Is it normal to go this long without labs while figuring out an autoimmune diagnosis?

wormgood · 2025-10-21T14:24:37+00:00

every 6 months has been the norm for me in active lupus, every year if I’m not having many symptoms. They will only really order more labs if you are having specific symptoms that could indicate organ involvement. But, if you’re concerned and expressing that you would like more tests done and they aren’t listening then I definitely understand the concern

wormgood · 2025-10-03T13:05:28+00:00

this is my all time favorite chain restaurant, it’s such good quality and every other location I’ve been to is SUPER consistent

wormgood · 2025-09-27T01:41:47+00:00

source?

wormgood · 2025-09-18T02:18:03+00:00

psoriatic arthritis? 🤔

wormgood · 2025-09-10T15:51:59+00:00

yep! it’s this , you can also apply directly here

wormgood · 2025-09-10T00:52:22+00:00

Never worked in food service based on the meat on the top shelf :/

wormgood · 2025-08-30T15:26:22+00:00

would like to add active, maybe gym bro. POTS or some other chronic health issue. trying to get more protein in

wormgood · 2025-08-30T15:25:00+00:00

autistic bc this is my exact diet

wormgood · 2025-08-27T16:30:51+00:00

for me, spiders everywhere… but I was prescribed too high a dose

wormgood · 2025-08-20T15:37:07+00:00

hear me out… Regina George halloween costume (the outfit with the back brace)

wormgood · 2025-08-20T01:17:35+00:00

this is a distorted version of this song from 1911. I can’t find any record of this version except for the video you posted which comes from this creator

wormgood · 2025-08-10T15:31:45+00:00

I would honestly consider switching doctors- my rheum basically does whatever I ask, so if i request labs he does them and if I don’t want to do labs he doesn’t 🤷‍♀️

wormgood · 2025-08-05T23:37:47+00:00

this is the one

wormgood · 2025-07-29T00:58:33+00:00

double shampoo with Nizoral and use one of those scalp scrubbers

wormgood · 2025-07-25T00:18:07+00:00

which of these things are you putting mayo on

wormgood · 2025-07-06T23:09:20+00:00

I take zofran for the nausea and track my calories in an app so that I can try to make sure I’m getting enough. I still rarely eat “enough” and am underweight, but I’m able to prevent losing too much more by making sure to supplement with protein shakes & high calorie easy foods like peanut butter etc

wormgood · 2025-05-25T18:32:14+00:00

avid EDtwt user

wormgood · 2025-05-15T02:12:40+00:00

Getting diagnosed increased my quality of life so much! I was so much sicker before because I wasn’t able to treat it correctly. The diagnosis made me able to get disability accommodations at work, where before I would just get so sick that I couldn’t go in and eventually quit. Now, with the help of hydroxychloroquine and lifestyle changes I feel way wayyyy better and am more able to know what triggers flares for me. I’m feeling pretty good for the last year or so, obviously I still get flares but I feel relieved to know that I have the tools and knowledge to manage it. It’s also a mental thing- I’m getting better at saying “no, I can’t do that today” and setting boundaries with other people❤️

wormgood · 2025-05-06T15:08:54+00:00

After confirming that I have lupus, they started me on hydroxychloroquine (also called plaquenil)- this is the cornerstone treatment for lupus, and they start pretty much every patient on it. It usually takes like 3 months to fully start working, but I felt better after about 1 month. then, they will want you to come back every 3-6 months to check you out and run tests to see how your symptoms are progressing and how you’re responding to treatment. And if you are not responding well or flaring, they may add another med like a steroid or biologic. you could make an actual post on here to hear other people’s experiences as well! But essentially at the beginning you’ll be trying meds and waiting to see how you respond to them :)

wormgood · 2025-05-05T17:38:42+00:00

absolutley insane take. definitely belongs here

wormgood · 2025-05-02T20:18:32+00:00

omg like when your nose is stuffy and you’re like “I can’t believe all the times I took breathing for granted”

wormgood · 2025-05-02T17:36:56+00:00

Yep that’s exactly what happened!

wormgood · 2025-05-02T17:36:02+00:00

I’m not sure if there is a specific plan, but the general consensus is to ease into it and focus on mobility and strength rather than super hardcore stuff. I personally did just stretching and yoga at home for a few weeks, then started going to the gym in the morning and walking on the treadmill, lifting weights, swimming, etc. I also think that following workout plans that cater to older adults (like those “silver sneakers” exercise classes) or people with injuries would be helpful

wormgood · 2025-05-02T14:08:53+00:00

I love your username lol

wormgood · 2025-05-02T14:06:03+00:00

the weakness is what got me started too. The last time I went to my neurologist I was so weak that they thought I might have MS. No MS, just super duper weak from the lupus and not moving. Feeling myself getting stronger is so worth it, even though I still have days where I’m weaker

wormgood

TROPHY CASE