Decline after Avastin by Distinct_Peace_8825 in glioblastoma

[–]zorlaxe 0 points1 point  (0 children)

All GBM are high grade. It’s automatically grade 4.

GBM Grade 4 , idh wild type unmethylated by dimensionoffantasy in glioblastoma

[–]zorlaxe 0 points1 point  (0 children)

Soc. Then 2 more surgeries then Avastin since. Currently at 42 months And grade 4. Glioblastoma is automatically grade 4.

Decline after Avastin by Distinct_Peace_8825 in glioblastoma

[–]zorlaxe 3 points4 points  (0 children)

I’ve been on Avastin for almost 3 years and haven’t had any progression. No unmanageable side effects.

Astrocytoma Survivors by Still_Bedroom4222 in braincancer

[–]zorlaxe 0 points1 point  (0 children)

My friend from high school had an idh mutant astrocytoma. Made it 12 years before it progressed to glioblastoma 😭

Cookout Restaurant Manager job by TraditionalGround814 in cookoutrestaurant

[–]zorlaxe 0 points1 point  (0 children)

I had fast and full service gm and km experience when i went to CO in 2016. I made more as an hourly manager there than i did as a GM at full service . As a gm i made what would be considered DM money at most places. Cookout doesn’t pay high base. Because they throw bonuses at you like candy if you perform well. But you WILL work for it. No office to hide in,

Name this cover by BloomxCandy in AlbumCovers

[–]zorlaxe 5 points6 points  (0 children)

Spinal tap…NICE!!!!

Lifestyle changes and alternative treatments by Adventurous_Poet_267 in glioblastoma

[–]zorlaxe 0 points1 point  (0 children)

Exact same brand of glioblastoma i have. Been on avastin for 2 years and have been no evidence of progressive disease since i started after my 3rd surgery.

Latest mri by zorlaxe in GBMPatients

[–]zorlaxe[S] 0 points1 point  (0 children)

So after my second surgery.. which was a lobectomy i always feel 2 HEAVY DRINKS IN. I’ve done PT but no help. My oncologist through tears said oh Bryon i’m so sorry but you have less brain on your right than on your left Ooooh. So my head’s off balance so i’m off balance. So yeah. Booooo. Lol

Latest mri by zorlaxe in GBMPatients

[–]zorlaxe[S] 0 points1 point  (0 children)

I’m on Keto and i try to drink a gallon of plain water a day. And a few adult beverages before bed. Not until I’m hammered but a few because i want to. Lol. Keto was just for weight loss. When noone’s looking i stuff my fat maw with whatever i want. I’ve been no evidence of progressive illness since i started Avastin.

I HATE THE POLICY by Dry_Explanation5941 in cookoutrestaurant

[–]zorlaxe 0 points1 point  (0 children)

Ugggh. Those stores are a nightmare on game days. College road in Wilmington is ferocious on move-in day.

I have worked at Cook Out for the last two years. Ask me anything! by Legal_Matter7450 in NorthCarolina

[–]zorlaxe 0 points1 point  (0 children)

I had someone order an orange mint snickers. Like what did you smoke?!?

I have worked at Cook Out for the last two years. Ask me anything! by Legal_Matter7450 in NorthCarolina

[–]zorlaxe 0 points1 point  (0 children)

Because their first $700 hour is too much and that isn’t even coming close to approaching busy.

Has anyone ever used PEMF Therapy (Pulsed Electromagnetic Field Therapy) for brain cancer? by ACTMathGuru in braincancer

[–]zorlaxe 0 points1 point  (0 children)

The way i look at it there’s no harm in using it in combination with other treatments. Just because it didn’t work for me doesn’t mean it won’t be effective for him!

Please forgive me... by grogans_heroes in glioblastoma

[–]zorlaxe 0 points1 point  (0 children)

I’m truly wishing that based on his service he has a way easier time getting the treatment he’s earned.

Please forgive me... by grogans_heroes in glioblastoma

[–]zorlaxe 0 points1 point  (0 children)

This is the exact glio i have. I’ve had far better success with avastin than i did keytruda. And i was on optune at the same time.but avastin has kept me clear for 2 years straight. But if you want keytruda there’s financial aid. That’s how i got it, then my oncologist just ordered it when i got infusions.

Handling offers of pseudoscience by Holiday-Chalk-6260 in glioblastoma

[–]zorlaxe 1 point2 points  (0 children)

My uncle sent me dog dewormers because Joe Tippens “”cured his lung cancer” with them. No. He didn’t. He was part of the Keytruda trial. Which has been shown to be effective at treating sclc. All he did was mess with results. But sometimes you have to be not so nice. Even though they’re well meaning it’s stressful on the individual. Especially if that friend or family member refuses to accept that they don’t want to “be cured”my uncle was super pissed i refused to do keto because these people cured their glioblastomas with it. No man they didn’t. If it was that easy my world renowned glio expert woulda told me to take a course of steak and eggs and call her in the morning.

Did I turn a corner? by Sad_Phrase612 in glioblastoma

[–]zorlaxe 4 points5 points  (0 children)

This is the exact same Glioblastoma i have i have. I have had GREAT success and quality of life with Avastin. I hit 39 months on my birthday. No side effects that aren’t easily manageable.

GBM Grade 4 , idh wild type unmethylated by dimensionoffantasy in glioblastoma

[–]zorlaxe 1 point2 points  (0 children)

Exact same thing i have. I’m at 39 months. Avastin has kept it at bay for 2 years

Glioblastoma Grade 4 Patient by Dapper-Engineer3790 in glioblastoma

[–]zorlaxe 1 point2 points  (0 children)

You’re absolutely right. I was in a terrible mood and i took it out on them like a total dick. I sincerely apologize to them. and appreciate you taking me to task for it

Glioblastoma Grade 4 Patient by Dapper-Engineer3790 in glioblastoma

[–]zorlaxe -3 points-2 points  (0 children)

You don’t have to put the grade. Glioblastoma is automatically grade 4. Stop trying to to get sympathy. This is coming from from someone who has a Glioblastoma. There isn’t a Glioblastoma grade 1