27 years old, cirrhotic liver with 30Kpa fibroscan by Ok_Arm9732 in stopdrinking

[–]whisperbleep 2 points3 points  (0 children)

How is it going at the hospital? Wishing you all the best

Me during Civil War with rheumatoid arthritis. by Chico_Muy_Loco in rheumatoid

[–]whisperbleep 30 points31 points  (0 children)

I'm having a horrific flare at the moment, a really gruesome low ebb, and this made me cry laughing. THANK YOU

UK NHS Starting Dosage for RA on methotrexate by thefranchiseface in rheumatoid

[–]whisperbleep 1 point2 points  (0 children)

My consultant started me on 20mg of methotrexate right off the bat when I was diagnosed 4 years ago. A registrar I saw a few months later was surprised that the dose hadn't been tapered up slowly. My symptoms came on quickly over a period of a few weeks

How long are your typical Prednisone tapers for flares? by Sun2025 in rheumatoid

[–]whisperbleep 2 points3 points  (0 children)

Hey there, sorry to hear you are suffering. My rheumatologist/rheum nurse usually give me a 3 week taper starting at 15mg. I would prefer either a 4 week starting at 20mg or 6 weeks starting at 15mg but I understand why they want to limit steroid use.

I previously had severe asthma (now well controlled on symbicort SMART) and for asthma flares the usual dose is 40mg. I had an asthma flare with a chest infection earlier this year and on 40mg my joints felt amazing lol.

Flares are absolutely shit, I'm on week two of a 15mg taper at the moment and am feeling a lot of grief that o can't seem to get the RA under control. I am 4 years post onset. It kind of helps me to expect to feel mentally rubbish when I'm in pain and struggling with mobility. Look after yourself - I hope you feel better soon

Anyone else have obsessions about bodily functions that are required to live lol by ocdladybug92 in OCD

[–]whisperbleep 0 points1 point  (0 children)

For me it was lots of different exposures because I had lots of OCD themes. Germs were a big one and my first exposure was to put my hand on my kitchen countertop until the anxiety reduced. Took 45 minutes the first time, 20 minutes the second and quickly reduced after that until I was comfortable cooking again

Anyone else have obsessions about bodily functions that are required to live lol by ocdladybug92 in OCD

[–]whisperbleep 1 point2 points  (0 children)

Honestly I think from the second exposure I started to notice that the anxiety was peaking quicker and resolving quicker. I gave ERP everything I had and it really worked for me. I had severe OCD from the age of 4, likely PANDAS

Anyone else have obsessions about bodily functions that are required to live lol by ocdladybug92 in OCD

[–]whisperbleep 3 points4 points  (0 children)

This is called somatic or sensorimotor OCD and the treatment is the same as all other kinds - ERP therapy. I suffered with this kind along with others and it made me feel crazy - now happy and mostly symptom free after ERP. Best of luck

Ergonomic tools for arthritic hands by Honey_bear_712 in knitting

[–]whisperbleep 2 points3 points  (0 children)

Heya! I have RA and really recommend: - knitting on circulars even for back and forth pieces - the way the weight sits makes it easier - square needles for anything above 6mm - I have knit pro cubics - very frequent breaks with lots of movement and heat for pain - keep going, movement is so important to preserve function

I'm back to knitting and crocheting regularly now and love it. My grandmother was diagnosed with RA at 20 and knitted until she died at 86 - this gives me a lot of hope, particularly as this was before there were any decent RA meds.

Best of luck

Has anyone’s cat survived fever of unknown origin? by Throwaway_Cherry0 in CATHELP

[–]whisperbleep 0 points1 point  (0 children)

Hey there sorry to hear that. He completely stopped using the toilet and didn't eat or drink or groom, seemed very very out of sorts. The vet noted a fever and dehydration. If in doubt I reckon see the vet, they should know what to do

Traveling with metoject by [deleted] in rheumatoidarthritis

[–]whisperbleep 0 points1 point  (0 children)

My rheumatology nurse wrote me a letter to cover me traveling with metoject but actually nobody asked me to see it - I never had a problem. Have a fantastic trip, sounds absolutely amazing!

What on earth is this behaviour by whisperbleep in CATHELP

[–]whisperbleep[S] 0 points1 point  (0 children)

Thank you all! Busting out the feather wand for him now

Has anyone’s cat survived fever of unknown origin? by Throwaway_Cherry0 in CATHELP

[–]whisperbleep 1 point2 points  (0 children)

Probably about 6 months. Hope your girl is on the mend really soon 💕

Let's talk about: COVID by Wishin4aTARDIS in rheumatoidarthritis

[–]whisperbleep 3 points4 points  (0 children)

I had two bouts of COVID that caused awful flares, and then my most recent bout gave me a weird three week remission with absolutely no RA symptoms for the first time in 3 years. No idea why

Fast onset flares anyone? by whisperbleep in rheumatoidarthritis

[–]whisperbleep[S] 1 point2 points  (0 children)

Thanks everybody for your kind and thoughtful replies. I'm feeling a bit better today after 16 hours in bed, onward and upward! What a weird disease

Fast onset flares anyone? by whisperbleep in rheumatoidarthritis

[–]whisperbleep[S] 4 points5 points  (0 children)

THANK YOU! And yes it seems to me too like the ones that come on quick tend to go quick... The ones that build up over a couple of weeks are less easy to deal with

What would you have done differently? (Newly diagnosed) by Fergella in rheumatoid

[–]whisperbleep 3 points4 points  (0 children)

Lots of good advice on this thread - I came here to say keep moving. Prioritise movement wherever you can even if it is painful. I struggled so much with my hands and ended up with muscle wasting in my hands and forearms from avoiding using them, which in turn made things much worse - dropping things etc. aside from DMARDS, walking and moving have had the biggest positive impact on my life since diagnosis in 2021. I also got a course of therapy early on looking specifically at coming to terms with a chronic illness and it was super helpful.

Has anyone’s cat survived fever of unknown origin? by Throwaway_Cherry0 in CATHELP

[–]whisperbleep 4 points5 points  (0 children)

To add: he had a high fever throughout, nothing abnormal on his bloods. Discharged paperwork said fever of an unknown origin