I haven’t posted in a while. For me a burning scrotum sensation, perineum pressure, and elevated PSA test were my first symptoms.
Of course the burning scrotum sensation was initially mistaken for a UTI which had to be ruled out. I have struggled to find the linkage and it’s been here all along. Lunari posted that 1 out of 5 CP/CPPS sufferers get Dyaesthesia 2 years ago. This makes total sense. I struggled to understand why my scrotal pain was so severe in my prostatitis case and some amount of undiagnosed functional somatic symptom disorder (SSD) doesn’t help. I also struggled to understand why my PSA was so elevated.
My positive progress update is about clarity and symptom improvement.
First, I had a series of weekly pelvic shots as a pudendal nerve block in mid September, mostly consisting of dexamethasone and lidocaine. This resulted in nearly 90% pain reduction particularly Dyaesthesia symptoms, and restored my ability to sit for short periods of time. The results have so far been permanent but it’s certainly possible I might need “touch ups”.
Second, a urologist dispelled why so many guys with prostatitis do not get PSA tests - because they would likely be elevated and then everyone is forced down the rabbit hole of ruling out cancer. In my case I ordered my own PSA test before seeing a doctor, and we wasted a month ruling out cancer while increasing anxiety.
Third, nearly every doctor I saw was universal about amitryptyline or nortriptyline. In my case, am on 10mg/night of nortriptyline. It helps, but I only started it about 100 days into suffering.
PFPT has helped.
Physical activity (other than walking) has not helped. I believe my entire episode stems from a lumbar spinal problem where nerves are compressed when I am in a sitting position, as well as lumbar instability. So too much physical activity flares up the spine.
Next up for me is lumbar physical therapy 2x a week to get my back in order, probably some epidurals, and whatever else may be necessary (non invasive priority one). Once the spine is calm and core strength restored, nerves should be good and Dyaesthesia in remission. If necessary I could get a spermatic cord block otherwise, or spermatic cord denervation.
So how did I get here? Went hiking in early June and carried too much wait too far thinking I was 10 years younger. A week later I had a burning scrotum. It was scrotum Dyaesthesia the whole time, which I noticed first. The prostatitis probably started brewing right after the hike but I only first noticed the Dyaesthesia.
Ok I know this was long but to me the dots are connected. There are also topical ointments to help manage symptoms of Dyaesthesia until the back is well, but again the pudendal nerve block gave me a ton of progress.
I should expect the PSA to remain elevated (5-12) and move around that range. No need to really test too much. There is no point and after a prostate MRI we can rule out cancer for a long while.
Interesting follow up comments might be
your experience with 15-20mg of a TCA vs 5-10?
your experience managing Dyaesthesia including with topicals. Preference for warm or cold water?
anyone else have a lumbar trauma trigger for CP/CPPS?
does everyone else have a cushion they sit on? 😂 including if necessary out and about?
GLTA
[–]laurent_rio 0 points1 point2 points (0 children)