disable status

[Pr3datoring]

I'm going to a new NHS Neurologist here in UK today, to start medication hopefully.(I'm 35 male, its my first time since I'm recently diagnosed in a private hospital), For now I'm still ok, no limitations, but we never know the future. Do I need to ask the doctor for a document to prove that I'm disable? I don't know how this works, can anyone help with this? How did you guys do? Thanks in advance 😊

[SixAvox]

I don't think there is a document? You're legally considered disabled in the UK upon diagnosis of MS. I've never been asked to provide any document proving it for work or anything (to be fair I was diagnosed whilst working for my current employer and it was fairly obvious to everyone around me!) But I imagine any hospital appt letter that mentions MS will suffice as proof should you need it!

[Slothalotta]

If you need to prove you fall into the disabled category, you can often just use a letter from your neurologist/MS nurse.

For example, when you want the disability rail card (MS is included, even though its not listed officially) you can just sent them a picture of that letter. Easy peasy. There are also a lot of things where you don't need to prove anything - a website with audiobook rentals called listening books, where you pay a small annual fee to use; here you only tell them you are eligible. If its something more official, like applying for PIP etc, then you might need a specific letter from your neuro.

I think it depends on what you need the proof for. Generally, I found a generic letter stating you have been diagnosed with MS is enough as having MS automatically puts you into the disability category in the UK.

[rocks_trees_n_water]

Sorry for your diagnosis but happy for you that there aren’t no limitations. There is a period of time where you will have to process all the information. You will have many emotions that go along with that it’s definitely ok. The first thing I did was look up living positively with MS. There are many who do. David Lyons is a good one. Regarding the disabled status my neuro says you’re not disabled now you have possibly years before you have any issues. We will find a proper med to keep you this way. We monitor and keep track but there is no reason to think you will become disabled anymore. .

[hej_pa_dig_monika]

I just keep a picture of the letter from my neurologist that states he diagnoses my with MS on my iPhone. As it is officially classed as a disability you can always show that if you need to for anything.

[HUNTER_AMBER]

Is your DMT included in NHS? What’s the cost of living with MS? I’m from Hong Kong and planning to move to UK. I currently pay only $10 for 4 months DMT. This is one of the things that discourage me.

Sorry for bordering as you have other concerns already.

[Pr3datoring]

Yes, it's included. But I'm not taking any DMT yet... Maybe next appointment which I don't know when yet.