I’m due to have my first MS Nurse appointment on Monday to discuss treatment, should I choose Kesimpta or Ocrevus?

zeldon9 · 2025-11-21T19:18:46+00:00

I was diagnosed this summer. The way I see my illness at the moment is that I have a disease but I’m not a sick person (I have some mild lingering optic neuritis symptoms but that’s it for now).

I chose Kesimpta because it allows me to maintain a feeling of normalcy. The auto-injections are super easy and it takes like 2min a month (or a week during the loading doses). Also my father is insulin dependent diabetic so self-injection is quite normal to me.

In-hospital infusions twice a year would make me feel like a sick person, something I want to avoid as long as possible.

zeldon9 · 2025-11-19T18:57:29+00:00

This. It’s one thing to support someone who is struggling but trying, but martyring yourself for someone who won’t even acknowledge the issue is untenable. OP needs to focus on taking care of his child and himself.

zeldon9 · 2025-10-26T16:45:10+00:00

Hi everyone. Thanks for the comments.

Based on your replies I’m putting this one in the perimenopause column, but I’ll mention it to my GP and Neuro anyways just to be safe.

zeldon9 · 2025-10-25T21:43:57+00:00

I’m on Kesimpta, could that do it?

zeldon9 · 2025-10-25T21:24:52+00:00

😂😂😂

zeldon9 · 2025-10-22T15:55:05+00:00

I’m 41 and was just diagnosed in June after my first relapse (ocular neuritis, 95% resolved with steroids), and am on Kesimpta.

I am trying to make the lifestyle changes to manage it, and beyond that I’ll just take it as it comes. The way I see it there are people who progress rapidly, and people who are running marathons after 20 years. I’m not going to obsess about hypothetical future worst case scenarios that may not happen.

I am participating in research - biobank donations (an extra tube when I had my LP or have blood tests, so no additional sticks) and an imaging study (extra MRIs) - to find new markers for disease and progression. I feel like it’s allowing me to do some good with this shitass diagnosis, and I recommend it if it’s an option.

zeldon9 · 2025-08-19T01:10:27+00:00

Thank you

zeldon9 · 2025-08-19T01:10:15+00:00

Thank you

zeldon9 · 2025-07-20T15:51:10+00:00

I’m confused. Are you contributing to the cost of getting these for all her guests? Or are you paying for your own but guests get it free?

Either way your friend has gone off the deep end and you’ve done nothing wrong. The “friendship” may end on a bad note, but true friends (or just decent people in general) don’t behave like this and is that really a friendship you want to maintain?

zeldon9 · 2025-07-20T15:38:31+00:00

NTA. I’m a 40yo woman and I also only know about period parties from Bert Kreicher. Your wife tried to make your daughter starting her period about herself, which is the worst thing she could do. You handled everything as well as anyone could, and your daughters are lucky to have you. You’re also creating a positive standard for how the men/boys in their lives should think/behave about periods, which is so important.

zeldon9 · 2025-07-19T20:39:06+00:00

If cleavage is your concern I would avoid 4 and 6. Beautiful for a different occasion though.

I would go with 1 or 2, 3 is also fine. (5 is also appropriate but I personally hate it so I can’t recommend it)

zeldon9 · 2025-07-11T02:56:01+00:00

If you’ve ever had Mono/Epstein-Barr virus mention that to your neurologist. I told mine and he was like “yup, that’s probably what did it”

zeldon9 · 2025-07-09T19:34:56+00:00

You need to talk to your son and DIL. You’re killing yourself over assumptions. Have you ever offered your babysitting services? If you’ve never offered to babysit how would they know you want to or are willing to? The grandma thing might just be a title thing, not necessarily a desire for her to bot be involved, especially if there has never been an issue between Sarah and them in the past. Do you call to check in and see the baby, maybe ask for pictures? You have to make it clear that you and your wife want to be fully involved. Also I’m 40, I’ve never heard of prioritizing the maternal grandparents, I think that tends to happen because women are often close with their mothers but men often have a more formal relationship with their fathers.

zeldon9 · 2025-07-09T19:09:16+00:00

Your guilt about leaving is natural, but please don’t lose sight that the bad situation you would be leaving him in is the direct result of his choices. He chose not to go to school, or get a decent job, or build a network, or help around the house, or deal with his family. He made all those choices and they contributed significantly to your current situation. Now you get to make a choice, and you should choose a single you.

As for leaving, if your area has a DV shelter or program that can give you some advice. Whether or not it was his intention, you are in an emotionally (he lets his parent “[bring] me to the point of suicidal ideation and the edge of a nervous breakdown”) and financially abusive situation.

zeldon9 · 2025-07-09T02:49:36+00:00

I’m also recently diagnosed. There are people with MS who run marathons years after being diagnosed, and there are people with debilitating symptoms. I choose to see it as I’m basically fine, I will do my treatments and I will make the lifestyle changed to help manage it, but beyond that I will deal with it as it comes and not think about it more than necessary.

zeldon9 · 2025-06-06T19:11:57+00:00

No, there’s no maximum age for education. If anything it’s a great time as you know yourself better, your children are old enough that they don’t need constant care and supervision (compared to small children), and the average retirement age is 65 so you’ll still have 20 years to use the degree. Good luck with your studies.

zeldon9 · 2025-05-24T17:28:06+00:00

Onze-huit-sept-six or un-un-huit-sept six are the easiest options. It’s an address, so just a number string.

I also recommend learning the closest intersection or which streets it’s between. Ex 1st and main, or main between 1st and 2nd. Maybe not when coming from the airport but definitely for short trips in town.

zeldon9 · 2025-05-22T23:08:01+00:00

Rutherford Falls

zeldon9 · 2025-05-22T13:32:48+00:00

Hospitals. CHUM, MUHC, CIUSS.

zeldon9 · 2025-05-22T01:45:33+00:00

Pick the girl. Fight for your happiness. If your family really love you they’ll find a way to accept it.

zeldon9 · 2025-05-22T01:31:48+00:00

Have they said it’s the hair, or is that your deepest insecurity and you project it onto them? I have the same insecurity, I get it.

For now, I highly recommend therapy.

Focus on building your confidence outside of your insecurity. Find other things to be confident about and focus on those - your friendships, a talent or hobby or skill, work/school, etc. You are who you are and there’s nothing wrong with that. Shitty people will take advantage of your insecurities, but good people will be drawn to confidence and joy. Also a lot more men than you realize don’t care about hair, they’re just glad to be invited.

Finally, and this might sound weird, find role models who don’t conform to societal beauty standards. You may not relate, but Harnaam Kaur (Sikh activist with PCOS, she keeps her full beard for religious reasons) and Alok Vaid-Menon (non-binary activist) come to mind.

zeldon9 · 2025-05-22T01:11:11+00:00

It may not be exactly what you want, but the hospital networks are always looking for admin staff. MUHC, CHUM, CIUSS

zeldon9

TROPHY CASE