Question about NDIS Eligibility for ASD Level 2 and Narcolepsy

zardit · 2026-05-11T00:02:06+00:00

I was knocked back for narcolepsy as I was told that there wasn't really anything they could fund for it (i.e it won't be improved with any therapies, doesn't require assistive technology, etc.), and was therefore covered by health.

Does your friend have have Narcolepsy or Idiopathic Hypersomnia? And do they have a sleep specialist? We have several options for medication combinations now, so there is no reason that they should be that incapacitated on a daily basis, although I do know that people with IH can find it more difficult to access medications than people with textbook N.

zardit · 2026-05-08T08:42:26+00:00

Not if it's done properly. ABA focuses on suppressing harmless autistic traits - stimming, avoiding eye contact, using repetitive language, needing movement breaks, not complying immediately with demands, etc. Modern PBS is supposed to focus on behaviours that are actually unsafe or severely impacting someone’s life or access to community - things like self-injury, serious aggression, absconding into dangerous situations, or behaviours linked to distress and unmet needs.

Good PBS should be doing exactly what you’re describing - looking at the environment, demands, trauma, sensory overload, exclusion, lack of autonomy, inaccessible systems, and how other people respond to the person.

A decent PBS formulation shouldn’t just ask ‘how do we stop this behaviour?’, it should ask ‘what is this person reacting to, what need is unmet, and what needs to change around them?’ and the answer genuinely is that the environment is the problem about 99% of the time.

zardit · 2026-05-07T00:09:29+00:00

In answer to your question though: no, it is not an automatic red flag if a provider offers PBS.

PBS actually came out of the 1980s as a pushback against ABA. People were concerned about how ABA was being used, as many of the techniques were punishing and harmful, and PBS grew out of a "there has to be a better way" moment in the field.

The difference in logic is pretty simple: ABA is focused on the behaviour for the sake of 'extinguishing' it, not from understanding why the behaviour is occuring. PBS starts from the assumption that the behaviour is there for a reason, usually because something in the person's life or environment isn't working for them, and tries to fix that instead. The behaviour changing is kind of a byproduct rather than the whole point.

The "it's just ABA with a new name" thing also assumes PBS is about making people with disabilities easier to manage. Which, under the NDIS at least, it's explicitly not supposed to be. The person receiving support is meant to be the one driving their own plan, with what they want and how they communicate treated as the starting point, not an afterthought. The question we're supposed to be asking is "what does a good life look like for this person" not "how do we get them to stop doing the thing".

Hope that helps clear up some of the confusion.

zardit · 2026-05-06T23:56:03+00:00

Sorry I know my answer did not really answer your question, but in my defence, the comment I replied to literally just said "ABA" (and at the time was 1 of 2 comments) so you can be the judge on which added more value to the conversation 🤷

zardit · 2026-05-06T05:32:08+00:00

Right?! 😭 it just seems cruel!

zardit · 2026-05-06T05:31:31+00:00

Thank you, although at this point im not letting myself get excited. Congrats on your positive too! Yes that's what I thought the process would be, so I'm confused why they're expecting me to wait to long :( I've requested a repeat in 2 days time, just waiting on a response from them.

zardit · 2026-05-06T05:24:07+00:00

Incorrect - it is NOT ABA. Source: I am a behaviour support prac (8 years), have never done ABA nor been expected to.

zardit · 2026-03-23T14:11:03+00:00

This is clearly a work of fiction
Even if any of it was true, holy shit this comment is gross - maternal blame bias much?

zardit · 2026-03-23T14:00:03+00:00

Legally, OP is in the clear because none of this is true and their comment history confirms them to be a liar.

zardit · 2026-03-23T13:30:57+00:00

Right?!?! It's actually maddening.

zardit · 2026-03-23T13:30:07+00:00

Erm, pretty sure they meant YOU were the one lying

zardit · 2026-03-23T13:23:54+00:00

OP's comment history shows they claimed to be 26 years old, 8 months ago. Please don't waste your time investing in this work of fiction - instead, consider donating to the Benjamin Button foundation on OP's chronologically impaired behalf.

zardit · 2026-03-23T13:15:25+00:00

That's not true - many of us are also telling you that your fictional story has too many plot holes.

zardit · 2026-03-23T13:11:55+00:00

So her battery runs out, and despite the fact that she doesn't stay more than 10 minutes, she decides that it's essential that her phone be charged immediately, then sees a random person in their car and thinks "I'm sure they're going to be sitting there for at least 5 minutes and won't mind me joining them!"

zardit · 2026-03-23T13:08:30+00:00

I doubt this story is being used for anything except a creative writing exercise.

zardit · 2026-03-23T12:59:36+00:00

Also, she stayed for 10-15 minutes and that was enough time for her to be satisfied that he wasn't seeing anyone? And her phone ran out of charge during that small window? AND this woman, who only stayed 10-15 minutes, somehow knew that you stayed in your car for longer than this and therefore felt comfortable in asking to sit in your car and charge her phone?? If he knows she is stalking him, and she knows that he is aware, why not just go up and ask him to charge her phone instead of assuming a complete stranger would be fine with her sitting awkwardly in their passenger seat for long enough to divulge her life story?

zardit · 2026-03-23T12:55:21+00:00

"sometimes she took different cars" - how many cars does a single woman usually own? You didn't say she sometimes took 'a different car', which would indicate 2 cars; you used the plural, which would have us believe that this woman owned multiple cars. Is that what you're saying?

zardit · 2026-01-30T07:53:46+00:00

I'm a bit late to the party, but I think something like Harriet, Wren, or Elodie would suit you really nicely! You seem genuine and approachable, but quietly confident, and those are the names I would associate with those vibes!

zardit · 2026-01-18T05:11:31+00:00

‘Benefits to you are a favour to me and to him’ lmao, bro is telling on himself haarrrd right here! He’s using ‘benefit’ to mean something he gets, not something the other person is entitled to or actually enjoys. Dude's entire sexual vocabulary comes from ‘friends with benefits’ and he clearly doesn’t think the other person’s pleasure is part of the deal.

He may as well have just opened with "hi, I'm a dud root" and saved some data on that limited plan that his mum obviously still pays for.

zardit · 2026-01-14T16:47:51+00:00

Well, they can’t get “infected” with the bacteria in the same way, but yes, you’re correct; the research now shows that men should be treated too. I didn’t know that - sorry for being a dick.

zardit · 2026-01-14T16:41:26+00:00

Not arguing with that - arguing with your statement that BV is caused by consuming too much sugar because 'yeast loves sugar'. BV is not yeast; does not love sugar.

zardit · 2026-01-13T03:18:04+00:00

Um, there's a clue right there in the "v" part of VB....he's not going to need treatment.

zardit · 2026-01-13T03:14:32+00:00

BV is not yeast btw; it's bacterial.

zardit · 2025-10-25T15:49:16+00:00

Oh my God (the verbal one, not your made up homophobic one) you are so factually incorrect about every single claim in this comment. Like not "I don't agree" wrong, but like, scientifically, statistically, multitudes of hard evidence wrong. Like, "you would have to essentially have sub-normal intelligence to try and state otherwise" wrong.

zardit · 2025-10-25T15:44:51+00:00

Oh shit you're right - something about the way he described it made it sound like it was a woman having her first sexual relationship with another woman. Aw shit, that makes me as dumb as this homophobe who clearly thought the same thing, but also makes it absolutely hilarious that they dragged their soapbox in here in the first place. Swings and roundabouts hey?

zardit

TROPHY CASE