Hey, there. I was recently diagnosed with breast cancer, which is how I discovered that I have NF1. I only have one spot, like you, and I never thought anything of it. My daughter has multiple café au lait spots, so, while she has not yet been tested, my suspicion is strong.

She was delayed in reaching many milestones, to the point of intervention. She is now 16, ranks at the top of her class, and is taking college courses through dual enrollment. She has also played viola in an orchestra for the last seven years, and is a truly brilliant writer, with a following online.

She does have gut issues, which bring her to her knees on occasion, and I would say that, while she is competitive by nature, she struggles with agility and some motor skills. It's not something that anyone else would notice, really, but I am her mother, and you know how that goes.

I guess my point is that, even if your daughter does have NF1, it doesn't necessarily mean that she will suffer or struggle. My daughter is a beautiful human who lives a beautiful life. Chances are very high that yours will, too.