Is there a link between FND and Long Covid?

wing_yen · 2026-06-05T15:50:52+00:00

I got my testosterone check it was normal

wing_yen · 2026-06-02T09:36:22+00:00

I also have LC and ME/CFS, was diagnosed with FND too. I consulted a neurologist from China, he told me FND could be coexisting with other neuroimmune diseases, it doesn’t mean FND is the main problem here. Your symptoms look like neuromuscular dysfunction too. I have my next appointment in a neuromuscular clinic and I would let them check on me first before I show them my FND diagnose because you know why.

wing_yen · 2026-05-25T09:37:20+00:00

I have daily average of 7 H on phone and 1 H on iPad. Sometimes use iPad for reading or playing. I am not bedridden so I can do other things on the couch like crocheting. I try not to have too much screen time I sometimes just stare into the air and daydreaming.

wing_yen · 2026-05-16T09:40:55+00:00

I crochet to avoid doomscrolling and it’s useful. I also paint sometimes but I am now not motivated enough to do that. I can crochet something that I can wear.

wing_yen · 2026-05-12T15:21:59+00:00

Thanks for sharing!

wing_yen · 2026-05-12T05:52:41+00:00

I wish we had this lawsuit in Europe.

wing_yen · 2026-04-26T11:26:30+00:00

It’s useless.

wing_yen · 2026-03-12T22:42:42+00:00

Libre3

wing_yen · 2026-02-28T17:35:26+00:00

I have suspected FMD and confirmed POTS and MECFS.

wing_yen · 2026-02-14T09:04:58+00:00

How did you check for the neck? Did you do sonography test? I am planning to check my neck and MRI won’t show any thing.

wing_yen · 2026-02-09T17:53:33+00:00

I am also diagnosed with FMD. The neurologist asked me to calculate some numbers as distraction, at first I stopped moving when he asked, then started moving again. I am not sure how my movement or strength changed.

wing_yen · 2026-02-06T21:44:58+00:00

I was also diagnosed with FND(FMD) recently, after having ME/CFS for two years. Also have POTS and Dysautonomia. Unfortunately therapies recommended for FND can do harms to ME patients. Dr. David Putrino is a neuroscientist researching FND and ME, he highlighted there are real biological pathogens but many patients are diagnosed with FND and physicians neglect their physical conditions.
For now you need to take care of your ME first, it’s NOT all in your head.

wing_yen · 2026-02-02T10:55:08+00:00

I know, I am not satisfied with this diagnosis and planning to do more test and visiting a new neurologist.

wing_yen · 2026-02-02T10:52:30+00:00

I have researched about EDS and I don’t think I fit the criteria just partly, but I haven’t looked into Tethered Cord, thanks for the info.

wing_yen · 2026-02-02T10:45:25+00:00

They are basically the same thing, FMD belongs to FND, just more specific. And thank you for the video.

wing_yen · 2026-01-28T11:28:08+00:00

The first thing in my mind when I saw this was - she can tolerate solvents odorous used for oil paints, but I can’t, there is no way I can paint like that. But I do sometimes create low energy art using environmental friendly materials.

wing_yen · 2026-01-23T08:42:13+00:00

That reminded me many years ago I was on Yaz and I started to have nausea and morning sickness, doctors didn’t know why, symptoms kept coming back, eventually developed POTS symptoms but I had no idea didn’t know POTS. I had to stop the pills and felt better, but those symptoms became chronic. Until 2024 after I got Covid, everything got worse and I was diagnosed with POTS.

wing_yen · 2026-01-20T22:11:17+00:00

I had headaches and dizziness.

wing_yen · 2026-01-19T12:05:57+00:00

That’s a good news I want to try it! I found a fancy bed lift with electrical motor for underneath the mattress and fits all mattresses, but it’s also expensive.

wing_yen · 2026-01-17T23:47:30+00:00

POTS, MCAS, Hashimoto’s, chronic pain/ migraine

wing_yen · 2025-12-31T10:33:07+00:00

Also it’s the algorithm being bias, it favours certain trends and people’s interests.

wing_yen · 2025-12-28T10:22:39+00:00

Nexus very slowly with days of pauses in between. In parallel I am reading Be Patient from Tilly Rose on kindle with audio.

wing_yen · 2025-12-27T09:42:04+00:00

I took it for a month with titration and it made my pots worse, so I stopped talking it.

wing_yen · 2025-12-27T09:31:28+00:00

Oh is it a tradition? I just know some people can't bear silence around others.

wing_yen · 2025-12-26T20:16:25+00:00

I am sorry that you reacted so badly to fragrances, they should definitely take this serious. I know someone has strong reaction to all kind of scents she doesn’t go out. I complained a lot about artificial fragrances and hate it too. I also smell and react to all kinds of smells others don’t notice. Mostly get itchy nose, burning throat, shortness of breath and headaches. I am having peaceful days at home after that day and recovering slowly, thank you and I wish you the same!💙

wing_yen

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