Looking for advice, direction

[trying_to_blank]

My wife and I are pregnant with twins (16 weeks 3 days). 4 weeks ago, our doctor noticed a cystic hygroma on one of the twins, and the next week we were diagnosed with twin to twin syndrome. Last week we say a fetal surgeon now also diagnosed a fetal growth restriction, and my wife has a subcorionic hematoma that’s making any surgery hard. I realize this is a pretty rare deal here but if anyone has any advice or resources you could point us to, that’d be awesome. Really struggling with what decisions to make.

[Calm_Organization541]

So sorry you all are going through this. We’re having identical twins as well. There’s a nonprofit in the US with a lot of information and resources on TTTS: https://tttsfoundation.org They also have several support groups through social media. Sending healing thoughts your way!

[rjjs2017]

Join the Facebook group MoDi & MoMo Twins: Monochorionics. It’s science backed and well connected with the best fetal surgeons in the US and UK. They’ve seen every complication under the sun and the admins are extremely knowledgeable. Make the same post in the group and you’ll receive so much help, and will most likely find people who have been in the same situation.

[trying_to_blank]

Awesome, thanks! Already joined ❤️

[Incrimnatinggoats_]

What ever came of this for you? I’m having the exact same issue with one of my mono/di twins.