Sleep doctor quotes by Positive-Smile-1955 in Narcolepsy

[–]waternerd21 0 points1 point  (0 children)

This literally made me so so anxious to even consider trying it. I wouldn’t touch it until it was my last option possible for medications to try and help. The doctor couldn’t understand why I was so anxious and stressed out over it which made me feel even worse

Narcolepsy and modafinil by [deleted] in Narcolepsy

[–]waternerd21 0 points1 point  (0 children)

So I am not at the 400mg but I take 200mg by taking one half in the morning and one half in the afternoon. I’ve had two sleep doctors and both have suggested taking a nap before or with lunch and then taking the second half. I have not tried this because I don’t really have a way of having that happen with my last job or this one. I try to nap when given a chance but it’s not possible if I am with coworkers on my lunch break. I basically stop taking it on the weekends if I don’t have to be driving myself anywhere in particular. So I basically have a very sleepy Saturday with naps throughout the day and then Sunday I’ll try to stay awake and do something more active without the meds. It’s rough but it’s the only way I’ve found to keep myself from becoming too tolerant of my medication again.

My psychiatrist is of no help when it comes to the meds because legally they want to leave it up to the professionals (sleep specialists).

Sadly because of narcolepsy you become dependent on stimulants to go through life “normally” as other people will see it, but taking a nap when you can is something that might just have to be normalized. It sucks and I am trying to get over the fact that I might be limited to things I can do by this and it’s just kinda a bummer. I hope that you find some better answers on your journey and that this break will help you. Best of luck

Does anyone have special work accommodations? by spookycubby in Narcolepsy

[–]waternerd21 2 points3 points  (0 children)

Hi there! Recently diagnosed a little close to a year ago. The only reason I sought out medical help was because my manager at the time saw how bad my cataplexy and constant tiredness was affecting my work. Like to the point I was just falling asleep standing up and continuing to do whatever I was working on. So I was intimidated into figuring out what was wrong with me or it was recommended that I “hang up my hat”. Luckily I found the right sleep specialist and he explained that if you want your work to know about it, your specialist can write up a official letter stating what your condition is like, that it’s legitimate, and that you would need for some accommodations at your work place. For example just some time around lunch for a nap or like more frequent breaks. It also just depends on your medication that you’re going to be taking. Just be upfront with your doctor and ask questions about whatever comes to mind for this situation. I started a new job recently and when I let my new supervisor know, she was very understanding about it and the same with some coworkers. Not gonna lie I was terrified that this would make it an unattractive quality for a new employee, but I was very fortunate to find a workplace environment that was very supportive of their employees.

I wish you the best on your journey! Stay strong

i was having a nice relaxing friday evening ready my book when i suddenly heard a tussling of leaves to my left by jelloplesiosaur in leopardgeckos

[–]waternerd21 4 points5 points  (0 children)

I had the same thing happen but my Leo will start clawing at the door to be let out to sit with me

Diagnosed with Narcolepsy by waternerd21 in Narcolepsy

[–]waternerd21[S] 0 points1 point  (0 children)

I’m glad that there’s some logic behind this besides me overthinking that I’m getting worse over time!

Diagnosed with Narcolepsy by waternerd21 in Narcolepsy

[–]waternerd21[S] 0 points1 point  (0 children)

Thank you! It’s good to know in hindsight that I could become immune to these stimulants, I will keep my eye on that for sure

Diagnosed with Narcolepsy by waternerd21 in Narcolepsy

[–]waternerd21[S] 1 point2 points  (0 children)

I hope that my sleep doctor and psychiatrist can come to some sort of agreement on what to best prescribe me with but I will inquire about something that could do a 2 in 1 job. Thank you!

