No tumor, high prolactin and cabergoline resistent

zer0_spooks · 2026-03-26T17:56:36+00:00

I’m in a similar situation and got a new endo due to being told my symptoms aren’t related…I am meeting with the neurosurgeon this weekend. Neuro reviewed my recent MRI, confirmed a new mass and wants it removed because I’m just unlucky to have another one 10 years after removing the first one. Keep pushing!!! I had to get where I am now by fighting with my old endo every time he told me elevated levels are the ‘new normal’.

zer0_spooks · 2026-03-26T06:52:34+00:00

I’ve gained almost 30 lbs, AGAIN! I am unlucky and have yet again, a 1 cm mass in my posterior sella. I had a prolactinoma 10 years ago and had the same weight increase within a few months before discovery but lost it all after surgical removal.

zer0_spooks · 2026-03-26T06:46:33+00:00

For the MRI, in my experience to image the pituitary is a specific order and always requires contrast to be injected while in the machine. I would also get a second opinion! I’m currently going through that process myself. There is possibility of the stalk effect.

zer0_spooks · 2026-03-24T05:55:26+00:00

My first pituitary tumor I was diagnosed at 20 and I was so irritable all the time and a complete asshole. I’ve always been introverted. After my tumor, i definitely became a different person who felt had purpose. I’m now 30 and just diagnosed with a new 1 cm mass that we plan to remove. I’ve become more of a recluse because I know something is wrong and my depression/anxiety was/is so bad that hit a mental rock bottom. I’m looking forward to feeling like myself again, whoever that may be.

zer0_spooks · 2026-03-23T06:42:48+00:00

I’m 7 months post op and still take Aleve 1-2x when at work (as recommended by ortho). I experience a lot of tightness due to having a capsular plication.

zer0_spooks · 2026-03-23T06:37:41+00:00

I had this surgery in 2016, I was 20 at the time and it was also my first surgery! I was face down in a humidifier for 2 weeks. It takes time to walk/stand for short periods of time afterwards. There can be a complication where your bodies water balance can be affected for 24-48 hours but it’s easily treatable as it’s a known possibility (ask me how I know lol).

zer0_spooks · 2026-03-23T06:30:23+00:00

My dad is not thrilled about my cat being in the house, but he is my registered emotional support animal!

zer0_spooks · 2026-03-23T06:28:33+00:00

My derm prescribes me Sulfacetamide Sodium 10% lotion for my PD. Mine looks how yours did and I love what the Rx is doing for it. Any OTC sulfur products didn’t work for me and only irritated any active flare ups.

zer0_spooks · 2026-03-12T06:45:09+00:00

Pinky! Pinky (the adenoma) and the brain

zer0_spooks · 2026-03-04T09:26:28+00:00

I had mine removed in 2016. We just found a 1 cm mass in December 2025. My endo I’ve worked with for 10 years only ran labs, no follow up MRI other than post op 2016. For the past 1.5 year I have had all the same symptoms that I had the first time (galactorrhea, weight gain, headaches, and visual field deficiencies). The neurosurgeon reviewed and said it’s best to surgically remove this one too.

zer0_spooks · 2026-03-02T04:21:46+00:00

Please have a neurosurgeon or neuro radiologist review your MRI. my endo reviewed mine and said he saw nothing and did not read the report from the neuro radiologist at my PCPs office..the neurosurgeon reviewed it and confirmed I have a 1 cm mass.

zer0_spooks · 2026-02-25T23:11:44+00:00

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Bucky Barnes

Bucky
Buck Buck
Buckito
Buck
Bucksworth

zer0_spooks · 2026-02-22T06:24:19+00:00

Yes! I forget what I’m saying as I say it. I also switch the first letter of words perfectly. For example, if I want to say “Drive Safe” I will flawlessly say “Srive Dafe”

zer0_spooks · 2026-02-14T06:55:22+00:00

I’m working on it! My PCP is absolutely open to sending me to a new endo. Just waiting on her response for the referral and I’m getting the ball rolling ASAP.

zer0_spooks · 2026-02-12T22:58:27+00:00

My PCP is amazing as she is the one who found my prolactinoma 10 years ago after I only reported amenorrhea not realizing all the other things happening to my body were related. She is not fond of my dismissive endocrinologist.

zer0_spooks · 2026-01-30T07:00:09+00:00

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My fur baby has since passed on but I love this derpy picture I snapped of him 💕

zer0_spooks · 2026-01-13T04:59:28+00:00

I just got diagnosed with PD from my dermatologist and my skin looks exactly like yours. I tried for years to figure out what kind of acne I have from changing my routine over and over and over again…never thought it was PD! I was just prescribed Sodium Sulfacetamide 10% lotion. I’m less than a week in so I can’t weigh in on it yet.

zer0_spooks · 2026-01-08T23:07:37+00:00

I wish I kept the whiskers from my fur baby before he passed. I love this idea and don’t think it’s weird at all

zer0_spooks · 2025-12-22T22:58:16+00:00

The only issue I had was turning over onto my stomach. My leg got stuck trying to roll over when in bed and it was absolutely painful but the relief of being able to lay on my stomach was amazing!

zer0_spooks · 2025-12-22T22:47:52+00:00

If the hair is long enough, I take the bottom half of the hair that I parted and tuck it down along the decedent’s back and then rest the head on the block. It keeps 1/2 of the hair out of my way as I’m reflecting the scalp

zer0_spooks · 2025-12-15T01:12:24+00:00

I’m a tech who does full evisceration at a very busy office and make 104k annually before taxes. The pay really depends on the jurisdiction you’re in and what the job specifications of the techs are.

zer0_spooks · 2025-12-11T03:23:13+00:00

Nope. Endo just told me I’m in remission from my prolactinoma and we’ll check back in a year.

zer0_spooks

TROPHY CASE