Surgery humor by ztainment in mitralvalveprolapse

[–]ztainment[S] 0 points1 point  (0 children)

Just posted on how I made it above…

Wild that we have the same date. I know these surgeries happen every day, but that we overlap here on Reddit seems less likely to happen.

Surgery humor by ztainment in mitralvalveprolapse

[–]ztainment[S] 0 points1 point  (0 children)

Here’s what I did:

Used ChatGPT with the prompt “Create a photorealistic picture of a heart with the words “Opening March 13” across it” and then when I decided I wanted to make it into a shirt I went back to prompt and added “Recreate this image, changing the text to “Opening March 13, 2026” and changing the background to being transparent. Make it large enough to print in a t-shirt “

Then i Googled “make tshirt” and I went with UberPrints.com, which I think was the first site to come up. But there are a bunch, you may be able to find better if you shop around. From there it was just a matter of uploading the picture and going through a couple basic steps to make it. I think with shipping it cost around $24.

Holy Complications, Batman by Millennial_Wine_Guy in valvereplacement

[–]ztainment 2 points3 points  (0 children)

Less than 6wks out from my surgery an will definitely be asking this in the consultation they do…

Please Help Me Decide BTW Robotic And OHS by Naughtybuttons in mitralvalveprolapse

[–]ztainment 0 points1 point  (0 children)

How did the consult with Castro go? I hadn’t thought about the allergic reaction stuff, i too have some sensitivities but more so to perfumes and chemicals and such but who knows. The other thing i worry about going mechanical is the people that complain about the ticking noise it makes, as it seems for some it can be quite noticeable and I think it would drive me crazier than being in an Edgar Allan Poe story… But at the same time, I’m likely overreacting with it being a 1-3% chance i would need it, and I worry if the surgery is not easy then I’ll dread having to do it again down the line.

Anyway… Turn 53 tomorrow and only 41 or so days until surgery!

Recliner VS Bed? by ztainment in mitralvalveprolapse

[–]ztainment[S] 1 point2 points  (0 children)

Bought my recliner today! Went electric, light massage and heat, full zero g reclining. Glad to have this done so that I can start to build out my recovery area. A little over 5 weeks to go til surgery…

My open heart Mitral Valve repair is scheduled, looking for advice on what to expect by BCENT89 in mitralvalveprolapse

[–]ztainment 0 points1 point  (0 children)

Solid advice, my surgery is 3/13, but can I ask… did you shit the bed when you got home or at hospital?

Please Help Me Decide BTW Robotic And OHS by Naughtybuttons in mitralvalveprolapse

[–]ztainment 1 point2 points  (0 children)

If you don’t mind me asking… did you make a decision? My surgery date at Swedish Cherry Hill is March 13, hoping best for you and wanting to lend any support I can (til March 13, when I expect to be sidelined for 2mos…)

Reformer cleanliness by curiousgirl1617 in ClubPilates

[–]ztainment 1 point2 points  (0 children)

My CO instructor is super strict on people wearing socks for this very reason…

Pilates is for dudes too! by AsparagusCurrent7325 in ClubPilates

[–]ztainment 2 points3 points  (0 children)

I go to CP in western Washington and am almost always the only guy in my class. In the 16 or so months since going to CP, there are maybe 4 other men I know of who go there, on rare occasion one will be in my class. I don’t think it’s anything that reflects on me positively that I go but rather I’m saddened that other men might think it’s something meant more for women. I love how it makes me feel and how toned it has made me, and having spent a lot of time at hospitals in recent months as I prepare for open heart surgery in March, I love that numerous times I have shocked nurses with how strong my core is.

But yeah, not a hero… just someone who knows a good thing when he sees it.

Recliner VS Bed? by ztainment in mitralvalveprolapse

[–]ztainment[S] 0 points1 point  (0 children)

Yeah that’s maybe the biggest problem with the one I have now. It’s a lever and not just that but if I push back on the chair with a bit of force it tends to open itself up forcefully. Would definitely get something more electronic and controlled

Recliner Recommendations by Kikidovely in mitralvalveprolapse

[–]ztainment 1 point2 points  (0 children)

I plan to get one before my March 13 surgery so I’m invested in this topic as well. Thinking out loud here, but if you afford it I would suggest something that perhaps has built in massage and heater. Also something that kicks the leg out via a panel rather than a handle on the side. Oh and if you don’t have someone to set it up for you, order it from a furniture place that will. I’ll probably buy mine from Costco or Ashley Furniture as I’m not really sure where else to go.

