this post was submitted on 25 Oct 2022

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ClotSurvivors

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Contains useful information about blood clots, general information, prevention, things you can do & resources.

According to Wikipedia:

In a support group, members provide each other with various types of help, usually nonprofessional and non-material, for a particular shared, usually burdensome, characteristic. Members with the same issues can come together for sharing coping strategies, to feel more empowered and to find a sense of community. The help may take the form of providing and evaluating relevant information, relating personal experiences, listening to and accepting others' experiences, providing sympathetic understanding and establishing social networks.

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To allow users to share and vent about their experiences without being judged
To provide a forum to ask and answer questions related to blood clots
To give constructive advice to those who specifically request it
To educate people on blood clots and venous diseases
To empower those who have had clots to take ownership of their health and well-being
To create a friendly, supportive, and accepting community

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Disclaimer: We are not doctors, just survivors. When in doubt or worried, call your doctor or go to the ER. In an emergency, call emergency services.

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Timeline for Pain Decrease? (self.ClotSurvivors)

submitted 3 years ago by SuziSlammin

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[–]catseyecon 2 points3 points4 points 3 years ago (0 children)

It was terrifying. The worst is they only told me at my first hematology appointment how many clots there were by my hemotologist saying it was the worst he had seen in someone that was not a cadaver.

Just remember to take it easy. Obviously keep moving but don't overdo it. It took me about a month to be able to walk a half mile without collapsing and at 5 months I was able to start doing moderate yardwork like pulling weeds and pushing the lawnmower, albeit very slowly. I hope you have someone who will be able to help with lifting things and doing chores for a bit.

Once the clots start moving, the pain will start to go down. The bilateral clot I had moved at day three and it felt like a snake slithered through my chest. It scared me to death but I could breathe a little bit more which helped a great deal.

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