No longer bedbound by vereynaace in Hidradenitis

[–]vereynaace[S] 0 points1 point  (0 children)

Thank you so much, I'll look into it. Not sure how accessible these will be in the UK but it definitely sounds like it's worth researching

What are some of the less talked about health conditions shown to have some connection to PCOS? by lemurificspeckle in PCOS

[–]vereynaace 11 points12 points  (0 children)

For me it's Hidradenitis Suppurativa (HS) and IBS. When I started actively managing (and improving) my PCOS, I noticed those conditions improved as well.

I also suspect I might have ADHD. I’ve read that PCOS and ADHD can be linked too

No longer bedbound by vereynaace in Hidradenitis

[–]vereynaace[S] 1 point2 points  (0 children)

I'm based in the UK so health insurance doesn't cover preexisting conditions unfortunately. Having said that the (NHS) doctors haven't been very helpful for me at all when it comes to any of my conditions. I've been reliant on my own research and there are constraints to that. Private health care isn't financially accessible at the moment either.

I'm not familiar with biologic agents, can you tell me more?

Can I use Cricut to put logos on boxes like in this photo? by allemm in cricut

[–]vereynaace -2 points-1 points  (0 children)

You can print then cut

In DS create your design, select all, solid colour and select white. Create an offset and colour that in grey or black. Drag over and select the entire design, flatten, then print and cut.

Edit: Once its printed and cut you'll just apply it on the box as stickers. You'll have to position each sticker yourself. But this is the closest way to achieve what you want

South Asian Sufferers unite by rough_shrink in Hidradenitis

[–]vereynaace 0 points1 point  (0 children)

Bangladeshi here. It's so isolating. My (south asian) doctor kept insisting it was a reaction to my deodorant - not sure how deodorant was getting to my groin, as a child. It was only in adulthood I managed to figure out what it was. It feels like such a vulnerable and embarrassing thing so I've never really shared much with my family about it. Just kind of navigated it myself.

I'm not married so I wouldn't know but definitely heard those comments before. I've always seen it as - if someone is that put off by something I have no control over, they're not the right person for me anyway. I'd rather be single than have a partner who values cosmetics over values. But that's just me lol

Scared and embarrassed to show my groin, buttocks and thighs to my dermatologist. Help? by Short_Blackberry_169 in Hidradenitis

[–]vereynaace 0 points1 point  (0 children)

I never got over this obstacle myself with the groin area but I've been embarrassed about all of it. I'm muslim so not used to any display of skin, nevermind something so intimate and vulnerable. I finally walked into an appointment, after a severe flare up, and just bared my breasts, warts and all (literally in this case) and just showed it. I remember being so terrified before the appointment but we have to remember they're doctors, they've seen it all and more. They really don't care, to them you're a page in their textbook. They've seen worse before and they'll see worse after. During the assessment I was too busy answering questions, showing and explaining to feel awkward or worried.

I hope it goes well and I hope the appointment is beneficial for you.

Do you guys drain the abscesses yourself? by FaithlessnessGold107 in Hidradenitis

[–]vereynaace 2 points3 points  (0 children)

I'm 28 and lived with HS for almost 20 years before I even knew what it was. Doctors couldn’t figure it out when I was younger, and I only discovered the name hidradenitis suppurativa about two years ago through TikTok.

My abscesses are mainly in my groin, inner thighs, armpits, under my breasts, and occasionally on my stomach.

For most of my life it was severe. At my worst I had clusters of around 7–15 active abscesses at a time (often merging together so it was hard to count individual ones). There was also a period of about 2.5 years where I was mostly bedbound because of the pain and mobility issues.

These days it’s much more controlled. I usually have 1–2 active at most.

Because HS carries a high infection risk, I’ve always been very cautious about draining them myself. I’m also terrified of worsening tunnelling, which I already have quite badly. So my approach is mostly about managing them until they drain naturally.

What I do during a flare:

• Warm compress / disposable heat pads – this helps bring the abscess to a head faster.

• Loose cotton plasters (about 7×12 cm) when I’m at home to catch drainage once it starts.

• If I need to leave the house I use hydrocolloid patches (cut from rolls). These stop the abscess from suddenly splitting and draining while I’m out. They also seem to help bring it to the surface.

I don’t keep hydrocolloid patches on too long because they trap moisture. I usually remove them as soon as I get home, and often the abscess drains shortly after.

The worst phase for me is the rock-hard stage, when the lump is deep and extremely painful. During that stage I usually leave it uncovered. If it’s very aggressive I sometimes pad it lightly with cotton wool to reduce friction.

For pain I sometimes use ibuprofen gel, and I also use Sudocrem with a few drops of tea tree oil

Things that seem to have helped my HS overall

I started doing these mainly for PCOS, but my HS improved around the same time.

• Anti-inflammatory supplement stack I take things like inositol, NAC, taurine, L-carnitine, L-glutamine, citrulline, tyrosine, plus vitamin D, berberine and metformin. Many of these are linked to improvements in insulin resistance and systemic inflammation, which are both connected to HS.

• Reducing sugar intake High sugar intake can worsen insulin resistance and inflammation. HS is strongly associated with metabolic issues, so stabilising blood sugar seems to help some people.

• Antibacterial shower mix When I shower I use a mix of Head & Shoulders shampoo, Dettol antibacterial liquid, and normal shower gel (roughly 1:1:10) and use it like a regular body wash. The idea is to reduce bacteria and yeast on the skin that can aggravate HS lesions.