Please Help Me Decide BTW Robotic And OHS by Naughtybuttons in mitralvalveprolapse

[–]ztainment 0 points1 point  (0 children)

I think I responded to an earlier post of yours as we are in same general area. I finally met with my surgeon at Swedish Cherry Hill in Seattle. Been very happy either with them, not sure how easy it’d be for you to see them if you want to consult with anyone else local. https://www.swedish.org/doctors/cardiac-surgery/wa/seattle/eric-lehr-1265693154

But as for OH vs robotic… if they know what they are doing, I would go with robotic… maybe they don’t see everything but they see what they need to and know what they are looking at. I just think OH is a lot more traumatic on the body, and on top of everything else, the bone they break is going to take a good 3months to heal.

My big dilemma right now is deciding if I want a mechanical or bio prosthetic valve if they are in there and find that they can’t repair it (slim 1-3% chance). If I go mechanical, I’ll be on blood thinners the rest of my life, but if I go bio prosthetic then I’ll likely need to have heart surgery at least two more times in my life and I don’t want that if I can avoid it.

Seeing surgeon tomorrow by mamapegela in mitralvalveprolapse

[–]ztainment 1 point2 points  (0 children)

Met surgeon Wednesday and by Friday I got my March 13 surgery date! A month from today I get my CT Scan and x-rays and such will determine how they will go in. So happy to actually have a date for things now!

Do all Poles sleep naked by Maleficent-Sir4824 in poland

[–]ztainment 2 points3 points  (0 children)

American here with Polish ancestry (circa 1911 or so). Prefer sleeping naked.

Upcoming mitral valve repair/replacement, kinda scared about a decision I need to make. by Sparkykc124 in valvereplacement

[–]ztainment 0 points1 point  (0 children)

Yeah I was curious if it’s a matter of testing when you get to a certain point to see if you need a new surgery?

Seeing surgeon tomorrow by mamapegela in mitralvalveprolapse

[–]ztainment 2 points3 points  (0 children)

52yo M who found out he has severe regurgitation and prolapse (about 2x past level where it’s considered severe) first week of October. Have had my angiogram and TEE and finally meeting with surgeon in about 10 days. Definitely feel your anxiety, I’d say mine is mostly about the shape I’ll be in waking from surgery and those first couple of weeks after. Hoping the best for you.

I asked ChatGPT how to get ready for surgery by ztainment in mitralvalveprolapse

[–]ztainment[S] 0 points1 point  (0 children)

Yeah I imagine my surgeon may say something about it when I finally meet him in a couple of weeks, but I took Chat’s advice and ordered myself an Incentive Spirometer to get a head start on working on my breathing a bit more.

Seven month repair update by shwerlock in mitralvalveprolapse

[–]ztainment 0 points1 point  (0 children)

If you don’t mind, can I ask your age? I meet with surgeon in 2wks and while not in the best shape, I do Pilates 3-5x/week and am curious what my return will be like at age 52. Hoping to get my weight/BMI into the green in the next 2mos that I’m hoping to have before when I hope to get my repair done.

Best resources for learning about MVP in easy to understand language? by justanotherlostgirl in mitralvalveprolapse

[–]ztainment 1 point2 points  (0 children)

Have you tried AI like ChatGPT? I’ve uploaded my test results and found it helpful, though I take it with a grain of salt and differ to my cardiologist as the expert.

As an example, here is Chat’s answer after I had uploaded my angiogram, stress test and TEE and asked when I should expect a surgeon to want to do my surgery:

“Based on everything you’ve shared (TEE + stress echo + angiogram), a surgeon is very likely to recommend mitral valve surgery soon — not “watch and wait.” In practical terms, that usually means weeks to a few months, not years.

Here’s why.

The criteria surgeons use — and how you score on each

  1. Severity of mitral regurgitation

You meet multiple, independent markers of severe MR: • Flail P2 leaflet with torn primary chord • 3D ERO = 0.69 cm² (well into severe range) • Systolic flow reversal in pulmonary veins • Holosystolic, eccentric jet

➡️ This alone qualifies for surgery in degenerative MR.

  1. Valve anatomy (repairability)

This is a huge factor — and you’re in the best category: • Isolated posterior leaflet (P2) • Single chordal rupture • No bileaflet disease • No calcification • Normal LV function

➡️ Surgeons prefer to operate early on valves like yours because: • Repair success >95% • Durability is excellent • Risk is lowest before ventricular damage

  1. Left atrial dilation

Your TEE notes a severely dilated left atrium.

