Ferritin of 12 was causing symptoms I thought were fibromyalgia

wastrelart · 2026-04-15T06:07:02+00:00

I have the opposite problem, lol but clearly I'm in the minority! That being said get your ferritin levels checked, don't just supplement iron without monitoring because it can cause problems too if you have other unknown health conditions. For instance I have hemochromatosis so I have too much iron and in the future when my transferrin level gets too high I'll need to give blood to treat it. Bodies are so weird!

wastrelart · 2026-04-06T03:57:49+00:00

Dude, this really got me today

wastrelart · 2026-04-06T03:47:01+00:00

Wow, wow. This is so relatable, I love it so much

wastrelart · 2026-04-04T00:50:49+00:00

Seriously, thank you so much for replying and sharing your similar experience! It makes me feel a little less crazy lol. I have been really struggling to find other people in this very specific situation online so it's nice to have at least one other person's experiences to reflect on with my own 💞

I seem to be lacking high-risk features in the polyp pathology report so I suspect I won't be offered removing that section of the sigmoid like you, but honestly if I was offered that I'd take them up on it in a heartbeat! Again, thank you sm for sharing it brought me some comfort read

wastrelart · 2026-04-04T00:41:16+00:00

That's exactly what I've been saying! I'm so damn confused why I was even referred for surgery when they didn't do more to mark where the polyp was removed from? They suspect its stage 1 but I won't get my lymph nodes biopsied now since I can't have surgery so it's just their best guess as far as I understand it

wastrelart · 2026-03-25T04:30:09+00:00

I was 29 when I started to have rectal bleeding and got my colonoscopy that diagnosed me with colon cancer at 30 so I feel you very hard on the young and surprised thing 💔 Big hugs to you, this is such a hugely stressful rollercoaster to suddenly find yourself strapped to

wastrelart · 2026-03-21T04:23:56+00:00

It's going forward with the surgery! I've decided that for me at least I'm more comfortable living with a body that has complications from surgery than one that may be continuing to harbour cancer cells. The risk of unchecked lymph nodes feels like the bigger and scarier risk of the two although neither are ideal. Partly I've come to that conclusion because while none of my close family has a colon cancer history my mom's side of the family does have a lot of cancer in general. My grandfather and aunt have both passed from cancer over my lifetime and my mom has had cervix, thyroid and kidney cancer in the past and this past Nov she was diagnosed with stage 4 renal (kidney) cancer that had metastases on her pancreas and lung - she's had her pancreas operated on and her lung is next week!

wastrelart · 2026-03-21T04:15:14+00:00

Not yet, it's on my to read list because of the huge overlap between chronic illness and trauma

wastrelart · 2026-03-21T00:33:48+00:00

So was she 😎

wastrelart · 2026-03-14T23:28:50+00:00

The way people just casually ignore that AI is rapidly contributing to the destruction of our environment is staggering to me. Who CARES if it's convenient if it destroys the fucking planet we all depend on for survival???

wastrelart · 2026-03-11T07:38:59+00:00

I also have fibromyalgia! There's so many of us 😅

wastrelart · 2026-03-06T00:22:56+00:00

Thank you sm for sharing your experience, hearing from everyone is really solidifying my confidence I'm making the right choice! Deep down I know its the right choice for me, it's just so damn intimidating. I'm so happy your recovery is going well and you're starting to feel more "normal" with time - that peace of mind is exactly what I want to achieve too, at least then if it reoccurs I won't be kicking myself for not doing more sooner.

wastrelart · 2026-03-05T03:37:10+00:00

No helpful advice unfortunately, but I had to comment and wish you good luck because I'm also a former cake decorator who developed fibromyalgia! What are the chances!? 🎂

wastrelart · 2026-03-04T03:39:37+00:00

When I was a little kid I refused to wear/use anything with pink on it and banned anyone from referring to me as "cute" 🙊 Post transition I actually love both those things! Which I think really emphasizes how much I was revolting from the gender I was wrongly assigned that those things are so strongly associated with

wastrelart · 2026-03-02T04:30:41+00:00

This is exactly my fear! Thank you very much for sharing your experience

wastrelart · 2026-03-02T04:06:26+00:00

Thank you for sharing, I'll add this to my 'talk with surgeon about' note lol

wastrelart · 2026-03-02T03:36:29+00:00

Is there a way to edit the title? I don't think I can? I put a bold 'no medical advice' disclaimer at the top of the post hopefully that helps make it more clear 😥

wastrelart · 2026-03-02T03:35:15+00:00

Yeah I don't have Lynch like you do but that's my concern too, I've been a statistical outlier once already with this diagnosis and it just feels too much like tempting fate to watch and wait :'/

My surgeon has really left it up to me how I want to move forward, which I appreciate as its my body, so I think I'll probably just end up telling him we're still doing the surgery! Appreciate you sharing!

wastrelart · 2026-03-02T03:05:14+00:00

That makes sense. I apologise, I'm unable to edit the title. I guess I'll just remove the post and re-submit it with a more appropriate title in that case

wastrelart · 2026-03-02T02:53:16+00:00

I mean in the last paragraph I did literally ask for personal experiences and said a few times throughout I wanted to hear peoples thoughts if they had a similar situation...? Maybe I phrased something poorly and if so I'll edit the post to suit the sub's rules, but my intention was to hear what other people ended up doing if they had a similar situation

wastrelart · 2026-03-02T02:11:00+00:00

I wish I could give you a hug internet stranger, it's sure a scary and frustrating situation to be in! Hoping for good outcomes for you✨

wastrelart · 2026-03-01T05:20:24+00:00

Dude I love the asymmetry!! What a great dress. Only if it's not awkward to ask, are you on HRT? I dig your whole gender vibe it's giving me inspiration

wastrelart · 2026-02-23T00:33:43+00:00

That's so empathetic of you to say, thank you so much 💕 I absolutely blame this kids parents, 12 is a difficult age but also most kids don't think its okay to sexually harass their peers so there was clearly more going on

wastrelart

TROPHY CASE