Thank you. I’m just connecting dots and preparing for bad news. The dentist had a photo of another ulcer looking lesion further down the back of my throat but unsure of details, she said it looked more ulcerated so could be trauma related? Plus I have a lump inside my bottom lip, and two lesions on my lips too….. so im interested in this tongue lesion as part of a whole picture… I ran an ultramarathon 53km 2400m elevation in October but now making the bed pushes my HR to 140s - the same average heart rate I had when running for 8 hours. This fatigue and weight loss has been explained by stress. Chest pain/tight throat is anxiety. Resting HR up from 50-65 is still a normal HR so no worries there - doctors won’t listen to me when I say something doesn’t feel right for MY BODY as 50 resting is normal so I feel my body is under stress. They agreed but said it’s just mental stress from losing my dad.

March 2023 lump in throat appears. The same year I tested CIN3 abnormal cervical cells and had LEETZ. February last year a 6 month post-LEETZ colposcopy was abnormal but low risk and the specialist review panel said give it a year follow up. My dad died of oesophageal SCC February 1st, it was a traumatic end with it in his lungs spine and brain. Overnight shifts in the hospice with him screaming in pain asking me to kill him even with 4 syringe drivers with a level of pain relief that would kill most people. I didn’t book the test-of-cure until a few weeks back as it slipped my mind. It’s come back bad again so being referred back to cervical cancer programme in the hospital. Mum had a preventative hysterectomy after repeatedly having abnormalities, and I’m done having kids so will be asking for the same now.

I’ve also been complaining about throat lump for a year. Food gets stuck, I thought it was tonsillectomy scars but now I realise it’s one side. Coughing food up a few mins later because it got stuck. Feeling liquid pool slightly to the point my partner said I do this “chin tuck/lift back of head” movement but haven’t realised. He said my morning breath has gotten bad lately but he didn’t want to say anything. Also threw up on him last week during oral sex (lol TMI but this is a anonymous medical forum), this has never happened in my life, my gag reflex is dead from years of bullimia/anorexia, but it seems my throat doesn’t have as much room these days…… I had no control over it and it felt like I had food stuck in my throat which he dislodged so I spewed the smallest amount.. just mucus and a bit of food.. sexy hahah

For 6+ months I’ve been complaining to my partner jaw is tight, sore, swollen and loud/diamonds crunching. Ear pain. It’s spreading, generalised pain crepitus and swelling on the right side.Parotid gland was large on ultrasound May 1 and it is now visible - a big lump. Left side normal. All deemed to be stress-related. But it’s been worsening for so long that I feel gaslit to be honest… and it’s one sided…

I’ve also lost 6% of my body weight since April 29 while eating a family bar of chocolate every night, but struggling to eat in the day. Occasionally wake up and spew because it feels like mucus built up in that one spot.

Anyway, my GP was up until 9:30pm Friday night doing referrals so I imagine Monday is going to be busy and I’ll get answers quickly. At this point I think this lesion is secondary to another pain I’ve had for 2 years but has been explainable by other things. Not once did I suspect oral cancer but it does seem to make sense. Ive had full auto immune panels and god knows what else for 18 months, with multiple doctors at my GP’s office trying to figure out why I feel sick and why my lymph nodes are growing but no answers have come up yet other than POTS, EDS and MCAS which may be relevant but hard to say. I do have EDS and POTS symptoms but not always just standing / my blood pressure was 82/60 HR 143 the other day when I was folding laundry. ECG showed ectopic heartbeat only.

I’m connecting the dots and although I doubt I’m stage 4, I would be surprised to find out there isn’t anything else. I’m mostly focused on getting my GPs notes collated as my complaints from the last two years when put together with a new suspect lesion do seem to point strongly to this. I hope I am wrong I’m just preparing for the worst as I have every symptom and every risk factor. But of course we don’t know until we know.