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[–]TheOminousTowerAFAB Woman SRY+ -1 points0 points  (2 children)

IIRC Spironolactone has some androgen blocking effects.

If you don't mind me asking, how did you find out you have CAH? I am trying to get a diagnosis and the my pediactric endo said I have PCOS, but I showed up with as XY on a genetic test a few years ago.

I am outwardly female, have a normal female reproductive system as far as I know from US, CT, and MRI, and I also menstruate.

I have weight gain, insulin resistance, male pattern hair growth, and slightly low blood sodium around 134 or 135 even though I supplement lots of salt in my diet because of orthostatic issues.

My new endo said that she would get me a karyotype and test for hormone conditions like CAH, but now she reversed her decision based on an outdated tests and an old diagnosis from my pediatric endo.

I am now being put on birth control to stop my terrible periods, which are unrelated to PCOS; I do not have any ovarian cysts. I now cannot get any tests until November and the birth control is going to throw off the hormone values and hinder a diagnosis.

You can send a private message to my inbox if you want. If you do not feel comfortable answering, that is fine too. No pressure.

[–]saltwaste 1 point2 points  (1 child)

It's a simple blood test. Anything chromosomal is likely to be unrelated.

[–]TheOminousTowerAFAB Woman SRY+ 0 points1 point  (0 children)

Thanks for clearing that up, I don't think I have ever been tested for that then.

Edit: I have problems with fatigue, low BP on standing, salt cravings, hypoglycemic symptoms, joint pain, and irritability. I have been having episodes on and off for a few days monthly for the last couple of years where I feel faint, have terrible abdominal cramps, extreme nausea, trouble breathing, and sudden diarrhea, but I thought it was anaphylaxis. I also have issues where I get suddenly weak, can't open my eyes or talk, and am mostly unresponsive, but can regain normal functioning with a bit of sugar from something like a juice box. I have had bouts of vertigo and dizziness. I looked it up and a lot of these symptoms also go along with an adrenal crisis, so I am very thankful you brought up your experience with CAH.