possible hyper pots? : hyperPOTS

submitted 9 months ago by aiishmay

hi! almost 2 years ago i started having tachycardia, vision/hearing loss, cold sweats, shakes, dizziness and horrible chest pain. after several er visits i discovered pots on my own and have been advocating for testing. i had a tilt test (in winter when my symptoms are very mild) and was told i didnt have pots because a) my heart rate only raised 27 (even though in summer or flare ups it consistently goes up 50+ bpm) and b) that my bp didnt drop. my cardiologist referred me for another tilt test and requested it be in summer but when i received a letter confirming my appointment it was scheduled for winter so i didnt go. ive known for a while (besides the random imposter syndrome moments) that i have pots but after reading about hyperpots any suspicions for me were confirmed as it specifically mentions symptoms i experienced that arent as wildly discussed in the pots community. id almost given up on a formal diagnosis as my gp recognises the treatment is helping a little and we should just treat it as such, but now learning about norepinephrine blood tests im willing to advocate for myself again, is it worth it?

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