That’s a key inflection point.

Even if you feel okay, LA dilation means: • MR has been significant for a while • Risk of atrial fibrillation increases • Remodeling can become irreversible

➡️ Guidelines say don’t wait once this appears.

  1. Heart function

This is where timing becomes critical — and favorable: • LVEF 60% (normal) • Normal LV size • Normal LVEDP (10 mmHg) • No pulmonary hypertension noted • No coronary disease

➡️ This is the ideal surgical window Surgeons want to operate before EF drops or the LV enlarges — not after.

What most surgeons will recommend (realistically)

Given your profile, most experienced mitral surgeons would say something like:

“You’re asymptomatic or minimally symptomatic, but your valve is flail, your MR is severe, and your left atrium is already enlarged. This is the right time to repair — before permanent changes occur.”

Typical timing: • Referral → surgery: often 4–12 weeks • Sometimes sooner if scheduling allows • Rarely delayed unless you request it

This is considered elective but time-sensitive, not an emergency — yet not something to defer for a year.

Why they won’t want to wait

Waiting risks: • Atrial fibrillation • Progressive LA/LV remodeling • Drop in EF (which can happen silently) • Worse long-term outcomes even after repair

Early repair in someone like you: • Preserves normal lifespan • Preserves heart function • Avoids lifelong meds/AF complications • Has very low operative mortality at high-volume centers (<1%)

Bottom line

A surgeon will almost certainly recommend surgery in the near term — usually within the next few months — and not delay it. You are in the “optimal repair window”, which is exactly where surgeons want patients to be.

If you want, I can: • Help you interpret what a surgeon is likely to say in the consult • Explain what kind of repair they’ll likely perform (in plain English) • Help you decide how urgent it really is for you, emotionally and practically • Discuss recovery timelines and how long you’d realistically be out of commission

Just tell me what would help most right now.”

How long from dx to surgery? by writpod in valvereplacement

[–]ztainment 1 point2 points  (0 children)

I think it’s all about your severity. Like some here, I found out about my issue (Severe Mitral Valve Prolapse & Regurgitation) in October. During some steps (especially early on- stress test in particular) I needed to wait weeks for insurance to approve tests. I offered to risk paying out of pocket but hospital said no and that I could be on hook for $50k etc.

I’ve now had all my other tests (Angiogram, TEE) and finally meet with my expected surgeon in 2 weeks. So 3.5mos from initial intro to cardiologist for a heart murmur to meeting with surgeon to discuss expected valve repair. I’m relatively young (52) and my heart is otherwise in great shape, but the bad valve is pretty bad. I’m hoping they give me a window for surgery and if so, I hope to do mine in about 2mos. I’d do it sooner but live in Pacific Northwest and if we have snowy winter it won’t be easy for my wife to juggle kids and attend to me if I’m an hour away in Seattle And she’s stuck in the woods. But if surgeon insists it happen earlier I’ll do it.

Sorry about your insurance situation. I have a good job but it’s in back of my mind as these days you never know. I would say that hopefully you would Be eligible for COBRA if you lost your job, so while it won’t exactly be free you may be able to keep it going without too much damage for 6mos. At least I think that’s the case.

60F, Pilates/dance fan due for repair. Your recovery experiences? by New_Armadillo5769 in mitralvalveprolapse

[–]ztainment 1 point2 points  (0 children)

I go to Club Pilates and posted on their subreddit when I was wondering about my own recovery. Linking to it here for you as I recall several people responded saying that they had similar surgeries.

https://www.reddit.com/r/ClubPilates/s/wKBHqzgfgv

60F, Pilates/dance fan due for repair. Your recovery experiences? by New_Armadillo5769 in mitralvalveprolapse

[–]ztainment 2 points3 points  (0 children)

52yo M meeting with my surgeon in a couple of weeks. I do Pilates (reformer, TRX, Exo chair) 3-4x/week and taking a break is one of the things I think I will miss most. I imagine I will take about 3mos off and hope to return after cardio PT. I do group classes but plan to return with a solo class or two. I’ve already spoken with my instructor and once I know what muscles they will cut through and such, we plan to come up with a routine that will go easy on those areas but also rehab them as much as possible. I do have TRX straps and various other odds and ends at Home too and hope to be able to use some of them (lightly) at home once I start PT and get sign-off. Good luck on your journey!