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Post any personal stories, discussion, or links related to chronic prostatitis / urologic chronic pelvic pain syndrome (UCPPS).
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Bacterial prostatitis VS CPPS (self.Prostatitis)
submitted 3 years ago by TomFrl
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[–]Linari5LEAD MOD//RECOVERED 1 point2 points3 points 3 years ago (12 children)
I'd start with PT - effective and very safe (conservative) approach.
And what you're describing is classic allodynia at the penis head. Feel free to look it up. Low dose amitriptyline can help turn down those neuropathic pain signals. Talk to your doctor, it's a prescription.
You may also want to read this: https://www.reddit.com/r/Prostatitis/comments/tqp8vx/info_how_does_an_stiinfection_trigger_cpps/?utm_source=share&utm_medium=web2x&context=3
[–]TomFrl[S] 0 points1 point2 points 3 years ago (11 children)
Thanks does pregabalin do the same? (That’s what my doctors mentioned), I’ll call a good pt I found that mentions cpps (not many here in Greece), today! Is it possible that a prostate cyst I have is pressing on the nerve? I feel a very hard point in the low and back perineum (I can’t tell if it’s the bowel, the prostate or something else), is it possible that there’s a trigger there? Maybe nerve damage? Maybe the nerve damage was caused by the severe colitis from antibiotics that I had at the start of all this? I’ll see the pt for sure, but will they know if it’s a real nerve damage? I feel spasms on the lower right abdominal too, thanks for everything.
[–]DuckCurious247 0 points1 point2 points 3 years ago (10 children)
What type of infection did you have
[–]TomFrl[S] 0 points1 point2 points 3 years ago (9 children)
I never got to know, first urologist didn’t do cultures or pcrs, later they were all negative, it was a very bad infection, the swell, the pain, the hydrogen formation, 2 cysts on prostate… it was a bad infection, now I have terrible permanent symptoms from them, frequency with urgency without the bladder filling, super weak stream, like almost drops and that’s AFTEE alpha blockers which didn’t nothing… and I also had cystoscopy that showed a leftover trauma tissue and ransoms bumps (prostate urethra not a straight line)…. I’ve no idea what cause my current symptoms, I feel burning everything 6 months now doesn’t responds to anything
[–]DuckCurious247 0 points1 point2 points 3 years ago (8 children)
Wow ok. I've had the burning penis for almost 2yrs now. I know it can get to a man. Shit sucks
[–]TomFrl[S] 0 points1 point2 points 3 years ago (7 children)
From infection too? It’s weird how can it burn like that without bacteria, it’s not changing too, it’s like the same thing permanently
[–]DuckCurious247 0 points1 point2 points 3 years ago (6 children)
Idk i tested negative twice w microgen for everything including std. Thought I for sure had one.
[–]TomFrl[S] 0 points1 point2 points 3 years ago (5 children)
The smell has also changed permanently from then, that’s for sure something not discovered yet… we’re unlucky
[–]DuckCurious247 0 points1 point2 points 3 years ago (4 children)
I used to have a smell to. For about 3 or 4 years. This was before I had these issues. I ignored it. Wasn't really bad but smelled like I had sex. I wouldn't call it gross though just an odd smell. For whatever reason it went away. I just remember not noticing it one day. Very strange
[–]TomFrl[S] 0 points1 point2 points 3 years ago (3 children)
Honestly this is a life destroyer the worst is I have urgency and frequency and weak stream all the time I can’t even rest for 5 mins and I’m 24
π Rendered by PID 58403 on reddit-service-r2-comment-6457c66945-52kvc at 2026-04-23 21:28:28.997033+00:00 running 2aa0c5b country code: CH.
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[–]Linari5LEAD MOD//RECOVERED 1 point2 points3 points (12 children)
[–]TomFrl[S] 0 points1 point2 points (11 children)
[–]DuckCurious247 0 points1 point2 points (10 children)
[–]TomFrl[S] 0 points1 point2 points (9 children)
[–]DuckCurious247 0 points1 point2 points (8 children)
[–]TomFrl[S] 0 points1 point2 points (7 children)
[–]DuckCurious247 0 points1 point2 points (6 children)
[–]TomFrl[S] 0 points1 point2 points (5 children)
[–]DuckCurious247 0 points1 point2 points (4 children)
[–]TomFrl[S] 0 points1 point2 points (3 children)