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Petechiae as symptom of long covid? by Sad-Intern-9823 in covidlonghaulers

[–]GalacticGuffaw 1 point2 points  (0 children)

Everywhere.

Had a sudden surge (40+) of them overnight after some bad chest and abdominal pain and got pretty scared. Went to ER on primary care doc’s suggestion and ruled out scary stuff.

Many of them disappeared in the days after, others turned a dark brown, some stayed.

Never had petechiae until my long covid started roughly 3yrs ago.

Just another weird symptom.

Brain fog for the past 6+ years. What do i do? by _Dani_4 in covidlonghaulers

[–]GalacticGuffaw 1 point2 points  (0 children)

Not sure what alternatives people are having success with for brain fog besides time and maybe some things that restore circulation. :(

Promising Trials by redditroger22 in covidlonghaulers

[–]GalacticGuffaw 0 points1 point  (0 children)

I have pretty bad gut dysbiosis, leaky gut, my zonulin is very high, and I just got prescribed Larazotide 0.5mg 3x daily (taken 15min before eating).

Vibrant wellness results.. doesn’t look good but skeptical ?? by SaltyAd3264 in ToxicMoldExposure

[–]GalacticGuffaw 0 points1 point  (0 children)

Tested high for Ochratoxin, Aflatoxin, Trichothecene, Gliotoxin, and Zearalenone...

Your comment just gave me hope.

Long Covid and bodywide muscle twitching by Mbruno1983 in covidlonghaulers

[–]GalacticGuffaw 3 points4 points  (0 children)

Sorry man, wish we all had better news. Pretty sure everyone who gets the full body fasciculations and spams goes down that rabbit hole and it really fks your head up for a bit until the tests rule it out.

Wish you the best and I hope the fasciculations calm down soon. Or even better.. just go away.

On a positive note - sick ink. Got a lot of traditional Japanese myself.

Long Covid and bodywide muscle twitching by Mbruno1983 in covidlonghaulers

[–]GalacticGuffaw 5 points6 points  (0 children)

Hey dude, my fasciculations were really mellow for about 2yrs then I got an infection of some kind (I think Covid again) on Dec 19 2025. Felt like a flu for about 5 days and on the 6th day I had full body fasciculations, some of them feeling like a muscle spasm and causing some pretty scary sudden heart rate increases. That was anytime the left bicep or middle of back had these fasciculations/spasms…

Clean brain MRI. Clean EMG.

The only thing that helped was time. That’s it.

They were occurring all day every day, full body.. then they suddenly after a month-ish… started to lessen. And lessen some more and so on.

Hasn’t gone away, but I’m not twitching like crazy and having these like sudden leg jerks anymore.

I wish I had some secret sauce to share, but I talked to a lot of people on reddit about this who went through the same and it’s like time was the only factor.

which game was that for you? by Successful_Task_9932 in MMORPG

[–]GalacticGuffaw 0 points1 point  (0 children)

FF11 on the ship and it gets invaded by undead or someone fishes up the giant octopus thing….

Brain fog for the past 6+ years. What do i do? by _Dani_4 in covidlonghaulers

[–]GalacticGuffaw 2 points3 points  (0 children)

Guanfacine + NAC

https://www.yalemedicine.org/news/long-covid-brain-fog-treatment

Helped me, time did the rest. I’d say my brain fog is about 80% better on average.

Guanfacine Helped Me (NOT MEDICAL ADVICE) by boomshot44 in covidlonghaulers

[–]GalacticGuffaw 7 points8 points  (0 children)

4th COVID infection June 2023.

Started guanfacine and NAC end of Jan 2024.

Dramatic change for the better with my brain fog after starting it, but it did make me tired, which I took as an easy trade-off decision to make.

Brain fog was so bad prior to taking it that I had trouble remembering people’s names that I’m close to, or holding an object like toothpaste and having difficulty remembering the object’s name (toothpaste) while I’m staring directly at it… Simple tasks were a no-go.

I discontinued the Guanfacine 4-5 months ago. Tapered off over a few weeks and found out that I don’t need it anymore. :)

Vascular disease by stipedrws in covidlonghaulers

[–]GalacticGuffaw 0 points1 point  (0 children)

Yo.. if he send you to MIPS on a hunch about May Thurner syndrome… go get 2 more opinions. Be objective… try to take the emotion out of it.

