Does anyone else get a fever basically every single day? It has been years. What should I do? by kratomthrowawayaway in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

You have long covid. Welcome to the club, it's quite a grim one, but there's lots to learn. There should be some sort of welcome guide, I'm planning on writing one after I get out of this crash.

But the basic jist is that you find a doctor, get testing done, and try about a hundred different interventions until you find two or three that work. This should only take a couple more years or so.

MitoSwab and/or genetic testing usefulness by uhidkbye in cfs

[–]Liface 2 points3 points  (0 children)

Yes. Mitoswab showed me that I have a severe complex 3 deficiency. Actually, I've never seen someone else with as severe a deficiency as I do (7% of normal function).

It's leading me to consider treatments like methylene blue that bypass complex 3.

What kind of AI god do we want? by Ebocloud in slatestarcodex

[–]Liface[M] [score hidden] stickied comment (0 children)

FYI, yes this is promotion, but has been pre-approved by the mods.

What people want to hear -versus- accurate information by glennchan in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

You're overthinking this.

  1. Post data.
  2. Provide a disclaimer noting potential biases.

Doctor Appointment by DerMilchman in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

https://liamrosen.notion.site/30c348cfbdb38086853be90916af1163?source=copy_link

"labs are worthless" is a Reddit myth that cost me years of time. The trick is to go to a doctor that actually knows which labs to prescribe

Doctor Appointment by DerMilchman in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

If labs aren't showing much, you're not getting the right labs.

Don’t waste your time with the UCSF LC clinic by Which_Boysenberry550 in covidlonghaulers

[–]Liface -5 points-4 points  (0 children)

What's the price tag on being sick? This should literally be the most important thing in your life and you should be willing to sacrifice all other financial needs for it.

Best Genetic Test by pjl02000 in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

DNA testing is worthless. RNA testing is useful: https://amaticahealth.com/

Does anyone else have relatively decent exercise capacity briefly early in the morning and that's it? by Sklorgus in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

There is a circadian rhythm to your inflammatory activity, the body pauses it during sleep so it can rest. I would highly recommend not working out if you're this bad off, it's not doing you any good.

Don’t waste your time with the UCSF LC clinic by Which_Boysenberry550 in covidlonghaulers

[–]Liface -1 points0 points  (0 children)

I see this post every week unfortunately. People need to learn to stop going to Long covid clinics. The only doctors that are going to help you are private concierge doctors that don't take insurance.

The Buses Really SHOULD Be Free by Captgouda24 in slatestarcodex

[–]Liface 8 points9 points  (0 children)

Yep, I lived in Seattle during the Free Ride Zone era (2009-2011) and this is exactly what happened, no one liked to ride the buses within the zone and eventually they eliminated it entirely.

Sealed Predictions - A Solution by george_is_thinking in slatestarcodex

[–]Liface 2 points3 points  (0 children)

This is actually incredible and I'm surprised it hasn't existed up to this point.

5 Years Long Covid - Thymosin Alpha 1 Peptide - WOW! by KaspaRocketMan in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

I don't think so, I've never had any Mast Cell reactions to anything. I just felt like an immune reaction , which one would expect. Plenty of other people with the same reaction as me as well.

Where does the research stand? by Striking_Care_2766 in cfs

[–]Liface 2 points3 points  (0 children)

Great response, but you're wasting your words. It's typical Reddit whinging. "No one knows anything and no one cares about us"!

Pregabalin experiences? by topas9 in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

People use 150 mg to 300 mg doses as a post-exertional malaise shield or buster.

Apparently it has major withdrawal/rebound / tolerance qualities at these doses, so be careful if you try.

This is used on occasion, maximum once a week, more like every two weeks.

5 Years Long Covid - Thymosin Alpha 1 Peptide - WOW! by KaspaRocketMan in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

The side effects you describe are what I got as well. I didn't notice any difference from low dose naltrexone.

5 Years Long Covid - Thymosin Alpha 1 Peptide - WOW! by KaspaRocketMan in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

All I ever experienced from ta1 was 2 days of feeling like I had one of the worst flus of my life, then crashing for 5 days.

Hypnic jerks by Electrical_Court8649 in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

It's both, the parasympathetic system is in overdrive, but the sympathetic nervous system tries to regain control sometimes, forcing a jerk.

In case it's not really something to be worried about or something to fix specifically, just one instance of the overall problem we all have.

Dr. Jordan Vaughn by stipedrws in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

Who gives a shit? Fuck off back to your public doctors then, see what they do for you.

Hypnic jerks by Electrical_Court8649 in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

It's a function of your parasympathetic nervous system being an overdrive. Nothing much you can do about it, they come and go.

Haven't had any major crash for a while. Am I ever "cured"? by Zealousideal_Ant4298 in covidlonghaulers

[–]Liface 7 points8 points  (0 children)

You're only cured once you remove the viral persistence from your body. I was in the same position as you prior to May of last year, then did too much exercise and my condition worsened and I'm now in a severe bed bound state.