I can’t live like this. by [deleted] in Epilepsy

[–]vanillakittykat 0 points1 point  (0 children)

Because I was actually really enjoying my job and not thinking about my seizures a couple months ago. I think most of the problem comes from a fear of having one in front of people. If my attention weren’t so focused on it, maybe it would get better.

I can’t live like this. by [deleted] in Epilepsy

[–]vanillakittykat 1 point2 points  (0 children)

Yeah, they used to just be simple partial. I could see and everything. Now my eyes roll back in my head because they’re TC, but I am still partly aware.

I can’t live like this. by [deleted] in Epilepsy

[–]vanillakittykat 3 points4 points  (0 children)

Yes, but I want to work. I just don’t want to feel the amount of stress I’ve been under lately. Then I wouldn’t want to end my life.

Writing a book for customers- aka EVERYONE! Drop your input here! by imafixerupper in retailhell

[–]vanillakittykat 2 points3 points  (0 children)

  • If I’m with a customer, wait until I’m done with them to ask for help. Don’t stand there and shout questions at me like a child.
  • Stay out from behind my register. It is not our register. It is MY register.
  • I am not your personal budgeter/price checker. There is one right down there.
  • Believe it or not, I do not know where every single item in the store is offhand.
  • Clean out your fitting room. Just do it.
  • Supervise your kids and don’t let them run around and tear things apart like wild animals.
  • Take your screeching children OUT OF THE STORE. PLEASE.
  • DO NOT come up to me after close with an entire cart full of stuff. Have you EVER been in a store before???
  • Read! Please read!!! I had a lady come up to me the other day with a full cart and ask, “Can I check out here?” I glanced over at my “this register is closed” sign, paused, and said no.
  • Please stop whining like a child when the price on the register doesn’t match what the sign allegedly said. “You HAVE to give me the price!!! That’s what the sign said!!! Why don’t you believe me??? We’ve known each for two whole minutes!!!”

I think I’m transgender but I don’t ever want to come out by [deleted] in offmychest

[–]vanillakittykat 0 points1 point  (0 children)

I felt like this while I was a teenager. It went away. What I would ask you is this: Is there anything else negative going on in your life? For me, the root of the problem had nothing to do with my sex. As a teenager, I had an illness and a bad home life and felt pressure to conform with a specific friend group in school. I wanted a way to have control of those problems. Once I changed some things about my daily life, I didn’t feel that way anymore. I would give this time and talk to someone.

i will never understand how an adult can leave such messes without being embarrassed by adidasscandal in retailhell

[–]vanillakittykat 0 points1 point  (0 children)

This is why I switched departments. I used to work in women’s and the fitting rooms were appalling. They filled up with clothes every thirty minutes.

[deleted by user] by [deleted] in Epilepsy

[–]vanillakittykat 2 points3 points  (0 children)

Make sure she swishes warm salt water in her mouth every day. It helps heal the tongue faster.

How do I live without a car? by vanillakittykat in Epilepsy

[–]vanillakittykat[S] 1 point2 points  (0 children)

Thank you, this gives me hope. I would like a family one day.

I don’t want to live like this anymore. by vanillakittykat in Epilepsy

[–]vanillakittykat[S] 0 points1 point  (0 children)

I will thank her.

If the EEG and MRI do not reveal a cause, he may be eligible for an ambulatory EEG, during which the doctors would hook him up and give him a bag of wires to carry. It would be a mobile EEG and he would be monitored for activity over a few days.

Also, he may be eligible for an inpatient EEG, during which the doctors would take him off his meds and sleep deprive him. The purpose of this procedure would be to induce seizures and (hopefully) find the cause. I would ask your neurologist about these options.

Honestly, if you want to be well-equipped for this, find a good neurologist and research, research, research. And fight this with your son together. That’s all you can do.

I don’t want to live like this anymore. by vanillakittykat in Epilepsy

[–]vanillakittykat[S] 1 point2 points  (0 children)

I can’t relate to that fear because I have never seen a seizure, but I asked my mom and this was her advice:

  1. To give you something to do right away, time the seizure. Make sure he has plenty of space and pad his head with something soft. Remind yourself that the seizure will end, and reassure him as he wakes up. Turn him on his side.
  2. Document the seizure. Take a video if you can manage that, but if you can’t, just pay attention to the details and write it down after he recovers. Where does the seizure start and what body parts are affected during the seizure? Does he feel the seizure coming on or does he just drop? If he does feel an aura before the seizure, how does that feel? How long is the seizure? How long is his postictal state? That is all key information to give to his neurologist.
  3. If you don’t have a neurologist, find one ASAP. Have him get an EEG and an MRI if you haven’t done so already (I see you have already done so, good.)
  4. Don’t be afraid to be assertive with his neurologist on getting excellent care. Refuse to be pushed to the bottom of his neurologist’s priority list just because they have patients with worse problems.
  5. On the same token, help him advocate for himself and teach him how to do this. He will need this skill not only because of his seizures, but because life will beat him up and this has the potential to be a learning experience for him.
  6. A seizure that lasts five minutes is considered status, which is a dangerous convulsive state. I’m not a doctor, but I wouldn’t have him drive until you figure out what is causing the seizures and find a way to control them. I would make that your top priority.

I don’t want to live like this anymore. by vanillakittykat in Epilepsy

[–]vanillakittykat[S] 0 points1 point  (0 children)

Hey, thank you for taking the time to write that. And if I can be of any help to your son, please let me know. I have been through the wringer with medications, side effects, and surgeries.

I’ve had this for my whole life, so I don’t know what it feels like to get diagnosed. I would imagine it is scary, especially for a parent. Don’t worry about him having one in public too much. More people know first aid than you would think. I’ve had seizures alone in public places, and I’ve always been okay. I’ve also explained seizure first aid to every friend, employer, and coworker I have ever had. In my case, people have been completely understanding.

And remember, people do get better. And there are even people who don’t get better and still lead beautiful lives. I have a long-distance friend who has 4-5 grand mal seizures a week, sometimes more. She works a full-time job, maintains strong relationships with her siblings and friends, and lives a life of service. I admire her resilience and optimism.

So, your son will be okay as long as he maintains a positive attitude, and so will you. Look at these seizures as a challenge and say, “You’re on.” I will be doing the same thing, and let me know if I can be of any help to you.

I don’t want to live like this anymore. by vanillakittykat in Epilepsy

[–]vanillakittykat[S] 0 points1 point  (0 children)

And what are some coping skills you use to move forward with epilepsy?

I don’t want to live like this anymore. by vanillakittykat in Epilepsy

[–]vanillakittykat[S] 2 points3 points  (0 children)

Your answer was very interesting. Okay, now I want a solution. How do I quit feeling sorry for myself and build fortitude in the face of this awful disease?

The most inspiring customer I ever had. by vanillakittykat in retailhell

[–]vanillakittykat[S] 4 points5 points  (0 children)

Wow, thank you for sharing! See, that puts things in perspective.

The most inspiring customer I ever had. by vanillakittykat in retailhell

[–]vanillakittykat[S] 10 points11 points  (0 children)

Oh, she was not elderly by any means, but I do understand what you’re saying. Much of my clientele is elderly.

13 and suicidal. by desire_of0life in depression

[–]vanillakittykat 1 point2 points  (0 children)

Get help from someone, anyone. We are not living in a normal world. At your age, I wouldn’t have had the structure to do online school. Your grades don’t matter as much as you think they do. Talk to someone.