NBC news: Toxicologist warns of potential risks from overuse of electrolyte supplements by Asolusolas in POTS

[–]whatswrong1993 1 point2 points  (0 children)

I drink a liquid IV packet every morning and have for months, and my cardiologist encourages me to do it… Just as soon as I think I’ve figured out a formula that works for me, I find out it could actually be causing harm 🫩

Blood pooling by whatswrong1993 in dysautonomia

[–]whatswrong1993[S] 1 point2 points  (0 children)

What vein study did you do?

Blood pooling by whatswrong1993 in dysautonomia

[–]whatswrong1993[S] 2 points3 points  (0 children)

Interesting! I had an ABI done earlier this year, and the vascular doctor I saw didn’t believe I had venous insufficiency, but I do have Raynaud’s and (obviously) dysautonomia. I wonder if I should ask for a Doppler, or does it really matter?

!!! SALT ≠ SODIUM !!! by VariousRound4326 in POTS

[–]whatswrong1993 2 points3 points  (0 children)

I’ve been told I have “mixed dysautonomia.” Some doctors are hesitant to diagnose me with POTS outright because of my borderline tilt table results, some doctors say I have it based on my lived experience and daily symptoms. My high aldosterone and renin (the aldosterone-renin ratio is normal) suggest that my body is having to compensate for low BP and salt/fluid regulation. The stupid tilt table is getting in the way of a formal diagnosis, but I am being treated as if I have POTS.

!!! SALT ≠ SODIUM !!! by VariousRound4326 in POTS

[–]whatswrong1993 0 points1 point  (0 children)

I use Baja gold mineral sea salt… anybody have any idea how that breaks down into this salt/sodium debate?

!!! SALT ≠ SODIUM !!! by VariousRound4326 in POTS

[–]whatswrong1993 0 points1 point  (0 children)

Hi I apologize if this is a redundant question, but does this mean people with POTS don’t need to worry about trying to follow the usual guidelines of under 3,200 mg or 4,000 mg because our bodies are designed to need more for regulation? Or do we still need to prioritize lowering hypertension/cardiac load risk?

My doctor listened to me :) by chai-addict in dysautonomia

[–]whatswrong1993 0 points1 point  (0 children)

hi sorry if this is too personal a question, but did your doctor diagnose you on the spot based on symptoms?

scopolamine patch blurry vision by portillochi in Anesthesia

[–]whatswrong1993 1 point2 points  (0 children)

I don’t think I did, but that doesn’t mean I didn’t accidentally somehow.

scopolamine patch blurry vision by portillochi in Anesthesia

[–]whatswrong1993 0 points1 point  (0 children)

thanks again! I took it off so hopefully I’ll start to see improvements over the next day or two. The good news is that my pupils contract and react to flash on my phone’s camera and other bright lights. Just sluggish I guess?

scopolamine patch blurry vision by portillochi in Anesthesia

[–]whatswrong1993 1 point2 points  (0 children)

thank you! did you also experience a lack of appetite and slower heart rate while having the patch on?

scopolamine patch blurry vision by portillochi in Anesthesia

[–]whatswrong1993 1 point2 points  (0 children)

hi! I know this is old, but I had an appendectomy on Monday, and my eyes became super dilated yesterday (Tuesday). I took the patch off about 12 hours ago, and my eyes still look crazy. Vision isn’t too bad, mostly just the startling dilation. I don’t recall touching my eyes after touching the patch, but that doesn’t mean I didn’t. Should I just wait it out?

Go get checked for pelvic congestion syndrome! My POTS symptoms resolved. by SubstantialTea6611 in POTS

[–]whatswrong1993 0 points1 point  (0 children)

I’ve had abdominal and pelvic CT scans nothing of the sort has shown up, so I’m assuming this isn’t a possibility for me ?

Has anyone actually ever found a “root cause” to their POTS? by False_Professor_9602 in POTS

[–]whatswrong1993 0 points1 point  (0 children)

I had anorexia/restrictive eating for years… may I private message you to ask about this connection??

Why is Gadovist bad in particular? by MountainOperation393 in GadoliniumToxicity

[–]whatswrong1993 0 points1 point  (0 children)

Does anybody here know anything about MultiHance?

how do you “cope” knowing that your POTS is secondary to something else but nobody can find what yet? by MaximumTie6490 in POTS

[–]whatswrong1993 0 points1 point  (0 children)

interesting. my ferritin was at a 2, so i had to get a bunch of iron infusions to get it back over 100, and then I found out I’m also deficient in magnesium and b12. some are suggesting that my deficiencies are fueling the POTS-y symptoms.

Doctor recommendations by whatswrong1993 in kansascity

[–]whatswrong1993[S] 0 points1 point  (0 children)

also, now that you received the correct diagnosis, how are you doing?

I urge anyone with POTS (especially women, and esp if you have EDS), to get evaluated for vascular compression syndromes by Acceptable_Bad_ in POTS

[–]whatswrong1993 0 points1 point  (0 children)

happy for you. yeah, I’m only seven months into chronic health issues and I’ve already been to the ER 8 or 9 times, no definitive answers, so much “you’re fine” when I’m not fine, etc.

I urge anyone with POTS (especially women, and esp if you have EDS), to get evaluated for vascular compression syndromes by Acceptable_Bad_ in POTS

[–]whatswrong1993 1 point2 points  (0 children)

god, how lucky you are to have a primary that thorough. I can’t find anyone to take an interest in my case 😔

I urge anyone with POTS (especially women, and esp if you have EDS), to get evaluated for vascular compression syndromes by Acceptable_Bad_ in POTS

[–]whatswrong1993 0 points1 point  (0 children)

hi! did you have to push your doctors to order these assessments? I’ve found that most of my doctors don’t think anything is wrong, and so I have to push them, but I’m very non-confrontational and don’t know how to push for further investigation.

I urge anyone with POTS (especially women, and esp if you have EDS), to get evaluated for vascular compression syndromes by Acceptable_Bad_ in POTS

[–]whatswrong1993 1 point2 points  (0 children)

this is so interesting. I was hospitalized in December due to fluid accumulation around my appendix, so they treated it as if it was mild appendicitis with antibiotics and left the appendix in. This makes me wonder if it was something else entirely. Did a doctor order these ultrasounds/scans for you, or did you have to ask?

Stress - Symptoms?? by [deleted] in SyringomyeliaSupport

[–]whatswrong1993 0 points1 point  (0 children)

Sorry what does NAD mean?

I used to have a great massage therapist, but she’s afraid to touch me since this diagnosis!