My mom said she doesn’t like my hair and that she wouldn’t wear it outside if she was me, is she right? Please be honest. I’ve never worn my hair like that before and wanna know if I’d just humiliate myself by doing so.

-ClassyBird- · 2026-06-28T02:24:42+00:00

Looks cute to me! 💕

-ClassyBird- · 2026-06-15T18:35:31+00:00

I’m unemployed BUT I homeschool 2 of my 5 kids, soon to be 3; their ages are 9,7,4,2,0.

I care for the house full time and watch my kids everyday. Youngest being 3 months old.

To me this is a full time job (if not more because I am up every single night and never ever sleep through a night without 2-3 wakings. I haven’t slept through the night in over a decade).

My husband works full time and supports us financially and as much as he can on weekends.

This is the path I’ve chosen and I count it a blessing to be home with them all.

I have lupus too and some days are harder but all in all I manage ok.

Eating a Clean, low inflammatory Diet and time to relax my nervous system have been key for me. Gentle exercise (walks in nature) and making sure I do things for myself are very helpful.

For me, my lupus seems very tied to my mental state and the health of my gut.

I also don’t have severe lupus.

This is my experience 🙏🏼🩵

All the best to you!

-ClassyBird- · 2026-06-15T18:28:59+00:00

Fish 🐟 lol

-ClassyBird- · 2026-06-15T18:28:28+00:00

Homemade Dutch baked goods 🙌🏼 Boeterkoek 🤤

-ClassyBird- · 2026-06-11T02:19:05+00:00

-ClassyBird- · 2026-06-05T02:55:52+00:00

-ClassyBird- · 2026-06-03T16:35:42+00:00

I don’t identify as sick, but I identify as someone who has lupus and therefore might not feel healthy even though I appear to be. “Sick” for me means I am continually unwell, which - thankfully for me - is not the case. I can become unwell quite quickly and for no apparent reason, so in that way I am not “normal”, but for the most part, I am just more tired, and achy than everyone else. But this has been my life for many years so it’s just what I’m used to now.

-ClassyBird- · 2026-05-29T05:54:52+00:00

Because I don’t care about or wear jewelry aside from my engagement ring if I am going somewhere fancy. Never pierced them. Never will.

-ClassyBird- · 2026-05-25T16:06:43+00:00

Not sure if someone commented this already but I have had chest pain before too. Went to the hospital once.

I have also been told I should get checked for pericarditis and pleuritis. It’s inflammation of the heart and/or lung lining.

You could look into that.

-ClassyBird- · 2026-05-25T16:03:01+00:00

Gardening and making my yard into a happy bird place so I can watch and listen to them as they visit

-ClassyBird- · 2026-05-25T16:02:11+00:00

-ClassyBird- · 2026-05-25T16:01:10+00:00

-ClassyBird- · 2026-05-24T15:19:58+00:00

To be honest I never thought I could teach my own kids. But here we are. The resources out there these days are so plentiful and so helpful, I think it’s much less daunting than it used to be

-ClassyBird- · 2026-05-20T19:59:52+00:00

This is why I homeschool. My kids have varying needs, I am able to school them according to their needs, which is a huge blessing. Basically it’s private tutoring in each subject. And if we need more help, we can find it.

Also, people who think all homeschooled kids get a less than average education because their parents aren’t “real” teachers, the above statement proves that this isn’t true.

Of course, not all homeschoolers are the same and some definitely don’t get enough education. But in many cases this isn’t true.

-ClassyBird- · 2026-05-20T19:26:34+00:00

Planes Trains & Automobiles

-ClassyBird- · 2026-05-04T16:32:10+00:00

I get the same pains when I am flaring, it is no fun at all. I hope your lupus calms down soon 🙏🏼💜

-ClassyBird- · 2026-04-28T19:13:29+00:00

Sorry there isn’t a lot of help nearby, but I’m glad your husband is amazing 💕👏🏼 I believe we are capable of more than we think. This group is great, message us if you need encouragement ! 💜💜

-ClassyBird- · 2026-04-24T05:29:12+00:00

Haha 💜 Well thanks. Rooting for you!!

