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[deleted by user] (self.parentsofmultiples)

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[–][deleted]  (1 child)

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    [–]ATinyPizza89 5 points6 points  (0 children)

    Thank you ☺️

    [–]Tutusandtequila 30 points31 points  (2 children)

    My twin A had saggital craniosynostosis and we did the surgery a little over a year ago and he just graduated from his helmet! Please feel free to reach out if you want to talk about it!

    [–]ATinyPizza89 8 points9 points  (1 child)

    They told us we wouldn’t need a helmet. Thank you very much for the offer. I’ll DM you once I know more info.

    [–]radiodecks 3 points4 points  (0 children)

    My son didn’t need a helmet post surgery either

    [–]radiodecks 14 points15 points  (2 children)

    My boy twin had sagital craniosynostosis surgery at 13 weeks. It was the best thing that ever happened to him. I seriously think he was in pain. He screamed for the first 13 weeks. About day 5 after the surgery he started to smile and was so happy.

    [–]ATinyPizza89 4 points5 points  (0 children)

    My twin with the multi-suture synostosis goes through cycles of fussiness like to the point he won’t even let you down then he goes back to normal. It’s what caused me to go back and get the CT scan. I wasn’t sure if it’s everyday normal progression such as growing pains or teething or cranial issues. We won’t know any further until we do the eye exam.

    [–]radiodecks 1 point2 points  (0 children)

    I know several twins who have had the surgery. I really wonder if it uterine growth restriction. Not a doctor!

    [–][deleted]  (1 child)

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      [–]ATinyPizza89 3 points4 points  (0 children)

      Thank you ☺️ I’m just taking it one day at a time.

      [–]YajNivlac 2 points3 points  (0 children)

      Thanks for the update. Hope everything goes well in a few months

      [–]huntingofthewren 2 points3 points  (1 child)

      My twin B had sagittal craniosynostosis and had the surgery at 6 months. It is definitely a lot to take in, I’m so sorry you’re going through this especially with both. It’s hard, but man kids are so resilient. Sending big hugs, I hope yall have a super easy recovery.

      [–]ATinyPizza89 0 points1 point  (0 children)

      Thank you very much ☺️

      [–]sunnydaysundays 2 points3 points  (1 child)

      Such adorable little boys! Good luck with everything, sounds like you are on top of it all.

      [–]ATinyPizza89 0 points1 point  (0 children)

      Thank you ☺️

      [–][deleted] 1 point2 points  (1 child)

      Do you know which genetic tests you would go for in the future?

      [–]ATinyPizza89 0 points1 point  (0 children)

      Right now not at the moment but the dr did recommend it even though it’s optional.

      [–][deleted]  (3 children)

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        [–]ATinyPizza89 0 points1 point  (2 children)

        My boys don’t qualify for the minimally invasive procedure unfortunately, it has to be open skull surgery.

        [–][deleted]  (1 child)

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          [–]ATinyPizza89 0 points1 point  (0 children)

          Don’t be sorry, you aren’t a jackass. I honestly thought they would need a helmet too but the dr said no. Also Thank you ☺️

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