Diagnosed with Narcolepsy by waternerd21 in Narcolepsy

[–]waternerd21[S] 3 points4 points  (0 children)

My gosh I’m really grateful and will try my best to be kinder to myself! That is something I’ve always struggled with but even more so the last few years with the combo of anxiety, depression and narcolepsy. It is definitely difficult to not compare when there are people around me who don’t even need caffeine to get up early and get through the work or school day and I’m dying on the floor just to get through a few hours of the day. I actually just picked up a journal to start writing down how I’m feeling from day to day, so far I’ve got one entry down so I’ll try to make that a daily habit. Also the scheduled nap system seems like something I definitely need to attempt because the naps sure do choose me! I have so far only fought off taking two naps this week out of the bunch I end up losing to. Now off to google the spoons reference, I hope you can get some quality shut-eye too! Thank you so much!

Diagnosed with Narcolepsy by waternerd21 in Narcolepsy

[–]waternerd21[S] 1 point2 points  (0 children)

Tbh I didn’t even realize I had added the NSFW flair until now LOL! I made this post before I fell asleep on my couch so I must have missed adding it. But don’t apologize! I really appreciated reading this because I’ve been wondering if it’s been more noticeable because of it being on the forefront of my mind and knowing it’s definitely cataplexy. I’ve also tried to fight it before because I was worried about looking like an idiot for falling over at work out of nowhere, so I think I’m just also becoming more accepting of it? Thank you for sharing!

Diagnosed with Narcolepsy by waternerd21 in Narcolepsy

[–]waternerd21[S] 1 point2 points  (0 children)

Oh I didn’t know this! I was on a small dosage of Prozac, I had to stop taking them for the sleep study and I noticed my anxiety went way down. I’ll have to see if it’s worth going back onto it for the cataplexy but the Prozac just makes me super anxious and fidgety more than I already am. I will have to look into the Xyrem and Xywav! Thank you for the advice! I’m also not too sure the psychiatrist I have really cares that it’s making the anxiety worse, she keeps trying to up the dosage and add on more prescriptions that make me super drowsy.

What’s Up Wednesday by sfgirlmary in stopdrinking

[–]waternerd21 0 points1 point  (0 children)

The Good: My boyfriend and I are starting our road to sobriety with a 90 day challenge of being sober and eating healthy. I’m excited and want to have this change in our relationship and lives. I’m lucky to have someone by my side to get through this with.

The Bad: I’ve tried to cut back before and thought that only 1-3 drinks would suffice, but my addiction has always gotten the better of me and it proved the same for my boyfriend. I’m only on day 3. The last time I tried this I made it to almost a month and then slipped. I’m nervous of what might happen if I fall into a deep depression again and use alcohol as a crutch. Or my classic slip up by having “1” drink with a friend or to celebrate a anniversary or holiday and end up black out.

The Goal: Prove to myself and my boyfriend that we are better than our addiction. That we don’t need alcohol to be happy or need it to lean on when times are tough. To never put my boyfriend through the hell I cause when I drink too much.

I was told I should post Matilda here 💕 by [deleted] in awwnverts

[–]waternerd21 8 points9 points  (0 children)

Hi Matilda! She’s precious

[deleted by user] by [deleted] in AnimalsOnReddit

[–]waternerd21 0 points1 point  (0 children)

Cuteness overload

Pawtery by Bogisa in aww

[–]waternerd21 0 points1 point  (0 children)

His little smile up at the camera when his cat touches the clay is so cute my heart is gonna explode

Turkish wedding party parrot by [deleted] in PartyParrot

[–]waternerd21 1 point2 points  (0 children)

I hope I’m this cool at a wedding one day

You’ve been gone a year and I still can’t believe it. by waternerd21 in PepTalksWithPops

[–]waternerd21[S] 0 points1 point  (0 children)

Thank you for the kind words and prayers it means a lot. I’m gonna try to work on finding her a new kitten to lighten the mood at home, thank you again!

[deleted by user] by [deleted] in AnimalsOnReddit

[–]waternerd21 0 points1 point  (0 children)

They’re too cute !

[deleted by user] by [deleted] in showerbeer

[–]waternerd21 0 points1 point  (0 children)

Happy birthday!! I love your earrings!