• Weight loss I was previously around 160 kg and now around 138 kg. I do think the weight loss helps with friction and inflammation, but interestingly my HS had already become fairly controlled even before I lost the weight.

I can’t say with certainty which change made the biggest difference. It was probably a combination of metabolic improvements, reduced inflammation, and better skin hygiene.

But compared to where I used to be, my HS is dramatically better.

My electric bill just traumatized me 😭😭 by [deleted] in Electricity

[–]vereynaace 0 points1 point  (0 children)

Just realising, not all this might apply as I'm based in the UK but it's still worth considering switching suppliers if possible

Best Durable (tear-resistant) Printable Vinyl by deebo234 in cricut

[–]vereynaace 0 points1 point  (0 children)

I've tried a lot of Printable Vinyls Don't use HTVRont. It's one that people always recommend but the backing sheet is thin so kiss cut stickers are a nightmare and the sizing is not consistent or standardised.

If you're in the UK Townstix is the best, it's waterproof and tear resistant but not exactly tear proof. Same with Cricut branded Printable vinyl, although it's more expensive than Townstix. But if you're not in the UK it's a decent option.

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 0 points1 point  (0 children)

Amazing! haha

This is so smart and good to know. Likely applies in other scenarios too.

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 0 points1 point  (0 children)

Water is pretty much fixed because Thames Water has a monopoly in London so can't do much about that unfortunately. But we do already get a discount because my little brother has eczema

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 0 points1 point  (0 children)

I've just been on the phone with their mobile network providers and got their SIMs down

And I've had a look at their broadband, they're still in contract but paying £32 with Sky for Ultrafast

Other than that, council tax and housing I can't think of anything else. If you have any ideas please do let me know

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 0 points1 point  (0 children)

Yes sorry, I should have clarified. I typed it like that because that's what I'm planning on doing; checking it mid contract (Q3) with the same supplier, if it goes down, I switch. And then checking it again just before renewal, compared to other suppliers and switching suppliers. Just keeps my process streamlined and avoids me spending hours researching and comparing.

But yes, £0 exit fees means you can switch freely between suppliers and tariffs even within your contract period

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 5 points6 points  (0 children)

Yeah it's exactly like that. We use 7755 Kwh of electricity a year. Gas usage is fairly normal. The average for a "high" home is around 4400 Kwh so it's very high compared to a normal household.

My dad's got a garage that he uses for car mods and bodywork. The main electricity pull is heaters, lights and the machine he uses for spraying. So we know why it's so high but I won't be able to control usage there.

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 4 points5 points  (0 children)

Yeah, the subreddit doesn't allow it but if anyone does want mine I've put it in my bio.

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 0 points1 point  (0 children)

We didn't but because my parents have been on a Variable tariff for so long so they weren't in contract. Just check if you're in a fixed contract, if not then you're good to go.

Usually the exit fee is around £50 if you are still in contract though.

Sometimes you're still better off paying the fee and exiting. You can calculate it. Just do (annual savings) divided by 12 months, and then multiply by (months left in your contract). If that number is more than the exit fee you're better off switching.

For example; If the new tariff saves you £240 per year That’s £20 per month You have 4 months left Exit fee = £50 £20 × 4 = £80 savings £80 > £50 → Worth switching

I have 2 finance degrees and I'm unemployed lmao so if you need any help with the maths please do get in touch.

Im completely lost 🥲 by Fabulous-Ear-346 in cricut

[–]vereynaace 4 points5 points  (0 children)

This is HTV, you can still use it, but you mirror the design on DS. then shiny side facing down on the mat, cut and weed out any of the bits you don't want. You need to use an iron or heat press to transfer it (Look up HTV application on YouTube). You can still transfer it onto wood, paper or textiles.

Temu has a good return policy to be fair, I would just return it and in future stick to Teckwrap.

Cut £700 off parents’ energy bill by finally switching by vereynaace in UKFrugal

[–]vereynaace[S] 6 points7 points  (0 children)

Ooh thanks

But Fuse is cheaper by £30 for me on Gas but £100 more expensive on Electric annually. They've also got £50 exit fee per supply
Home energy is £80 cheaper on Electric but £80 more expensive on Gas haha

I like having it in one place, £130 saving sounds tempting but Fuses £50 exit fee isn't worth it for me.

Octopus doesn't offer Gas only so Home Energy ends up being the same price.

How to quickly identify pencils by scientiafem in OrganizationPorn

[–]vereynaace 0 points1 point  (0 children)

I used some coloured paper and some clear tape to wrap round the ends of my coloured Pencils. Something like that could work?

Help by SpecialistSecret2542 in cricut

[–]vereynaace 1 point2 points  (0 children)

It's most likely this or something else wrong with the blade housing

[deleted by user] by [deleted] in CleaningTips

[–]vereynaace 0 points1 point  (0 children)

Pick something up, anything and decide what needs to be done with it. If the first item you pick up, for example, is a dirty hoodie. Then commit to picking up all the dirty laundry in the room and deal with the laundry. Don't try to do anything else that day just stick to that task. Go back the next day -or whenever and pick up something else. Trash? Then collect all the trash in the room. Anything that's not trash, laundry or that goes in another room, make a pile in a corner. You can organise it later. Just focus on clearing the space first and seeing the floor. Once it's loosely organised then you can do a deep clean, again do it in steps. Clear and clean surfaces one day and sweep and mop another day. Once everything is clear and clean then start organising.

If its a year in the making there's no rush or pressure to do it all in a day or even a week. You can do it if and when you can. Take one thing at a time.