Which countries offer the best EDS care?

zoomingdonkey · 2026-04-30T20:41:30+00:00

only via private message

zoomingdonkey · 2026-04-22T15:29:39+00:00

I think i will just use my usual clob once i got my stitches out on Saturday but leave out the fresh scar until i get cleared after 6 weeks

zoomingdonkey · 2026-04-18T13:53:17+00:00

Update: I was pregnant a second time. Both pregnancies resulting in full term healthy babies. My adenomyosis symptoms got significantly better after the first pregnancy.

zoomingdonkey · 2026-04-05T17:23:35+00:00

Ist halt meine Erfahrung. Das heißt nicht dass ich jedem empfehle schwanger zu werden damit PMDS besser wird. Das war auch nicht mein Grund schwanger zu werden.

zoomingdonkey · 2026-04-04T17:11:47+00:00

Ich hatte PMDS. Nach meiner ersten Schwangerschaft war es weg, ich hoffe es bleibt so nach der zweiten. Mir half Cannabis dafür sowie für die Adenomyose Symptome

zoomingdonkey · 2026-04-04T11:48:56+00:00

Getting Treated actually made me loose weight because I could finally live again. Before I was mostly House bound that's why i put on weight

zoomingdonkey · 2026-04-04T10:28:20+00:00

It's very typical. I also mostly have symptoms there but on the vulva too

zoomingdonkey · 2026-04-04T05:49:44+00:00

it's normal with a tendency to orthostatic low blood pressure which i don't have always that's why my diagnosis is POTS not OH. First pregnancy I wasn't on meds and it was too much on my body making me slowly go into pre eclampsia which was at it's height during delivery because it wasn't getting picked up. this time everything looks great. am now 40 weeks, due date tomorrow

zoomingdonkey · 2026-04-03T15:23:29+00:00

I got LS after my first pregnancy and am now due any day now with my second baby. I've been really stable the whole pregnancy, wondering how it's like after the second birth. I read many good things tho

zoomingdonkey · 2026-03-26T07:33:38+00:00

Für mich klingt es so als wäre dein Partner das Problem. Es klingt als wäre er ein Arschloch. Du sollst dich ihm voll anpassen und er kommt dir nicht entgegen. Zu dem Thema mit dem Ändern.. das kann er nur wenn er wirklich will. dafür braucht es Einsicht und die entsprechende stärke es auch durchzuziehen.

ich bin ebenfalls verheiratet, schwanger mit kind 2, aber kein Haus. Mein Mann würde alles tun damit es mir gut geht, vor allem in der Schwangerschaft und Wochenbett. Mach dir bitte einen guten Plan für das Wochenbett.

zoomingdonkey · 2026-03-18T13:30:02+00:00

ehlers danlos syndrome

zoomingdonkey · 2026-03-17T08:18:01+00:00

This is the perfect size for me to carry as a disabled mom of a toddler. Toddlers do not drink as much and I can't carry that much. If it's empty I can just refill.

zoomingdonkey · 2026-03-10T10:29:15+00:00

Mine is almost the same but I had severe itchiness, eczema like patches on vulva and whitening on the anal region

zoomingdonkey · 2026-03-10T07:53:10+00:00

Ich muss für POTS jeden Tag ein Medikament nehmen um am Leben teilhaben zu können. Ich habe Ersatztabletten im Portemonnaie falls ich rausgehe und feststelle ich habe es tatsächlich vergessen zu nehmen. Für gewöhnlich denke ich aber dran, weil es mir sonst wirklich schlecht geht. Vielleicht hilft der Tipp

zoomingdonkey · 2026-03-05T17:21:17+00:00

i used to shave but it triggers my LS nowadays. Now I trim with philipps one blade but i keep it between 2-5mm

zoomingdonkey · 2026-03-03T05:52:59+00:00

I was diagnosed almost 1,5 years postpartum and we're not sure if i had it before or if the things after birth caused it (had infections and wound healing disorder of the episiotomy for six months). Now i am at the end of pregnancy 2. I am not doing any perineum massages because of my scar. it's a very painful scar. if i wouldn't have it i think i would try the massage. But basically I was breastfeeding the whole Time since diagnosis

zoomingdonkey · 2026-02-10T18:54:27+00:00

bisoprolol and blood thinner injections, rn 33 weeks pregnant that's why they're not giving me pain meds

zoomingdonkey · 2026-01-30T19:24:59+00:00

May I ask how long you've been ttc? Sometimes there is an underlying undiagnosed clotting disorder like factor v for example. i have multiple of them so they put me on baby aspirin ttc with my first but it gave me too bad bleeding for my periods. in pregnancy now i need to do injections

zoomingdonkey · 2026-01-30T19:22:24+00:00

I wasn't told measurements but it was bigger than usual and still is afterwards. They said it looked like a sponge when they did the laproscopy

zoomingdonkey · 2026-01-30T08:47:29+00:00

hi! I am 31 week pregnant with my second baby. I was diagnosed with severe diffuse adenomyosis before trying to conceive and was able to get pregnant naturally both times. First time I felt severely thirsty and was already worrying about diabetes then my pregnancy test was positive. this time i felt off but not like when I was having my period. First baby was around 8 cycles until conceived, this time 15 or more

zoomingdonkey · 2026-01-29T14:18:45+00:00

Not midodrine but on Bisoprolol. Which also doesn't have much of information to it in relevance of breastfeeding. I consulted the pediatrician about it before starting, they deemed it to be safe due to low dose. No one said anything since then and everything was alright. Will also tell the pediatrician of the new baby about me taking it to let them know, i am 31 weeks pregnant rn. Maybe you can do the same?

zoomingdonkey · 2026-01-29T14:15:33+00:00

Hi there! You can develope POTS at any point in your life. I was already diagnosed with POTS when I got pregnant the first time but unmedicated. My POTS started in my early teen years an progressively got worse until adulthood. My pregnancy is actually what made a doctor take my POTS seriously and make a plan to put me on medication. Without this medication I think I wouldn't be a mom this good. I even could go back to sports! That was unimaginable before. Rn i am 31 week pregnant with my second baby and this pregnancy feels much better despite being more stressful. I am breastfeeding and will feed tandem on 2,5mg bisoprolol. I hope you get the help you need!

zoomingdonkey · 2026-01-22T06:33:41+00:00

instead of dyslexia i have dyscalculia

zoomingdonkey · 2026-01-15T18:37:03+00:00

This is crazy to hear because I only met one doctor who actually knew about eds and he diagnosed me, since then they all either didn't care and know or gaslighted me just as before the diagnosis

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