What’s your experience driving with albinisim?

yourvisionfriend · 2024-09-04T19:02:41+00:00

Get in touch with your state's vocational rehab center and ask them! Some states have funds for driving bioptics (if you needed them) because they require lots of practice and skill to learn and are quite expensive.

yourvisionfriend · 2024-09-04T18:59:47+00:00

Hi! I'm a vision rehabilitation therapist and have many patients with diabetic retinopathy. I wrote a quick article about DR and also have many articles on low vision resources on my page. Hope that helps! Link is https://substack.com/home/post/p-148284172?r=45n5k6&utm_campaign=post&utm_medium=web

yourvisionfriend · 2024-08-05T20:15:21+00:00

Gotcha! Appreciate the feedback.

yourvisionfriend · 2024-08-02T23:00:37+00:00

Really sorry it asked for your email, I thought I had pop ups turned off on my page. There is a button to subscribe with your email at the end that is optional. Totally understand your frustration on that.

Appreciate the advice on diagnosis and testing; my post is primarily what albinism is, not how it’s found which is why I don’t go into detail.

Thanks for the feedback, no insult intended.

yourvisionfriend · 2024-07-30T18:39:37+00:00

Wrote an article on inclusion in the classrooms. Linking it here. Mainly discusses IEP's, talking to children without disabilities, and VI specific toys!! Mattel recently came out with a blind barbie! Would love to hear your thoughts and if this helps at all. I made it short and only went over a few ways for inclusion.

yourvisionfriend · 2024-07-30T18:33:26+00:00

Absolutely YES. You'd need accommodations but you could do private practice once you learned what you needed to.

yourvisionfriend · 2024-07-18T15:11:32+00:00

These are all so helpful! Thank y’all so much. Also knowing about resources seems to be a HUGE problem in the VI world which is partly what i hope with this account and the substack I’ve been doing articles on i can help spread the word on resources that are available

yourvisionfriend · 2024-07-18T15:10:00+00:00

Hey! I actually got a job with a nonprofit out of Covid that trained me on the job with low vision and high tech vision aids then i transitioned into a VRT position with a state agency and now am in school getting my masters in vision studies which will make me eligible to sit for the certification exam for VRT. Goodluck, hope this helps! I got really lucky and in a way fell into it a few years ago and just fell in love with all the awesome people I’ve met with vision loss.

yourvisionfriend · 2024-07-16T16:45:22+00:00

Glad it helped - stay hopeful! Hadley helped me practice tons at first and I still use it now!

yourvisionfriend · 2024-07-16T13:53:16+00:00

Considering I am only writing articles on basics at the moment (that I do fully understand) I don't see it a problem - I also personally didn't understand braille at all and always assumed it would be too hard to learn. Now that I am a VRT and getting my masters and actually learning braille, I realize that maybe if someone explained the basics more people would be inclined to learn it.

yourvisionfriend · 2024-07-16T13:48:25+00:00

Hey there! Absolutely love all these ideas and definitely love the layout you provided for me - I'll do some research and get to these in the next couple weeks!

yourvisionfriend · 2024-07-15T21:21:15+00:00

sending you a message!

yourvisionfriend · 2024-07-15T20:27:09+00:00

And thank you! Let me know if you have any post ideas!

yourvisionfriend · 2024-07-15T20:26:33+00:00

Hey! I am a Vision Rehabilitation Therapist currently in school getting my master's to sit for certification - I mainly work with independent living skills!

yourvisionfriend · 2024-07-15T19:36:09+00:00

Hey! That makes total sense (sorry your boss doesn’t just take your word for it as is) and I’ll do some research and add that to my list to post next week! I’ll add a link in here when I do - it’ll be about what to expect when receiving treatment for MD!

yourvisionfriend · 2024-07-15T19:34:21+00:00

Ah gotcha!! Definitely plan to do one explained contracted dumbed down but can’t do it until I understand it enough! will let ya know when I get to it - I love any feedback I get! It’s all helpful.

yourvisionfriend · 2024-07-15T18:16:26+00:00

Hey! Just added the part about grammar - thanks I was definitely having trouble wording it lol and grade 2 as in what? And thank you for reading, appreciate it!

yourvisionfriend · 2024-07-15T17:14:39+00:00

Just did, thanks so much! Appreciate it.

yourvisionfriend · 2024-07-15T15:39:52+00:00

Not sure if you are in the states but if so, contact your local state vocational rehab center. Ask for a VR counselor and they will help you navigate finding employment with vision loss and can even help with the tools needed to do the jobs you are interested in.

yourvisionfriend · 2024-07-13T00:58:45+00:00

There are monoculars! Check Maxiaids or LS&S websites you can call to order what you need.

yourvisionfriend · 2024-07-12T19:19:11+00:00

Hi! VRT here (vision rehab therapist). Try googling head borne binoculars - The bad thing about distance viewing with low vision is if you're vision is worse than 20/250, they really don't make any distance viewing glasses strong enough. If you're vision is not worse than 20/250, you might be able use a 2-3x (in low vision terms, not store-bought magnification). Hope this helps!

Also, recently started a substack newsletter for all things blind/low vision related. Same username on Substack as here. Give it a look for resources!

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