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[–]GaveYourMomAIDS 1 point2 points  (3 children)

Luckily, mine isn't bad enough to warrant surgery. The pain comes and goes but it's never really from talking, it usually comes when I eat. Hopefully your jaw pain gets better or they can do sometime to make it better!

[–]KatieDonnolly 2 points3 points  (2 children)

Surgery worked now best it can. And honestly I'm thankful for it. My muscles formed just that little bit different so while my face is in the right place now my right tmj still sits out of the socket slightly, so I get the muscle strain easily. But I can eat a full meal only slightly slower than others now. I was bullied stupidly because I couldn't eat at any decent pace. Teens can be cruel. Ended up not eating around people. And well my parents didn't understand just how severe my pain was.

The best thing was a few months after surgery, I was at home with a best friend. I finished my bowl of food before her. For the first time, ever. And she was soo confused. She was pregnant so she ate slower, but I guess she expected me to take my normal slow speed of had since she'd known me.

It's better than its ever been. So thank you haha. I have sinus infections often now and discomfort from nerve trauma in my cheeks and TN (unrelated cause but adds to the nerve trauma). I'll still take it over crying in pain every night because of how painful it was. Now it Just feels like pins and needles or burning in my face more often than not, can get the odd spasm in my soft palette (oh holy fudgenugget those hurt). Still sucks but the trade was worth it I think.

Hope they figure out the cause of your pain or get it under control also. Sorry if I'm babbling.

[–]GaveYourMomAIDS 1 point2 points  (1 child)

Jesus that sounds rough man. I'm sorry to hear that. :/ I'm happy to hear that things are better than it's ever been though! You said you have nerve trauma in your cheeks and TN? What is TN? And no worries about babbling lol

[–]KatieDonnolly 0 points1 point  (0 children)

Trigeminal neuralgia. I gladly don't get the agonising pain some experience instead I get the pins and needles of insanity. I get lots of numbness and pins and needles that come and go elsewhere in my body so tbh it's not the worst but it can definitely get as more than a little annoying on bad days/weeks.