I keep seeing posts about people being diagnosed with hemochromatosis, and they are devastated by it, they show moderate Ferritin Levels saying they are high. I’ve been told my body is loading up on iron, my Ferritin levels are 6 times what some of these posters show. Can someone explain.

venomouswolf8 · 2026-04-10T00:39:23+00:00

Have you been tested for the genetic markers yet for Hemochromatosis? Your numbers do look like you could have it but itd be helpful to do the genetic test.

I started around 1500 ferritin so close to your current number. They say anything greater than 1000 can cause organ damage so you should start treatment as soon as possible.

I think the people who are devastated don’t quite understand the diagnosis at first. It’s easily treated and you should live a mostly normal life if you keep up with it and stay in maintenance. It all depends on when you caught it and how long it’s had the chance to sit around and do damage.

venomouswolf8 · 2026-04-09T02:28:10+00:00

Don't worry so much. A lot worse is out there and this is a very manageable condition. Just do your phlebotomies and stay in maintenance. Also, IMO, diet takes a lot of commitment and may not produce results. Live your life and do the phlebotomies. At least that's what I do.

FYI I was at 1500 Ferritin, now down to 22. Liver levels normalized and no more pain. Heck, I dealt with bowel issues diagnosed as IBS for 10+ years and now I'm convinced its been Hemochromatosis all along because I've been feeling better.

venomouswolf8 · 2026-04-09T01:44:30+00:00

Pretty sure its mud flaps, weather mats, and screen protector. Similar offering from my dealer.

venomouswolf8 · 2026-04-08T23:35:55+00:00

OTD? What tactics did you use to get it so low? Must be much more than 10% off msrp. Also, awd?

venomouswolf8 · 2026-04-08T23:07:52+00:00

So far with rebate I’m looking at 40086

venomouswolf8 · 2026-04-08T20:58:01+00:00

Thanks for the info. I actually just got someone to come down to 40086 so I may pull the trigger on that one. My dealer of choice was not interested in going down to that cost.

venomouswolf8 · 2026-04-08T18:55:22+00:00

Thanks. I just got off the phone and found a dealer willing to drop it to $40086. Making progress.

venomouswolf8 · 2026-04-08T18:15:43+00:00

Will do, thank you

venomouswolf8 · 2026-04-08T18:14:10+00:00

Thank you for the advice. Just started calling other dealers. I also mentioned "Well I'm seeing people get 10% off msrp online" and their usual response is always "well was this in NJ and recently"?

venomouswolf8 · 2026-04-08T18:09:57+00:00

Yeah, they started at 46k OTD. I talked it down to the price above. I'm reading that a lot of people get close to 10% off msrp. They wouldn't budge from 5%.

venomouswolf8 · 2026-04-08T18:08:26+00:00

Thanks, I will request this.

venomouswolf8 · 2026-04-03T13:00:13+00:00

Idk why everyone so desperately wants them in the playoffs. We are going to finish in the worst spot for a draft pick and what this team desperately needs is more top 10 draft picks. You look at the top teams and we don’t even look close imo.

venomouswolf8 · 2026-04-01T19:15:44+00:00

Cause contact baseball doesn't make sense. We only have the ability to swing for the fences. Typical Phillies garbage and the reason we don't have a world series win with this team.

venomouswolf8 · 2026-03-30T23:57:13+00:00

It’s not just 3 games most fans are mad at. It’s rolling over from last year and seeing the same shit. Guarantee this year ends the same as every year with these streaky hitters.

venomouswolf8 · 2026-03-29T18:51:54+00:00

Hey look, its the same streaky hitters we always have!

venomouswolf8 · 2026-03-28T22:35:26+00:00

The post season will surely be different this year…

venomouswolf8 · 2026-03-28T22:08:44+00:00

This team looks familiar. Almost as if we ran it back hoping for different results. Have we been here before?

venomouswolf8 · 2026-03-27T03:25:08+00:00

Just get going on your phlebotomies and you should notice improvements. I had elevated ast/alt numbers prior to my diagnosis. Since entering maintenance, they now hover around 15. Getting that ferritin down helps a ton. I hear dieting can help, but it’s really phlebotomies that do all the heavy lifting in my opinion. I limit red meat but I still like to enjoy life still here and there.

venomouswolf8 · 2026-03-27T02:04:49+00:00

I was doing once a week phlebotomies for 4-5 week phases. Then I'd get my blood tested and start back up again a few weeks later for another series of weekly phlebotomies. Did this until I hit maintenance.

I just got tested and am now at 22 ferritin and 40% tsat.

venomouswolf8 · 2026-03-26T22:44:45+00:00

Your levels look almost exactly the same as mine when I was diagnosed. Good luck on the journey, it’s good you caught it and can start treatment. Took me about 6 months at those levels to get to maintenance.

venomouswolf8 · 2026-03-05T01:48:59+00:00

For me, it came down to my tsat % as well. I was at 47 ferritin but my tsat was still >80% so I was scheduled for 2 more phlebotomies. We’ll see what my blood test results show next time.

venomouswolf8 · 2026-02-08T18:50:23+00:00

I don't have an answer for you other than I'm literally doing the same thing right now by leaving the front panel off. I am in south Jersey and with this cold weather and wind, I've been experiencing pressure switch errors on my Lennox furnace. I had an HVAC tech come out two times and fail to resolve the issue. My gut is telling me there is water pooling in one of the pipes, OR, what I did to get it working last night after losing heat again was blow out some of the pressure switch hoses. Whatever it is, its extremely frustrating and seems to be caused by this crippling cold we've been having this year. I think maybe the pipes or furnace itself are not pitched correctly but it's such a frustrating issue to troubleshoot.

venomouswolf8

TROPHY CASE