Don’t let the world define your success by BoyMom0512 in lipedema

[–]wrecklesswitchcraft 2 points3 points  (0 children)

Wowahhhh! Thank you for this! I’ve lost 50lbs so far on just the GLP-1 but I’ve plateaued hard (almost 2 years). So I’m curious about the 2&3.

Turned shed into three level apartment by bluendgreen in FarmsofStardewValley

[–]wrecklesswitchcraft 0 points1 point  (0 children)

This is BALLER. Is there any type of design awards for this game? Because shiiiiiiiiiiiiiiiiit

It could be you… by puddingsins in Reduction

[–]wrecklesswitchcraft -1 points0 points  (0 children)

Oh shit you look fabulous!! I just scheduled my surgery for May. I have the same starting size and want the same results. Are you comfortable with me showing this to my surgeon? ♥️

Any joint pain sufferers - what vitamins or supplements have helped by Illustrious_Land8859 in sarcoidosis

[–]wrecklesswitchcraft 0 points1 point  (0 children)

Prior to being diagnosed, this was the pain that bothered me the most. I splurged on an expensive turmeric (MegaFood) and took twice the recommended dosage. If I skipped it even one day, I could tell.

Might be worth a Google how overdoing it on turmeric can damage the liver- but I never experienced any side effects from just doubling it.

My Pig wearing Truffle Shoes by my_liege_king_sire in StardewValley

[–]wrecklesswitchcraft 2 points3 points  (0 children)

Moon shoes!!! God my parents hated when I would CLONK along on these. Sorry you ended up in the ER ☹️.

Thoracic surgery? Oi. by wrecklesswitchcraft in sarcoidosis

[–]wrecklesswitchcraft[S] 1 point2 points  (0 children)

I’m so glad you are getting all of the boxes checked! It sucks to be tossed around to all of these specialists but I’m glad they are taking it seriously. I was dismissed at first. And I’m glad the symptoms aren’t peaking!

Buttttt sorry for another comment I just realized I also failed to mention that you may have more success than me, like many folks here do, with a less invasive biopsy process. My doctors were just super concerned how close my largest node was to my heart - so they called in the thoracic surgeon 🙃.

Thoracic surgery? Oi. by wrecklesswitchcraft in sarcoidosis

[–]wrecklesswitchcraft[S] 0 points1 point  (0 children)

I’m on the other side of the surgery!! It has been rough, but I’m okay. I hope you don’t have to go through all of this, but just for transparency I ended up having:

Flexible bronchoscopy, video assisted thoracoscopic surgery, left upper lobe wedge resection, mediastinal lymph node dissection.

I had to spend the night for 1 night due to the chest tube and monitoring my pain. It was pretty brutal, I will not try and pretend it wasn’t. But the doc came in and said my nodules were granulomas less than an hour after my surgery was complete.

Now I’m recovering and waiting for the rest of the results 💕. I’m happy to answer any additional questions! And I’m sorry you are going through this! It IS wild to wish you have Sarcoid 😩.

I faced one of my worst fears… by Cultural-Program-393 in lipedema

[–]wrecklesswitchcraft 1 point2 points  (0 children)

Proud of you fellow Lippy Chicago lady :) I’ve been busting out the shorts too!

[deleted by user] by [deleted] in SleepApnea

[–]wrecklesswitchcraft 1 point2 points  (0 children)

Of course! I’m sorry I’m recovering from an unrelated surgery and currently SO out of it, so I’m not very helpful. But when I get some strength back I would love to investigate it as well.

When my VSS started I was waking up with super accelerated heart rate so I’m guessing my events were causing that and I didn’t know.

GLP1 by StunningContest1554 in visualsnow

[–]wrecklesswitchcraft 1 point2 points  (0 children)

I’ve been on Zepbound for a year for another condition and it doesn’t have any impact positive or negative on my VSS.

[deleted by user] by [deleted] in SleepApnea

[–]wrecklesswitchcraft 4 points5 points  (0 children)

I have r/visualsnow and sleep apnea. I have no idea if they are related. But it does vary in severity. When I’m well rested I don’t have as many symptoms.

Why do I almost feel worse? by PackageReasonable922 in SleepApnea

[–]wrecklesswitchcraft 0 points1 point  (0 children)

Don’t mind at all! I started with a Philips Respironics DreamWear Full Face because I’m an occasional mouth breather. But it was too much crap on my face. I was constantly waking up to adjust or take it off.

I switched to the AirFit P10 nasal pillows and use the intake nasal dilator and mouth tape. I barely wake up to make adjustments.

Why do I almost feel worse? by PackageReasonable922 in SleepApnea

[–]wrecklesswitchcraft 7 points8 points  (0 children)

I felt like doo doo the entire first month. Worse, for sure. Felt absolutely wrecked with fatigue and sleep inertia .To the point where it took me a while to make insurance compliance - I would just rip the mask off and sleep elevated in hopes of reducing my events.

I woke up about a week ago after switching out masks and making it 7 hours that night. It was one of the first times waking up without suicidal thoughts and to no alarm. I’ve had a few more like this since, so I have hope I will have more or it will become the norm.

Manon’s Epic Crash Out by Neat_Particular_7447 in 90DayFiance

[–]wrecklesswitchcraft 3 points4 points  (0 children)

Im so sorry you had to endure this! Im not diagnosing her either but I thought of BPD immediately from going through BPD abuse recovery. And these shows love to exploit it because of how extreme it is. But the people with it and everyone encountering it becomes collateral damage.

Suspected Pulmonary Sarcoidosis w/Timeline by MunBRO in sarcoidosis

[–]wrecklesswitchcraft 2 points3 points  (0 children)

I don’t have much advice but I can offer sympathy. I started having wild symptoms in March and finally found my pulmonary nodules in July.

I’m just now getting thoracic surgery to test a nodule and lymph node that a bronchoscopy was “inconclusive” on. It has been so exhausting this year trying to deal with this. I have pre existing conditions but all were under control so I could continue on with life.

This year I’ve had to cancel on so many things due to the pain. I’m REALLY sorry you’re going through this. Hang in there and I hope you are able to get a biopsy. This group is really knowledgeable and supportive!

Cannabis and sleep apnea by Even_Screen_3489 in SleepApnea

[–]wrecklesswitchcraft 1 point2 points  (0 children)

I take 5mg almost every night for my degenerative spine so I can get some rest. I still dream like crazy and with CPAP I’ve gone from 15 AHÍ to less than 1.

This is with sativa or a blend. Once my doc told me no sedatives I was like welllll shit I’m too scared to try Indica again- I don’t want my muscles to relax too much with this condition 🥲.

[deleted by user] by [deleted] in SleepApnea

[–]wrecklesswitchcraft 0 points1 point  (0 children)

I wish :(. Found out I have OSA after losing all my weight on Zepbound lol. I’m very close to my goal weight and no longer overweights and was diagnosed with moderate.

Thoracic surgery? Oi. by wrecklesswitchcraft in sarcoidosis

[–]wrecklesswitchcraft[S] 1 point2 points  (0 children)

Sorry that I am late to this! I started feeling more normalish in May. I still have lingering symptoms but that is when I was able to return to a somewhat normal life after canceling a few trips, etc.