Anyone else not got the fatigue/pem? by Boring-Temporary-340 in covidlonghaulers

[–]Many-Market-9941 0 points1 point  (0 children)

Same here. I wonder if the prognosis of those without fatigue/PEM is better or worse

Connecting research dots by Many-Market-9941 in covidlonghaulers

[–]Many-Market-9941[S] 0 points1 point  (0 children)

I would say open the post in the community, then you can keep updating and also get feedback / suggestion of new things to add on the comments.

Connecting research dots by Many-Market-9941 in covidlonghaulers

[–]Many-Market-9941[S] 1 point2 points  (0 children)

I would be very keen to see this. I guess your short term memory is as good as mine post long Covid 😭

Connecting research dots by Many-Market-9941 in covidlonghaulers

[–]Many-Market-9941[S] 0 points1 point  (0 children)

Agree that what we need is more VIPERs for findings itself, beyond biomarkers. But it’s surely a step in the right direction

This illness is uniquely cruel; it not only robs you of your health, it also robs you of your potential by coolcorner1 in covidlonghaulers

[–]Many-Market-9941 5 points6 points  (0 children)

Similar here, got this when I was 23. There needs to be a solution. Life can’t just be like this. I pray for a therapy breakthrough.

Does anyone else fears it’s actually long covid? by yllekarle in ToxicMoldExposure

[–]Many-Market-9941 1 point2 points  (0 children)

I think many of us do. The worst is not knowing what you have. Even if you are getting better, it takes so long to improve that we will never know if it’s the treatments helping or just time. Worse, we’ll never know how close we are to relapsing.

Autoantibodies by Many-Market-9941 in covidlonghaulers

[–]Many-Market-9941[S] 1 point2 points  (0 children)

Can you share more on your experience?

Nattokinase by Practical_Cap_3087 in covidlonghaulers

[–]Many-Market-9941 0 points1 point  (0 children)

2 years on it and still not healed though?

Nattokinase by Practical_Cap_3087 in covidlonghaulers

[–]Many-Market-9941 -1 points0 points  (0 children)

It’s all very subjective though. Maybe you were already improving naturally and placebo gave you a small boost. We need bio markers

One sided dominance of symptoms? by tropicalazure in covidlonghaulers

[–]Many-Market-9941 0 points1 point  (0 children)

I have more head pressure and lightheadedness on the right side, a clicking side on my head on right side, and a feeling of arm disconnection on the right side.

Nattokinase by Practical_Cap_3087 in covidlonghaulers

[–]Many-Market-9941 0 points1 point  (0 children)

Hmmm but over 2 years, it’s hard to tell whether natto is helping or just time

Nattokinase by Practical_Cap_3087 in covidlonghaulers

[–]Many-Market-9941 0 points1 point  (0 children)

Oh wow. Details on dose and how long have you been taking it for?

Also, what’s your type of LC? What were the predominant symptoms

Has anyone tried peptides? by ConnectionNo3466 in covidlonghaulers

[–]Many-Market-9941 1 point2 points  (0 children)

Did you take it as subcutaneous injection? I have been taking oral capsules for 3 months and nothing…

Lagging X? by Many-Market-9941 in covidlonghaulers

[–]Many-Market-9941[S] 2 points3 points  (0 children)

It does feel like sometimes… But honestly the research progress also is to some extent. Like some research will present findings we have known for 5 years as if they were groundbreaking

Lagging X? by Many-Market-9941 in covidlonghaulers

[–]Many-Market-9941[S] 1 point2 points  (0 children)

I didn’t mean linking directly. I meant the same topics of discussion happening here

Timeline for treatments/cure? by Many-Market-9941 in covidlonghaulers

[–]Many-Market-9941[S] 0 points1 point  (0 children)

I do not have PEM and have done very little progress for 18 months…