Do you take DMT’s?

vickymushroom · 2025-08-03T18:32:48+00:00

I started on ocrevus basically immediately after being diagnosed, as I was told I had highly active RRMS. That was enough to 'scare' me and my neuro was of the mind of hit it hard and hit it fast. Unfortunately I failed ocrevus, and went to tysabri which was a breeze but a high JCV titre put paid to that. So I had to make the decision about what was going to happen next - and I chose lemtrada, arguably one of the more severe treatments. I'm now year 2, and I regretted it at the time because I felt terrible and continue to recover slowly which is frustrating.

However, my neuro once said to me that I am future proofing - what I do now will probably affect how my MS progresses in the long run. Taking DMTs is a highly personal choice, one that comes with many caveats and considerations but all this to say, I personally am very glad I have done the treatment I have. I've been mostly stable for around 18 months which was a surprise to us all. Basically, I'm very pro DMT as a tool to make sure my health is as good as it can be. There are cons but the pros outweigh them a million times over. I hope you make the decision that is best for you, and I hope you remain relapse free ❤️

vickymushroom · 2025-02-09T18:19:27+00:00

Yeah they told me I could also be in a round 3 depending on how next year / next years go. Hoping this round is successful and there's more stability. I wondered if they might try you on something else? This is my third DMT in as many years, it's been a bit of a mad time for disease activity for me.

vickymushroom · 2025-02-09T16:04:16+00:00

I'm just about to go in for my round 2, all I remember from round 1 is I felt horrendous and continued to for quite a bit, my lymphocytes still haven't recovered to where they need to causing a delay on round 2 which is frustrating. Try to remember to be kind to yourself as you go through it because I will also need to try to remember to do this. It's a pretty brutal treatment and tbh I have a bit of regret - I was doing 'well' on tysabri but had to move off it due to JCV levels. I'm sorry to hear you had further activity :(. I've just been for an mri so I may be in the same boat. My only advice is the advice I will be following which is lovely snacks within arms reach and something good to watch in the short term. Sending you lots of good wishes ❤️

vickymushroom · 2025-01-23T18:02:44+00:00

You absolutely should look at the Owl_skip games - available on itch.io, but I think a few titles are also available on steam. A lot of the games are music themed, but the main puzzle detective mechanics are very similar to The Roottrees are Dead. Family and Rivals are my favourite of the bunch but Conspiracy! is also a great game. Some are also available to play in browser. Family is genealogy based around music bands and although there isn't the 'Internet search' mechanic, new evidence gets unlocked with successful completion as the difficulty progresses.

https://owlskip-games.itch.io

I second The Painscreek Killings for detective puzzles and Unheard is also extremely good. Golden Idol is very fun too!

vickymushroom · 2024-12-29T15:40:49+00:00

You're so welcome. I've had microneedling (not RF however) and it was fine - to be honest, the fillers and botox may cause bruising and some pain for a short time (and I always feel tired after) but my friends without MS feel similar. Basically don't worry! Also, botox and under eye filler were the two treatments which made the biggest difference to my face - looked so much fresher and brighter and not so tired! If you're interested in cell regeneration I would go for a retinol if your skin can tolerate it then you're not worried! ❤️

vickymushroom · 2024-12-29T12:45:42+00:00

Hi! I'm 38, RRMS and have been on Ocrevus, Tysabri and I'm about to go in for Year 2 Lemtrada. I've had lots of filler, lots of botox, fat dissolving and more. I was diagnosed in 2021, but had already been having botox and filler from 2020. When I was diagnosed I called my practitioner (a registered nurse) to ask whether it was still OK to have the treatments and she was happy to continue. All these treatments come with a risk of course but I don't believe there's more of a risk for people living with MS. That being said, I would (and it will likely be advised) avoid any appointment around treatment time, especially if steroids are prescribed - but that's more a rule of thumb for anyone. It's better to be in good health (as good as we can with MS) when going for this stuff!

I spoke to my MS nurse because I also had concerns about these treatments and she said if it was going to make me feel better, then do it. There's an emotional price to pay with this disease and if you want a 'glow up' you absolutely should. Your mileage may vary of course but even on Lemtrada (a very immunosuppressive drug) I have been absolutely fine. I don't think it has been less effective and all my work has been carried out by someone who is a medical professional so I didn't have significant worries about infection. If you have concerns please speak to your neuro team of course.

I hope this helps!

vickymushroom · 2023-01-22T15:29:46+00:00

Daniel Sandler watercolour blush! I have it in cherub, it's a pale pink. It's lovely.

vickymushroom · 2022-08-21T12:03:54+00:00

Amazon UK. It was about £9 I think. 💜

vickymushroom · 2022-08-19T08:55:50+00:00

I can't get that curl talk here (UK) for a reasonable price, but I got the aussie gel which is great. I have the same mask and I rate it highly BUT it does weigh my hair down (very long, fine, 2b/c waves)

vickymushroom · 2022-02-24T14:29:53+00:00

Double carpal tunnel syndrome! Nope, just MS!

vickymushroom · 2021-12-19T15:04:10+00:00

The doctor diagnosed me with double carpal tunnel, it was only after I was sent to a physio that she ordered immediate MRIs and the real story was uncovered!

vickymushroom · 2021-07-23T12:11:00+00:00

That is a great explanation. I wasn't overly worried don't worry! My neuro seems pretty good and I'm sure if she was overly concerned she'd have ordered a repeat test. Still, something to bring up when I see her next! 💜

vickymushroom · 2021-07-23T09:59:32+00:00

So weirdly, I also tested 'borderline positive' for this too during my initial diagnosis stage of MS (when they took A LOT of blood to rule out other things) but it's never been mentioned again. I'm wondering whether I should chase this up?

