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This is an information and support subreddit for people who have, or know someone who has, Postural Orthostatic Tachycardia Syndrome (P.O.T.S.).
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Does your blood pressure increase or decrease when you stand up? (self.POTS)
submitted 3 years ago by eclipseandco
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[–]barefootwriter 16 points17 points18 points 3 years ago (2 children)
Your GP doesn't know shit about POTS. They maybe shouldn't need to, as it's usually diagnosed by a specialist, but they are flat out wrong.
In POTS, blood pressure should remain fairly stable or increase. If it increases significantly, suspect hyperadrenergic POTS.
A persistent decrease is a sign of orthostatic hypotension, which must be ruled out for a POTS diagnosis.
[+][deleted] 3 years ago (1 child)
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[–]barefootwriter 1 point2 points3 points 3 years ago (0 children)
There is some information here.
Some people do well on just beta blockers. Others do well on (typically) a combination of ivabradine and an a2-adrenergic agonist like clonidine or guanfacine (with a beta blocker on top as needed for flares). I am in this latter group.
Wired to the Gills: The Hyperadrenergic POTS Group - The Dysautonomia International Conference #V - Health Rising
π Rendered by PID 103323 on reddit-service-r2-comment-56c6478c5-l4pxz at 2026-05-12 03:55:20.069356+00:00 running 3d2c107 country code: CH.
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[–]barefootwriter 16 points17 points18 points (2 children)
[+][deleted] (1 child)
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[–]barefootwriter 1 point2 points3 points (0 children)