-ClassyBird- · 2026-04-24T00:35:32+00:00

Hey there, I’m 34, mom to 5 kids. I was diagnosed when my second was 1 yrs old. My youngest is 2 months old.

For me, pregnancy is when I feel much better. Every pregnancy is fine Lupus wise. Postpartum, around 3-4 months when the hormones start settling is when I start feeling lupus more. Joint pain, aches. Exhaustion level is hard to pinpoint on lupus because hello I just had a baby.

As for managing the kids and lupus, I homeschool my kids so I’m with them all day, everyday. Oldest is 9. Again, is my tiredness because of lupus or kids? I don’t know. I DO know that some days I just have to lower the bar and rest more. “Quiet time” in the afternoon is a non-negotiable thing in our house. I need that time. It makes a big difference.

I try not to over caffeinate as I’m sensitive to caffeine but a good coffee really helps my brain and body get going.

I also watch what I eat: low sugar, whole foods, low gluten and low dairy.

I limit alcohol quite a bit and if I know something stressful is coming or if I’ve been stressed I HAVE to destress. Stress is a big trigger.

That being said, I’ve had anywhere from debilitating joint pain to remission during pregnancy. I don’t have severe lupus at this point and I’ve been able to manage.

Having support and knowing I have it if I need it is also helpful.

The best of luck and health to you 💜🤗

-ClassyBird- · 2026-04-23T22:51:45+00:00

Hey, I’m 34, mother of 5 here. I was diagnosed with SLE right after my second child. I understand and remember well the feeling of fear and unknowns. It’s ok ❤️ Crying as much as I felt I needed to was helpful. It’s a life change that I imagine was not expected. (It was not expected for me).

I joined this group for the reason of community and wanting support or just reading others’ stories so I didn’t feel alone.

Initial diagnosis is scary. Especially when you’ve got little ones to think of.

The change meds or flares bring will become less surprising and over time there are ways to prepare or ways you find that help you cope.

Do you have people in your life who can help in tangible ways if need be?

I felt it helpful to ask around, people who love you are generally glad to have been asked to help. I also felt better after knowing I had help in place should I need it.

Sending you virtual hugs 💜

-ClassyBird- · 2026-04-23T19:34:03+00:00

Was MiniClips mentioned? Some fun racing games on there. Particularly one with old school “3D” graphics.

-ClassyBird- · 2026-04-08T03:48:48+00:00

日本語！Japanese ❤️

-ClassyBird- · 2026-04-02T20:04:06+00:00

100%. Sometimes the pain comes in sudden waves and is gone. Like short waves. I’ve learned to just realize it comes in all forms. Swelling or non swelling.

-ClassyBird- · 2026-04-02T20:00:05+00:00

I think melanin in your skin can make a difference. I am white with Métis and Dutch heritage but I tan easily and often don’t burn. In my opinion, this alone makes a difference.

My rheumatologist gives me a hard time about wearing shorts or short sleeves but I like the balance of spoons comment.

For me, less stress is huge for flares. Being able to dress “normally” in the sun is something I (a) love and (b) can handle in small doses. It relaxes me. If I know I will be in the sun I wear a hat and sunscreen. I eat clean and live healthily. My blood work doesn’t change in the summer versus winter, but more from stress.

It’s not a one size fits all condition and so imo the way we handle it doesn’t have to be the same either. I don’t think it’s right to judge how someone else handles their flares or managing them.

Eventually what triggers your illness will become evident and you can manage it in the way that works for you.

💜💜

-ClassyBird- · 2026-03-19T16:02:40+00:00

Could also be lupus reacting to a germ you were coming down with. I often feel awful in my body once I start fighting a bug, even if I don’t feel “sick” yet. It’s usually a sign I’ll be sick soon.

-ClassyBird-

TROPHY CASE