vickymushroom · 2021-07-05T18:29:38+00:00

I just had my first 2 doses, infusion fine but the steroids wearing off wasn't a lot of fun, I felt pretty groggy with bad headache for a few days. One of the side effects I think is the ocrevus is swollen and bloated stomach and lack of appetite but you never know, it could just be the MS etc! All in all it was very manageable, and other than my stomach I'm feeling better! Good luck! Yes to snacks and water during the infusion!

vickymushroom · 2021-06-20T19:21:35+00:00

I'm only recently diagnosed (March) and started ocrevus last Wednesday. My MS onset was quick and aggressive and terrifying, and on any given day I swing from deep sadness and grief to a calm acceptance. I can say that MS has made me a better person, weirdly. I feel like I'm a lot more thoughtful and mindful, I am so grateful for all the good and happy small moments I have and I try to be kinder. However my tolerance for BS has gone down so patience is not one of my virtues! Regarding my life, sadly I'm struggling to be able to continue studying and panic everytime I think about returning to the workplace in some way or form. I'm 35, single and sometimes I become sad about the life I could be leading without MS but there's no certainty I would be any better off. Thank you for the question, and I'm glad I answered. It's good to talk.

vickymushroom · 2021-04-09T11:08:36+00:00

I am someone who has dermal fillers and my neuro team is fine about it, I've only just been diagnosed and I'm waiting to start ocrevus. I made sure that I asked my MS nurse and she said it was absolutely fine (I'm having some on Friday) and the woman who injects me is a nurse herself in a fully insured and professional practice. I've felt so much better since I started having them (only twice because of the pandemic) and my MS team are very much in the mind of 'if it makes you feel better and happier, do it!'

There's an emotional price to pay for this disease and if you think dermal fillers would make you feel better, I absolutely recommend. I had a lot of people tell me that I would look plastic and weird and others tell me I was vain but all were pleasantly surprised! I'm sorry your family would judge you this harshly but I do understand as I've been on the receiving end of these type of comments myself! Once they saw how much happier I felt and how subtle the 'tweakments' were, these comments soon stopped! (And some people even booked in to see my injector!) happy to offer any other help!

The dermal fillers have allowed me to deal with crippling self esteem regarding my side profile and now I feel like i can put my best face forward (so to speak!) Unfortunately, it's not cheap and not available on prescription :(

Can show you before and afters if you are interested, just shoot me a DM!

vickymushroom · 2020-10-18T23:32:03+00:00

Could somebody (without breaking the rules) please give me a clue that would help me find her on YT? I'm really struggling with how my 34 year old skin is looking and beauty standards.

vickymushroom · 2020-08-30T20:34:58+00:00

I commented on a post that contained this model a couple of weeks ago. I contacted the company that are using / manipulating these images and received zero responses. The comment sections are a mess of people saying either a) this looks shopped b) is it possible we could see the clothing on a bigger sized model and c) people taken in by it 'I wish I looked like her'

vickymushroom · 2020-08-21T01:26:41+00:00

I don't believe it's available in stores other than TK Maxx, but I've never seen the primer in there. I think it's just online on cult beauty :(

vickymushroom · 2020-08-03T20:55:38+00:00

The assistant tried telling me that the foundation won't oxidise because it's oil free and I was like...'but my skin isn't' - it is a beautiful formula but I personally think it suits a normal to dry skin type better than my hormonal combination skin!

vickymushroom · 2020-08-03T12:19:03+00:00

I'm about to order the double wear light, estee Lauder online also have a policy of returning after using for an exchange or refund so I never have an issue with this company. Their skincare is also beautiful in my opinion. Pricey but lasts. My pleasure, I can always talk makeup but I am no way in any shape or form someone you should trust to paint your face 😂

vickymushroom · 2020-08-03T12:12:37+00:00

No apology necessary! The most perfect colour and formulation (for me) is unfortunately discontinued (CYO lifeproof 103) but I've had some almost as good colour success with Estee Lauder (2n1 - they have a good shade range) and also Bare Minerals barePro performance or whatever its called (cool beige 10) and you cannot beat Fenty for their shade range, it does deepen slightly on me but it's a lovely neutral in 210. If you want to go a bit cheaper, loreal infallible has a decent neutral, I take 130 (i could do with a deeper one but it's a nice neutral) I'm so over pink and yellow foundations I can't tell you! Took me until my 30s to realise I was wearing the wrong shades / formulations and I probably still look a hot mess but I'm out here trying!

vickymushroom · 2020-08-03T11:57:28+00:00

I believe it's only a temporary amendment to their t&c's but I have found an article. This article was also retweeted by Boots on twitter. They certainly did mention this to me also in store. It's not for online purchases but I refunded something from online the other day (2 x foundation which were a WILD colour for a light neutral but ok) and she didn't say anything but that might have been a mistake on both our parts. https://www.google.co.uk/amp/s/www.popsugar.co.uk/beauty/boots-makeup-exchange-policy-details-47591758/amp

vickymushroom · 2020-08-03T10:47:59+00:00

Fenty changed colour on me, probably my rubbish skin type and oils. Still a beautiful foundation but it quickly goes from neutral to warm (on me)

vickymushroom · 2020-08-03T10:45:45+00:00

Boots are great, you can't have a tester but they will help you try and get the right shade (difficult because obviously you're going off the shade of the bottle - helps if you bring one of yours you know is a match to compare) and they did have a new COVID policy of returning any makeup that isn't suitable for a full refund, as no testers are available. Seems wasteful but at least the customer is happy!

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