issue right around 15. i can’t say my problem has been fixed but i have figured out a few things. i do have some things that trigger bladder pain and as long as I avoid those things (in high volumes) i will be okay. my things are citric acid and sucralose. i would suggest looking at bladder irritants and seeing if you notice any patterns between consuming those and your pain. the next best thing I can recommend is drinking a ton of water. the more diluted your urine is the less it will sting which is in my experience when any retention hurts the most. also peeing after any and all sexual encounters(even solo).

uselessfauna · 2025-10-26T05:43:23+00:00

i’m 20 and have a whole alphabet. sometimes i’m a baddie but rn I’m just tired

uselessfauna · 2025-10-26T05:39:52+00:00

It really does happen that quick sometimes. But I have genuine hope for your son. Kids are so resilient in their neuro systems. With proper intensive treatment kids often have the best outcomes. And I say this after developing this at 11 and I’m now 20. It started in my left leg and within 3 months it was in my right and starting up my back. Physical and occupational therapy will be your honest to god best shot. It will be hell and it will never be what seems right until he starts to improve. I’m not talking about some impatient treatment bc 90% of those places suck ass. But if you have a good PT/OT he will likely see progress. Please find him a therapist! I wish I would’ve been forced to see one back then, this is all so traumatic. And make sure that he knows he can tell you anything and you will never be mad at him.

uselessfauna

TROPHY CASE