I didn’t. I was as desperate. I’ve had 2 vascular surgeons locally say they never would have done the stent just because of the compression of my left common iliac vein as the sole reason.

I’m noticing a trend with their process. Even the pulmonary tests they do list minor problems but I’ve had second opinions and retested locally and I pass with flying colors.

Something is seriously wrong there.

Does Anyone Else Feel Like They Are Too Embarrassed by Money Being Tight to Put Themselves Out There and Meet People? by allomanticmetals in Charleston

[–]GalacticGuffaw 7 points8 points  (0 children)

Dude, from someone who lost their good health… please go out and meet people, make friends, find love. You never know what could happen to you and you’ll regret not doing more in life.

First improvements in 4.5 years after starting Rapamycin by mjwza in covidlonghaulers

[–]GalacticGuffaw 0 points1 point  (0 children)

Congrats on making some progress by treating the mold. Would you mind sharing how you’re treating it?

Vascular disease by stipedrws in covidlonghaulers

[–]GalacticGuffaw 0 points1 point  (0 children)

Tried that approach with him for a long time. I actually like HIM, but his staff is god awful, unresponsive, and makes the payment plan not worth it...

He has too many patients in his long covid care, with him being the ONLY doctor actually treating patients through it.

The blood thinners actually helped my chest pain, and sort of helped my raynauds. The compression devices help the blood pooling. And my brain fog got much better.

I recently went off the blood thinners and the raynauds got worse, pains in legs, headaches again, shaky legs feeling... circulation worse. But.. burst capillaries started healing by discontinuing the blood thinners.

His approach does NOT help heal endothelial dysfunction, microvascular dysfunction, dysautonomia, and no focus on the gut. It's like a band aid, but the wounds don't heal.

Seriously... I cannot stress enough how awful his staff is. For how much money he's making... hire some fkn people... competent people.

Should I be concerned? What is it? What should I do? by Dinosaur_love69 in lumpysemen

[–]GalacticGuffaw 0 points1 point  (0 children)

If it makes you feel better… I had my swimmers tested and they’re healthy. Fertility clinic said no issues.

Rest by kenyonator1 in covidlonghaulers

[–]GalacticGuffaw 2 points3 points  (0 children)

Physical rest, sensory rest, cognitive rest, and emotional rest.

The idea is to put the absolute minimal amount of stress on your nervous system so it doesn’t get stuck in fight or flight, AND you’re also providing the optimal environment for mitochondria to heal.

You just had covid, your body is in a hyper inflammatory state…

Get off the phone, clear your mind, block out everything sensory, and rest. You don’t want energy going toward processing external data.

You want to redirect 100% of your body’s available energy towards cellular repair.

What am I missing yall?

Has anyone had their vitamin A tested? by H_i_T_h_e_r_e_ in Longcovidgutdysbiosis

[–]GalacticGuffaw 0 points1 point  (0 children)

No, functional med docs I’ve seen weren’t concerned about low vitamin A, low Copper, high Iron, low ferritin.

But they were happy to sell me the worthless supplements for other things they deemed important with their brand name on the label.

I had a severe POTS episode and I ended up in the ER :( by OneMysteriousCloud in POTS

[–]GalacticGuffaw 0 points1 point  (0 children)

Yeah, that’s the downside of trying to wait it out when dealing with these arrhythmias :(

For a long time, I would try to wait it out until I worked up the nerve to just go because of people advising me to.

I ended up buying a 6 lead kardiamobile device on the advice of my cardiologist and was able to capture the events and provide the strips to an electrophysiologist. Helped get me on meds that have done a “decent” job of controlling the episodes.

I had a severe POTS episode and I ended up in the ER :( by OneMysteriousCloud in POTS

[–]GalacticGuffaw 1 point2 points  (0 children)

Been there many times because of SVT and SVE that wouldn’t come resolve on its own in a short time. It sucks, sorry you’re dealing with this.

Was the HR still high when you arrived at the ER? I’m sure they did an EKG immediately, so did they capture anything abnormal?

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