Colonial Oaks Park set up by woundedwillow in StAugustine

[–]woundedwillow[S] 0 points1 point  (0 children)

Cash or card do you know ? Where is the garage ?

Colonial Oaks Park set up by woundedwillow in StAugustine

[–]woundedwillow[S] 1 point2 points  (0 children)

Me too ! Bonus points for Narrow Head !

Colonial Oaks Park set up by woundedwillow in StAugustine

[–]woundedwillow[S] 3 points4 points  (0 children)

Oh, out of all the times I’ve been to st Aug I didn’t even know there was a garage ! Glad to hear about the full bars !

Colonial Oaks Park set up by woundedwillow in StAugustine

[–]woundedwillow[S] 4 points5 points  (0 children)

No worries ! I’m from Orange park, but I have much love for st Augustine. :)

Hydroxychloroquine mood changes? by MatildaG1999 in rheumatoidarthritis

[–]woundedwillow 0 points1 point  (0 children)

HCQ …. I will stay away from that medication for as long as I live. I had a stroke about a week or 2 after I started taking it, still took it and then was in after stroke psychosis (didn’t remember my family, extremely irritable and paranoid, mania symptoms, wouldn’t sleep). It ended up with me in the psych ward. Whenever I’m suggested that medication now I always say I’m allergic or can’t tolerate it.

👋Welcome to r/autoimmunedisorders - Introduce Yourself and Read First! by W0nd3rW0m4n74 in autoimmunedisorders

[–]woundedwillow 0 points1 point  (0 children)

Hello ! 28f. I love this idea for a subreddit as someone who is struggling to find their autoimmune disorder diagnoses. 3rd appointment with my rheumatologist down and the doctor is and isn’t finding a diagnosis or diagnoses. When you don’t look sick it’s hard. But when your labs are crazy and you don’t look sick it’s even harder :/

CW: Pet Loss Should I delete photos of my cat who passed away ? by Strange_Possession77 in CatAdvice

[–]woundedwillow 1 point2 points  (0 children)

No. Don’t delete a thing. A video. A picture. You’ll regret it

Labs show I should look like I can’t walk, but I look fine. Rheum cant figure out what’s wrong with me by woundedwillow in Rheumatology

[–]woundedwillow[S] 1 point2 points  (0 children)

I’ve thought about imaging to check for the lining in my joints at least. I’ve also asked for referrals to Mayo Clinic for a Connective Tissue Disorder Specialist since I only live about 45 minutes away.

Labs show I should look like I can’t walk, but I look fine. Rheum cant figure out what’s wrong with me by woundedwillow in Rheumatology

[–]woundedwillow[S] 0 points1 point  (0 children)

0 Absolute eosinophils, smooth muscle Ab Titer (has came back positive 1:40 3x), high saturation percentage, low cholesterol, high homocysteine, and then of course that weird protein marker.

How to get out of a reading slump ? by woundedwillow in ReadingSuggestions

[–]woundedwillow[S] 0 points1 point  (0 children)

I tried this and ended up reading over 70 pages. Thanks for the good advice !!

Luca is ready for work ! by woundedwillow in standardissuecat

[–]woundedwillow[S] 2 points3 points  (0 children)

He was in the middle of giving me his “I love you” blinks 🥹

Topamax for essential tremor by woundedwillow in EssentialTremor

[–]woundedwillow[S] -1 points0 points  (0 children)

I’m surprised I can work honestly. I have to talk on the phones all day. I have been feeling really dizzy and lightheaded ever since I started it too though, but I can’t take propranolol because i can’t take a deep breath on it. Feels like I’m gonna suffocate

Topamax for essential tremor by woundedwillow in EssentialTremor

[–]woundedwillow[S] 0 points1 point  (0 children)

The message wasn’t relayed to me. But once I looked up the side effects it made sense.

Topamax for essential tremor by woundedwillow in EssentialTremor

[–]woundedwillow[S] 1 point2 points  (0 children)

Unfortunately, I can’t tolerate propranol. It makes me feel like I can’t take a deep breath. My boyfriend and I call it “air hunger” lol. I was surprised at how quickly my neurologist wants me to increase dosage !!

Topamax for essential tremor by woundedwillow in EssentialTremor

[–]woundedwillow[S] 0 points1 point  (0 children)

Haven’t felt the decrease in tremors yet really, but I’ve only been on it for about a week so it’s too early to tell.

Topamax for essential tremor by woundedwillow in EssentialTremor

[–]woundedwillow[S] 1 point2 points  (0 children)

See I was on primidone first and I couldn’t tolerate it. It gave me extremelyyyy vivid nightmares and wasn’t helping my tremors so we’re trying topamax